herceptin and perjeta only, side effects (neuropathy?)

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jstod111
jstod111 Member Posts: 2
edited February 2021 in Immunotherapy - Before, During, and After

Hi guys

My wife was diagnosed with stage 3 IDC HER2+ in October of 2018. She did 12 Taxol with herceptin and perjeta every third cycle, 4 AC, bilateral mastectomy (no reconstruction) and has 6 weeks of radiation and 13 cycles of herceptin and perjeta to go. Her pathology showed a complete response.

I've been reading up of the side effects of herceptin and perjeta. I was surprised to see that neuropathy and hair loss is listed for perjeta. I was hoping she could avoid more hair loss issues and icing (we iced hands and feet during the 12 Taxol cycles.

If you've had herceptin and perjeta (minus Taxol) what was your experience like? How did it compare to Taxol + herceptin and perjeta? Any issues with hair loss or neuropathy? Did you ice hands and feet for perjeta?

Thanks in advance,

Jeff

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  • Birchbark26
    Birchbark26 Member Posts: 26
    edited May 2019

    my daughter is on Herceptin and Perjeta

    She is having trouble with her contacts and focusing

    Anyone else having this issue

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  • Vermontski
    Vermontski Member Posts: 6
    edited August 2019

    I am also on Herceptin and Perjeta-every three weeks until March. I was diagnosed with HER2+bc, had chemo, surgery and radiation. I as hoping to have few side effects with HP, but my joints are sore, I’m generally pretty tired. I’d love to connect with others on HP.


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  • DeniseML
    DeniseML Member Posts: 81
    edited February 2021

    Hi Vermontski; Looks like you are almost finished with treatment! That is great! I'm sorry to hear about the joint pain & fatigue. I am just starting HP for 12 more treatments. Also diagnosed with HER2+ BC, had TCHP for 6 treatments, surgery and am starting RADS and Immunotherapy now. I wonder if the Loratadine would help with the joint pains like it did when receiving Neulasta. The MO recommended warm baths to help with body aches and keep moving . definitely easier said than done during treatments. Hope your symptoms resolve quickly after last dose. Wishing all the best moving forward.

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  • Melbo
    Melbo Member Posts: 346
    edited February 2021

    is joint pain a common side effect from HP alone? I have been stiff and slow to get moving when I stand up after sitting for weeks now, but I assumed it was from very little activity/movement for the last 6 months. I’ve been trying to get better about walking, even if it’s just laps in the house, but it’s hard to get motivated.

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    Ladies -until your two new posts,this thread has been inactive for 2 years.

    I would suggest you search Herceptin. Also HER2+. And also neuropathy. There is also a Stage IV H&P thread which you can read, but we've asked not to post to Stage IV thread as long at that's not our diagnosis.

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  • Melbo
    Melbo Member Posts: 346
    edited February 2021

    thanks ministwo- I noticed that when I responded, but I figured what the hell anyway. I’ve posted in a few of the other, more active, forums as well.

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