Anyone with positive lymph nodes after chemo?!

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ClareSim19
ClareSim19 Member Posts: 11
edited February 2021 in Triple-Negative Breast Cancer

Hey,

Just wondering if anyone has found that they have still had positive lymph nodes AFTER neoadjuvant chemo?

I’ve asked on other forums and had lots of replies, but everyone is mentioning positive nodes after surgery BEFORE chemo, so not really the same.

Thanks


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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    Claire - it's usually better to keep posting on one thread so everyone can follow all the responses and doesn't have to guess what's already been recommended.

    When you get time, do go to 'my profile' and fill in your diagnosis & treatment to date. It helps others to answer your questions. This is a tripple negative forum, so I assume you're not HER2+

    And finally - when my cancer recurred in a lymph node, I was diagnosed with IDC. I was ER/PR negative but I was HER2+, That's why I had neoadjuvant chemo. And no - I did not have pCR (complete response) to the neoadjuvant chemo. So after surgery I had more/different chemo before I did radiation.

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  • Trishyla
    Trishyla Member Posts: 1,005
    edited February 2021

    I had 1 micromet found during my BMX, after I had done 5 months of ACT chemo. Since I didn't get a PCR, I did five more months of Xeloda, an oral chemo.

    From what I understand, it's fairly common to find something in at least one node post surgery. My breast surgeon wasn't particularly surprised when my pathology changed.

    Good luck. I hope everything works out for you.

    Trish

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  • ClareSim19
    ClareSim19 Member Posts: 11
    edited February 2021

    no, I said I have posted on multiple forums ie different websites, not multiple threads on here.

    I am asking on behalf of my mum, so no need for me to fill out my profile, and yes I am aware this is for triple negative. My mum has triple negative.

    Thankyou

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  • ClareSim19
    ClareSim19 Member Posts: 11
    edited February 2021

    Thankyou for your reply.

    I wouldn’t be worrying if it was still found in just one node, however, cancer was still found to still be active in 4!

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  • Trishyla
    Trishyla Member Posts: 1,005
    edited February 2021

    Also very common, ClareSim19. This means the nodes were doing their job. I know it's hard, but try not to worry too much. I've seen women on this site who have had 20 or more positive nodes, and are still here and doing well many years after their diagnosis.

    Good luck. I hope everything works out for your Mom.

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    Claire - essentially you're discussion the same thing in two other threads you started

    Pathology Results and Disappointed With Chemo Results. You've gotten some good answers on those threads.

    Because if's your Mother's cancer and not yours is all the more reason to fill in diagnosis & treatment. Everyone here can really be a better help if we have the details instead of having to look up the history and read all your past posts.

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  • ClareSim19
    ClareSim19 Member Posts: 11
    edited February 2021

    sorry, didn’t know you were the forum police 🙄

    I posted another thread as I got ONE reply on my last one, and if I don’t want to fill in info section on my profile, then I won’t. I’ve seen lots of women on here with no details on their profile, do you go on at them about it too?

    If I don’t get many answers, I can post as many threads as I want, it doesn’t matter.

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  • ClareSim19
    ClareSim19 Member Posts: 11
    edited February 2021

    and my thread of “disappointed with chemo results" was regarding my mums scan results back last year, Or are you expecting me to go all the way back to a post from October and write under that??? Ridiculous.

    leave me alone please. I tried this forum for advice but all you’ve done is go on at me about bloody threads and posts.

    I’ll stick to UK forums....

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    sorry Claire - just trying to help

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