How are people with liver mets doing?

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  • Husband11
    Husband11 Member Posts: 2,264
    edited February 2021

    Nicole, I am glad to see you make a post. Very sorry to hear about all the suffering you have been going through. I really hope and pray you get relief from whatever is causing that pain, soon.

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  • NicoleRod
    NicoleRod Member Posts: 2,906
    edited February 2021

    Husband thank you ! Katty Thank you...PET is tomorrow not today :) Glad you will be with me.

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  • BevJen
    BevJen Member Posts: 2,523
    edited February 2021

    Nicole,

    I don't have any idea about this, but maybe someone on this thread can tell you if they can put some kind of padding down on the table to ease your back discomfort during your PET. It's not like the machine can't "see" through it or else they wouldn't offer blankets when we have these scans. Even if you are not in pain with your back, those tables are NOT easy to lay on for any length of time. And the sheets that they usually put on the tables are NOT any help at all.

    As always, pulling for you.

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  • NicoleRod
    NicoleRod Member Posts: 2,906
    edited February 2021

    Thanks Bev..I should have been more clear...my pain when laying flat on my back is in my liver....

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  • BevJen
    BevJen Member Posts: 2,523
    edited February 2021

    Nicole,

    Maybe they can prop you up a bit on that side? I know exactly what you are talking about from my ablations. But perhaps they can put in a wedge or pillow on that side so that it relieves the pressure on that side? Just a thought.


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  • Rosie24
    Rosie24 Member Posts: 1,046
    edited February 2021

    Nicole, Thanks for letting us know how you’re doing. I’m so sorry that you’re still struggling with pain and discomfort. I don’t know if your niece lives near you at all, but if she does, maybe she could help with some gentle back and shoulder massage? PTs are so good with their hands and the right touch can be powerful. Sending good vibes for the PET tomorrow.

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  • NicoleRod
    NicoleRod Member Posts: 2,906
    edited February 2021

    Bev I will definitely ask about something to prop up on that side. Rosie unfortunately my niece is in NC I am in VA.... My husband has actually been giving me a massage each day hes been so amazing. Today is actually like the 1st day hes gone in to actually work :(

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  • Karenfizedbo15
    Karenfizedbo15 Member Posts: 717
    edited February 2021

    Good to hear from you Nicole. Pain, or managing it, is a real nightmare and everything takes So long to heal. Mentally you must be really struggling, but hopefully little glimpses of relief give hope. Just had a nuclear bone scan myself - stillness for 30 mins - since I still have pain too I had myself propped, knee wedged and helped onto and off the table. Felt like a total diva, but there was no way that scan was going to be completed otherwise. Ask for whatever you need!

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  • Bliss58
    Bliss58 Member Posts: 1,154
    edited February 2021

    Nicole, so glad to see you post, but so sorry you're still struggling with pain. In your pocket for the PET scan tomorrow. I just had one last week. Do ask for the knee wedge if not offered. That definitely helps take pressure off for me to lie on my back. And extra right side wedge as BevJen said if they can do it. Hugs.

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  • HopeandGratitude
    HopeandGratitude Member Posts: 524
    edited February 2021

    Nicole - so good to see you post. Missed you.I am.sorry for the pain you are still struggling with. I can only imagine. In your pocket for the pet scan tomorrow. Lots of good advice from others here to make you more comfortable so you can get through it. Fingers crossed and prayers for good results.

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  • BSandra
    BSandra Member Posts: 836
    edited February 2021

    Dear Nicole... phew... we all are simply very glad to hear you. Saulius

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  • leftfootforward
    leftfootforward Member Posts: 1,726
    edited February 2021

    I am thinking of all of you as we struggle while fighting this beast. Nicole snd Grannex, you two are so strong. I wish I could take some of the burden away.

    Prayers for everyon

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  • Kattysmith
    Kattysmith Member Posts: 738
    edited February 2021

    Dear Nicole, all of us who love you and support you are in your pocket today, in fact it's getting quite crowded! We brought snacks and libations and we'll be cheering you on.

    xoxo

    Katty

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  • SeeQ
    SeeQ Member Posts: 884
    edited February 2021

    Nicole, so glad you feel well enough to post, so sorry you're still having so much pain. It's a regular party in your pocket today. I hope they are kind and accommodating to make you as comfortable as possible. ((Nicole))

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  • theresa45
    theresa45 Member Posts: 314
    edited February 2021

    Nicole, I'm sorry for all you've been going through. Sending prayers that your PET scan goes well today!


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  • D37
    D37 Member Posts: 69
    edited February 2021

    Nicole, I hope things go well for you today. You have been in my thoughts and prayers

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  • moth
    moth Member Posts: 4,800
    edited February 2021

    Nicole, hope your scan is easy and smooth! Thinking of you

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  • NicoleRod
    NicoleRod Member Posts: 2,906
    edited February 2021

    Thank you so much everyone :(. When I got out I cried...it was painful even with the pillow under the knees and one under my right side... :(

    Results tomorrow at 4pm.... :(

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  • NicoleRod
    NicoleRod Member Posts: 2,906
    edited February 2021

    I made the mistake of taken Ibprofen last night for my liver pain.... I took 2 pills and it helped and my stomach felt ok...so 5 hours later I took it again 3 pills....I am in PAIN NOW bad in my stomach all morning...so bad I may have to take the pain meds which I have not taken in over a week. I will never again do Y90 I am so over this....I don't know if I will even be able to treat my cancer anymore bc of this stomach and liver pain....I thought I would live till 2022.... 22 is my number...but I don't know ...seriously my QOL right now sucks and I am NOT seeing it getting better....

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  • Kattysmith
    Kattysmith Member Posts: 738
    edited February 2021

    Sweet Nicole, I am so sorry you are in pain. Do whatever you need to do and take whatever you need to take to make yourself more comfortable. We all want peace and comfort for you. I'm hoping and praying that your pain abates and that you hear some good results at 4 p.m. today.

    Thinking of you,

    Katty

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  • HopeandGratitude
    HopeandGratitude Member Posts: 524
    edited February 2021

    Nicole,

    I pray for peace for you and that the doctors can somehow manage your pain to make this time more comfortable for you. I cannot imagine what you are going through with all this pain. Wish I could take it away. i have never heard of this with Y90 treatments and so unfair that this had to happen with you. Praying that news on PET scan is good and can give you some relief.

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  • Anewbreath
    Anewbreath Member Posts: 125
    edited February 2021

    I haven’t posted lately but want to add to the prayers going out for Nicole and Grannax2 Its easy to see all the love coming your way here and I hope you feel that support durning this trying time... prayers for pain free days ahead for all

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  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited February 2021

    Nicolerod, is there a way that pain relief can be given as a rectal insert to prevent the intense stomach pain?

    Chronic pain is so debilitating and can make one give up too soon. I just feel if you can manage your pain, you can take charge of your cancer treatment.

    Can you see a pain specialist or consult with one over the phone?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2021

    Nicole

    I hear your despair. I pray you get some help with the pain and get some hope to keep going. It seems someone out there should be able to get you comfortable with out the horrid side effects.

    Dee

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  • moth
    moth Member Posts: 4,800
    edited February 2021

    Nicole - sandibeach has a good idea. Ibuprofen does come in rectal formulations and works well. Also, if taking orally are you making sure to always take it with food? .Food can reduce some of the pain from the advil.

    or maybe naproxen might be better for you? But again, should be taken with food. When I had cycling fevers and was taking meds around the clock I also had crackers/cookies by the bedside for the night doses. It's a pita but did help me.

    I also agree a pain specialist would be helfpul. Maybe it's time to get back on opioids until everything is healed?

    I really hope things turn around. Remember we talked about how when you feel pain it seems like you can't imagine a life that's not painful, can't remember what it's like to not be in pain? Our brains lie to us. Don't listen. Trust that you can feel well and be pain free again.


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  • BevJen
    BevJen Member Posts: 2,523
    edited February 2021

    Just heard from Nicole -- she had her PET scan yesterday and today had a video conference with her MO, who looked at it with her IR.She is in a lot of pain today in her liver, so asked me to post for her.

    Thank the Lord -- ALL of the mets in her liver are dead, even the original cryoablated lesion. Her C7 and sacrum mets are the same. She has one new met at T3 in her spine. But in light of all of this, her MO wants to go to endocrine therapy next, and will be discussing that in 2 weeks with her.

    She probably won't post that soon, but she wanted to let you all know about this great news.


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  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited February 2021

    BevJen. Thankyou.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2021

    Bev - I am relieved to read that given how much pain she was in and her frustration level. I hope Nicole was able to cry happy tears - what a response!

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  • Husband11
    Husband11 Member Posts: 2,264
    edited February 2021

    Thank you for the update BevJen. She is in my prayers.

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  • HopeandGratitude
    HopeandGratitude Member Posts: 524
    edited February 2021

    BevJen- thank you so much for updating us! That is such an amazing response! I hope this Fantastic news has some soothing effect on all of Nicole’s pain. And I hope she can feel the joy of the results of this scan. Please send her a huge but gentle hug from me. She is beating this back!!!

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