Mammogram found new mass

Options
dontwantthis
dontwantthis Member Posts: 44
edited February 2021 in Not Diagnosed But Worried

About a year plus ago I had an ultrasound done on my right breast (same side as previous cancer) and they found something suspicious. I was sent for a mammogram and they said they did not find anything.

Wednesday this week I had my annual mammogram and got a call the next day, they found a new 1cm mass (exactly where the ultrasound previously saw something). They are sending me for a more intense mammogram and perhaps a biopsy.

Question, on the mammogram results it says not suspicious for malignancy. One so why do I need to do an intense mammogram? Second, if it is not suspicious doesn't that mean I don't have to worry? Can it be wrong?

Would love some answers please.


«1

Comments

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2021

    A diagnostic mammogram (and often an ultrasound as well) is usually ordered when the imaging from the screening mammogram shows something but it's not clear enough to know if more follow-up (a biopsy, for example) is necessary, or not.

    Do you have the imaging report from your screening mammogram? What was the exact wording? It does seem odd that the report would say that the mass is not suspicious for malignancy, if you are being sent for follow-up. And it's rare, I think, for a "not suspicious for malignancy" assessment to be made based on a screening mammogram alone.


  • dontwantthis
    dontwantthis Member Posts: 44
    edited January 2021

    how can I email it to you?

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2021

    Can you take a picture and post it here, covering up identifiable information?


  • dontwantthis
    dontwantthis Member Posts: 44
    edited January 2021

    I can't copy it, how can I send you the report?

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2021

    Sorry, I don't want your report privately. That wouldn't be appropriate. I'm just someone who's had breast cancer and lots of biopsies and I might be able to interpret some things in your report (or maybe not) but I will only do that publicly here on the discussion board where other people also have an opportunity to comment.

    Can you just write out in a post what the report says?

  • dontwantthis
    dontwantthis Member Posts: 44
    edited January 2021

    Findings: New 1cm irregular mass right upper inner quadrant, there is no suspicious microcalcifications or architectural distortion to suspect malignancy.

    Opinion: Further evaluation of right breast with additional mammographic views and ultrasound suggested, refer to rapid diagnostic unit would be appropriate as a biopsy might be required.

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2021

    Okay, the radiologist is not saying that the mass is not suspicious for malignancy. He is saying that there are no suspicious microcalcifications or architectural distortion associated with the mass. Those factors, in addition to the mass, might have pushed you straight through for a biopsy, because the combination of those factors would make the mass moderately to highly suspicious for malignancy. In the absence of those factors, the mass itself needs to be looked at more closely, with a diagnostic mammogram and an ultrasound. From there, it might be determined that the mass is low risk (a complicated cyst, for example) warranting follow-up imaging in 3 to 6 months, or it might be determined that a biopsy is advisable. Biopsies are recommended for anything assessed by the radiologist to have a greater than 2% chance of being cancer.

    Good luck with the call-back. Hopefully a biopsy is not recommended. When is your appointment?

  • LivinLife
    LivinLife Member Posts: 1,332
    edited January 2021

    Hi dontwantth! I agree with Beesie on wording and the fact that want more follow-up. They likely also want to be extra careful with you since you have a history of breast cancer. Hopefully this comes back benign for you. I hope you don't have to wait too long for the follow-up... Do what you can to stay busy while you wait.... the waiting is one of the hardest things as you know ....

  • dontwantthis
    dontwantthis Member Posts: 44
    edited January 2021

    Something strange, I got a call today from rapid diagnostic, they said they are bringing me straight in for a biopsy, what is going on?

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2021

    Since you were referred to rapid diagnosis clinic, my guess is that the plan is to do the biopsy at the same time you come in for the additional screening, unless the screening clearly shows the mass to be low risk (a complicated cyst, as an example). So I'm thinking that they want to be prepared to do the biopsy, and they want you to be mentally prepared for it, but the plan could change once they get a closer view.

    This seems like a reasonable approach for a rapid diagnosis clinic - a delay between diagnostic imaging and biopsy would be inconsistent with their mandate - and with consideration to your personal history of breast cancer.

  • dontwantthis
    dontwantthis Member Posts: 44
    edited January 2021

    What they told me was I am going straight for the biopsy with a diagnostic assist. Originally I was told it seemed they would do more images, US and if need be a biopsy.

  • LivinLife
    LivinLife Member Posts: 1,332
    edited January 2021

    Maybe they just want to be more cautious going straight to biopsy b/c of your history - not taking chances or adding the additional step of more imaging when they may just feel they want to do the biopsy out of due diligence anyways? I'm obviously speculating though if they want you going right to biopsy it is a due diligence measure. With your history I'd hope that would offer you some peace of mind too even if initially more worry while you wait.... Keep in mind most biopsies come back benign. You've already been in that smaller percentage though so understandably are on higher alert.... Keep us posted on this all right?

  • dontwantthis
    dontwantthis Member Posts: 44
    edited January 2021

    today they did more images, saw the suspicious nodule (same breast as previous cancer, this one is more inner). They did a biopsy they said they felt it was necessary.

    So weird I could see the mass on the mammogram and the ultrasound. I asked the technician if it could be a fat tissue or cyst (played like i was curious what those look like on the images). She said it is not fat tissue or a cyst, it is a solid mass.

    What are the chances that this is not cancer?

    More concerned.



  • LivinLife
    LivinLife Member Posts: 1,332
    edited January 2021

    dontwantthi you are understandably concerned! Anyone would be at this point.... I hope they get results back to you soon - can take from a few days to a week best case scenarios.... Do what you can to distract with enjoyable and relaxing things as hard as that will be while you wait.

  • dontwantthis
    dontwantthis Member Posts: 44
    edited January 2021

    thanks, but I was wondering what a irregular solid mass be if it is not a fat tissue or cyst?

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2021

    Sorry but none of us are medical doctors so we could only guess. Hope you get the results next week.

  • dontwantthis
    dontwantthis Member Posts: 44
    edited January 2021

    I understand, I just figured with so many people in this community someone might have some suggestion of what else a solid irregular mass could be (if it isn't a cyst or fat).

  • dontwantthis
    dontwantthis Member Posts: 44
    edited January 2021

    not sure if this makes a difference but the new mass is not that far away from the original cancerous one.

  • dontwantthis
    dontwantthis Member Posts: 44
    edited January 2021

    Unfortunately breast cancer has returned same diagnosis and breast.

    Question, if I choose a mastectomy do I still need chemo?




  • Beesie
    Beesie Member Posts: 12,240
    edited January 2021

    I'm sorry that it's cancer again.

    Whether or not you need chemo has nothing to do with the surgery you choose. Surgery, whether a MX or lumpectomy, is a localized treatment, with the goal of removing the cancer in the breast. Chemo is prescribed to reduce the risk of a metastastic recurrence, i.e. a recurrence that develops beyond the breast, in the bones or liver or some other organ. It is the pathology of the cancer that determines the aggressiveness and the risk of mets, and therefore whether chemo will be recommended or not.

    Did you have radiation previously? If so, radiation cannot be given twice to the same area, so a mastectomy will be recommended. If you did not have rads last time, then you will likely have the choice of a lumpectomy + rads, or a mastectomy (most likely without rads but sometimes rads is recommended even after a MX). The recommendation on chemo will depend on the hormone status, HER2 status and pathology of the cancer, and if ER+/HER2-, probably on an Oncotype score as well.

  • MountainMia
    MountainMia Member Posts: 1,307
    edited January 2021

    I'm sorry for your news. You should get more information on the diagnosis soon. Are you still working with your prior oncologist? Do you have doctor appointments set up yet?

  • dontwantthis
    dontwantthis Member Posts: 44
    edited January 2021

    pathology report ER-/PR- HER2+ same breast, previous Lumpectomy and rads.

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2021

    Since you had rads previously, a MX will be recommended this time, as rads can't be done twice to the same area and it would not be advisable to have a lumpectomy alone, without rads.

    And ER-/PR- and HER2+ does mean that chemo will be recommended (unless the tumor is extremely tiny), possibly before surgery depending on the estimated size of the tumor. Do you have an appointment with an oncologist? With this hormone status, you need to speak to an MO prior to surgery.

    I'd suggest that you head over to post now in the Just Diagnosed or HER2+ forums where you'll run into more people with a similar diagnosis.


  • LivinLife
    LivinLife Member Posts: 1,332
    edited January 2021

    I really feel for you dontwantthi!!!! I'm so glad you are on this site for all the info and support though info is what you seem to be craving now. Support will be important as you move through treatment as well! Please keep us updated on next steps ok? As I'm sure you know there are the surgery threads, as well as other forums and threads that could be a real help as you move forward....

  • dontwantthis
    dontwantthis Member Posts: 44
    edited February 2021

    It looks like they might suggest a masectomy and no chemo, I am worried about this being the 2nd time. They said it is very small, so might be no reason to do the chemo.

    Thoughts please.

  • Beesie
    Beesie Member Posts: 12,240
    edited February 2021

    The mastectomy makes sense since you can't do rads again. The "no chemo" may not be consistent with treatment protocols. How large is the tumor estimated to be? Previously you mentioned that imaging showed it to be 1cm in size. Usually with a 1cm ER-/PR-/HER2+ cancer, chemo + Herceptin will be recommended.

    I'd strongly suggest that you get a second opinion. Of course the decision on chemo is up to you, but if your doctors are recommending something different than what's in the treatment guidelines, there should be a good reason. And as you say, with this being your second diagnosis one would expect your doctors to be more aggressive with the treatment recommendations, not less. So where the treatment guidelines say to "consider" a particular treatment, with a second diagnosis, I think most doctors would recommend that treatment.

    Here are the NCCN treatment guidelines for ER-/HER2+ cancers. You can see that for even the tiniest cancers, 5mm or small in size, and even being node negative, it's recommended that chemo + Herceptin be considered.

    image

  • dontwantthis
    dontwantthis Member Posts: 44
    edited February 2021

    Thank you, that is what I thought. Can I insist, not that I really want to do chemo, I just don't want it back.

  • Beesie
    Beesie Member Posts: 12,240
    edited February 2021

    I don't know if you can insist. But you can ask why they are recommending no chemo when the NCCN Guidelines (these are the gold standard used by most doctors in the U.S.) suggest that chemo and Herceptin be considered.

    If they don't agree can you go somewhere else?


  • MindiG66
    MindiG66 Member Posts: 56
    edited February 2021

    I’m so sorry you’re dealing with this, again. While I don’t know all the details I just wanted to offer my experience briefly.

    I had ER/PR - and HER2nu+ cancer in 2003 and was fortunate to be apart of what was then a clinical trial with Herceptin. I believe then and now that it was a game changer for me and mid-way through the trial, they realized how great this was for treating HER2nu- cancer and made it available to all with that dx. So, all that to say, I HIGHLY recommend you get a 2nd opinion if your current doctor is unwilling to give you this treatment.

    All the best~

    Mindi

  • LivinLife
    LivinLife Member Posts: 1,332
    edited February 2021

    I agree with Beesie and Mindi! I do not know a whole lot about the medical end of these things. One thing I've seen a lot of though is chemo recommended for HER2+ I would get a 2nd opinion too - honestly even if you talked with them and they agreed to do chemo.... I wouldn't be comfortable continuing with whoever said it was ok not to undergo chemo-esp. the second time around... just me though.....

Categories