Not diagnosed but worried.

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Emsy70
Emsy70 Member Posts: 1
edited March 2021 in Not Diagnosed But Worried

Hello all I can't believe I'm actually writing here but holding inside, as know one knows is hurting my psych.

Im 50 years old , diagnosed SLE age 11, born with connective tissue problems, diagnosed prinzmetal angina 12 years ago so used to severe health issues over the years.

8 years ago breast fna biopsy showed high suspicion of cancer, a very hard calcified lump, and lymph large so went straight for excision. Surgeon I know well, trained under him ( nurse) so he told me after that it looked nasty and to expect cancer. Anyway he always talked to me like fellow nurse so when it came back benign, he told me he was surprised. Was just atypical hyperplasia. So ofcourse I got the paranoias as I and ALL who know him hold him in high regard as breast surgeon lol. Lymph was just being deceptive, with 2 joining together to appear large. Sentient lymph matted to others.

2 years later another one removed other breast but local this time as close to surface, another atypical hyperplasia solid and cystic mass.

So 5 weeks ago I was in severe pain with sprained ribs, really severe pain...happens in my sleep due to my disease....so I put my arm up trying to get relief , my breast had a sharpe nerve pain, then I felt it so much bigger than the previous. Went to dr way more distressed about being in such pain and she felt lump too. So different to the others. It's at least 4 cm in one direction so takes up a huge percentage of my smaller breasts. Very hard but hopefully just a cyst. My dr refered me for urgent within 2 weeks 5 weeks ago but I have to wait another 4 weeks.

I'm just writting here as bent over this morning and felt it that way for the first time, shocked it's too much of my breast feels revolting needs to go anyway.

I stopped doing bse 1 1/2 years ago after traumatic event...silly me even though it's likely to be benign.

I worry years on lupus drugs that have kept me alive but increase chance of cancer could affect my situation. But that's lymphoma mostly, my father had that, survived stage 3, and I never worry about that re myself.

Guess it's because I'm shocked at the size of this, and I have another 4 weeks to wait to get rid of it. Ugh no friends know, my adult kids no way, no family so thank you for providing this platform,

Not wanting to bother ladies who have actual cancer ! Just wanting to connect with those in my situation of the horrendous waiting lounge experience, God bless xxx


Comments

  • Beesie
    Beesie Member Posts: 12,240
    edited March 2021

    Emsy, welcome!

    So sorry you find yourself in this situation. As you mentioned, this could just be a cyst - at your age they are pretty common.

    Has your doctor referred you for a mammogram and ultrasound? Can you call to see if you can get in sooner if someone else cancels their appointment? Or could you find another facility that can see you sooner?

  • Rah2464
    Rah2464 Member Posts: 1,647
    edited March 2021

    Emsy70 I am so sorry you are going through the awful waiting game. I hope you can get imaging and biopsy moved up sooner. I second Beesie's suggestion to get on the call in list if someone cancels. We all certainly understand how difficult this is. Please keep us updated as to your progress on getting your testing completed. Wishing you all the best.

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2021

    Hello Emsy70, Great suggestions from the others! The waiting game is really, really difficult. We're here for you!

  • LivinLife
    LivinLife Member Posts: 1,332
    edited March 2021

    Just want to welcome you and offer support Emsy! I ditto what the others said about trying to move the appointment up if you are able.... Please keep us updated... including with any support we can offer during the long wait...

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