Started radiation today. How do I care for skin?

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Mary6886
Mary6886 Member Posts: 15

Hello! I have IBC stage 4 with bone metastasis. I had 20 rounds of chemo, mastectomy and lymph node removal, and I started radiation treatments today. Treatments will be twice a day for five weeks. Will you please share the best way to prepare and care for skin? Thanks in advance.

Mary

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  • moth
    moth Member Posts: 4,800
    edited March 2021

    Hi Mary6886, there's an entire forum for radiaiton https://community.breastcancer.org/forum/70 with lots of pinned posts about how to prepare and what to expect. Your radiation center should also have given you some info? Mine wasn't picky about brands - just said to moisturize with any unscented lotion which had water as first ingredient. Use it lots, no soaking in water, no hot tubs, no rubbing. Gentle shower and pat dry. I just finished a set of daily rads for 3 weeks in January & I'm back in again right now for 5 more to the bone. Is your radiation to the bone or breast area?

    Also come join us on the bone met threads if you like https://community.breastcancer.org/forum/8/topics/...


  • Mary6886
    Mary6886 Member Posts: 15
    edited March 2021

    radiating breast and two bone sites.

  • moth
    moth Member Posts: 4,800
    edited March 2021

    You'll probably find more involvement in the skin with the breast - when I had whole breast rads in 2018 I just got dry & itchy. The moisturizing really helped. While at home I had a couple shirts I sacrificed to the grease of the moisturizer (cause I figured there's no way the stains would ever come out) & just kept lathering the lotion on. But I was in full time school when still finishing rads and managed that and wearing a sports bra so really, it was quite tolerable for me. Some people experience skin breakdown but many of us don't so I hope the best for you!

  • blue22
    blue22 Member Posts: 280
    edited March 2021

    Radiation is a bit of a blur. I don't know how it is for you, but for me the Dr. emphasized the IBC radiation would be nothing like typical radiation for breast cancer.

    We took each week at a time, and my RO would tell me ahead of time what to expect next. I was given Calendula in the beginning, later on bandages, some ointments, medicinal honey etc. I also had a sort of tube top I wore in the end to keep the bandages in place. Near the end I was given some type of spray to kind of wash away the skin as it would peel off.

    Are they using a bolus and did they talk about targeting the skin? They should give you instructions for the skin care and when to apply the ointments/lotion etc.

  • Mary6886
    Mary6886 Member Posts: 15
    edited March 2021

    hey there! My RO mentioned aquaphor and said we would address the skin problems as they arise. She mentioned they have many options to treat my skin. I have only had two treatments so far. I will discuss concerns with her when I see her Monday. thank you

  • Mary6886
    Mary6886 Member Posts: 15
    edited March 2021
  • EBBA12
    EBBA12 Member Posts: 62
    edited March 2021

    hello Mary6886, I have Inflamatory breast cancer - triple negative. I currently finished 33 treatments of radiation on 3/12/21. my first 29 treatments were 50.4 gray using a metal ( tiny circle links something from the 80’s) They used the bolus every other treatment = then the last 4 I had a boost to 60 gray with no bolts.

    Like with any advise, I would check with your RO first, because they can be particular with what they want you to use during treatment.

    Cream my MO recommended was Miaderm (without the L) I needed to apply 4x a day. I only had daily radiation treatment and noticed my breast getting redder during the 4 week... so I started applying the cream 6x a day, one being at night when I had to pee from drinking all that H2O. I did start to notice some skin break down under my breast, looked like tiny pink jelly fish, which is skin protein break down. My RO gave me a free sample of SILVADENE BLISS, it came in a small container, ( to use for healing) I was told to keep it sterile, to use a Q-tip to apply and never double dip, but you could use both side of the Q-Tip. It did help and clear things up under my breast, when RO said it improved RO said to discontinue usage. MY RO also gave me free sample of AQUAFPHOR ( they receive it free from the drug companies) . Initially it was for my nipple but after 60 Gray radiation, my RO said to apply miaderm wait two minutes then reapply the Aquafour. Aquafour is thick and greasy but it did work. I use it at night and in the AM. MY skin is still red but the redness is improving and some of the skin is lightly peeling.

    I know for radiation there is window when you should not use cream prior to radiation —- , you can use Miaderm up to 1 hour before and 1 hour after treatment. Aquaphor is a 4 hour window before and after treatment.

    Also I was told to shower gently lett No the water flow over my back to the front of my breast, no rubbing, and to wash using unscented Dove soap daily. Lightly pat dry with a soft towel, lol Sometimes I used cottonelle for the final blot...so it would not stick to my skin before applying miaderm. The RO nurse also gave me some free square gauze pads to use.

    I am not sure where you are being treated - my RO use to stock Miaderm in the hospital gift shop for his patient to purchase. It was cheaper than buying it on line.

    EBBA

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2021

    If the rad techs write on your skin with a Sharpie marker--and this is frequently done---don't try to wash it off with soap and water. It will unnecessarily traumatize the skin and lead to breakdown later. Oil (baby oil, coconut oil, olive oil, just something very greasy) and a gentle dab with tissues will remove it, or at least remove enough of it that it doesn't stain your clothes.

  • DeniseML
    DeniseML Member Posts: 81
    edited March 2021

    Hi Mary,

    I am currently receiving RADS for left IBC. Had chemo, Left mastectomy and now RADS 30 treatments. one a day M-F for 6 weeks. Only found out about Bolus used with each for the entire left chest RADS ( 25 Treatments) . I just completed 24 and have been struggling with finding the products that provide relief from the discomfort and itching. I am very red with some skin tears. Silvadene cream is the last product prescribed- does ease burning for a short time, a bit messy, Did nothing for the itching. Currently using Aloe and Hydrogel with lidocaine which provides better relief. Also continuing to apply Aquaphor at bedtime to keep skin hydrated. No skin sloughing yet, but good to know it may happen. My RO is not so forthcoming with what to expect each week. Thankfully only 1 left with bolus, then 5 boost to incision site and home free! wishing you the best!

  • EBBA12
    EBBA12 Member Posts: 62
    edited March 2021

    Mary I only had to take Benadryl allergy (the little pink tablet) helped with the itching at night for a day or so. If I didn’t need it I didn’t take it. I also drink a lot of H2O and I think that helped. My RO swears by miaderm lotion without the L, it has calendula as an ingredient. IF YOU ARE ITCHING maybe you are allergic to say rag weed. Using calendula might cause itching. Discuss any allergies you think you might have with your RO. 🤞🏻 EBBA

    Don’t peel your skin, that will only cause more problems

  • DeniseML
    DeniseML Member Posts: 81
    edited April 2021

    UPDATE: hi everyone. I completed RADS 10 days ago. At that time the chest was very red with open wound above incision where marker bandage was removed , extending down and inward toward incision. I tried multiple products recommended ( hydrogel with lidocaine, honey - based ointment, aloe gel, & Silvedene ointment) without improvement. Did notice it was better after using Aquaphor only one night. The wound & burned areas are quickly healing with only Aquaphor ! Big relief! Had some sloughing skin, but has resolved also. Bleeding wounds now closed & pain mostly gone. I also used Benadryl for itching- worked well. hope all ends well with minimal problems for eve


  • EBBA12
    EBBA12 Member Posts: 62
    edited April 2021

    I am glad aquaphor worked. Check with your RO they should be able to give you free samples they received from the drug company as well as coupons. Yes skins will peel - do not force it, your skin will peel off when when skin under it is healed enough for it to do so. They gave me silverdene bliss which is a white crystals like substance I applied with a q-tip. I was told to use it on wounds under my breast but mine were not bleeding. Again they gave it to me for free. WEAR LOOSE 100% cotton T-shirt’s . Best of luck for a full recovery. 🙏EBBA

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