Being asked to get an abdominal CT and I'm terrified. :(

Good Morning Sunshine,

Was the area of concern you mentioned ok? I think you said C2. I sure hope so. Your dealing with alot.

I called Friday to see if I could get earlier appointment. They told me to call back Monday around 9am. I guess this is a time where they have openings? As much as I don't want this brain mri I have to know what's going on?

Thanks again for writing me. You are very sweet.

Hugs and Prayers,

Lexie

Sort of an update? I was waiting for a brain/head mri on 2/12. I even tried to move it up but it wasn't happening In the meantime earlier that week I was literally freaking out because my ears WOULD NOT UNPLUG. I couldn't sleep and I would just walk around the house freaking out. It is like an itch you can't scratch. I sent a message to my Oncologist and told her can I take her up on her offer to at least see an ENT while waiting for my mri? She agreed and the next day I saw an ENT. i was hoping it was just ear wax. No such luck. Anyway this lady was very kind. She prescribed a z pal and a medrol dospak. She thought she would try it. She looked in ears, throat and nose. When I left she said she hoped to get to the bottom of what was going on. I told her of my slight on and off headaches and all the mucous I could feel. She told me if I wasn't feeling better she wanted a CT scan on my sinuses. After a few days on the meds I felt slightly better in my ears. When I was done with meds everything was back. So I had the scan and basically she said it was pretty normal except for some right cheek mucous and inflammation. It's a very long story but what I will say is I had missed her call and asked her to call me the next morning. She did and I told her her email ( that night) seemed to write me off so to speak! She apologized and said it was not her intent. She had also wanted a hearing test. I asked her if I should still do the hearing test and she said yes. The part of the hearing test she was most interested in was when the Dr. would blow air into the ear somehow telling them about pressure? After talking I told her it was funny that after taking the pills/ and the steroids I felt slightly better and then back to feeling crazy because of my ears. She had said I wish you had mentioned you felt a slight improvement? She discussed just taking a short dose of prednisone. I started it yesterday. My right ear is feeling slight relief. I have the hearing test this Monday the 22nd. NOTE: I checked with my MO to ask her if I can try these meds etc from ENT and put off Mri for a week. The Ent said I should see improvement in week then do sinus CT if no better. My MO agreed. I couldn't get a new mri in a week but a week and a half.

Anyway, I am dealing with the plugged ears and slight headaches. My point is I thought all the mucous, ear problems slight headaches were do to sinuses etc. I am still worried about the mri. What I'm saying is if all the sinus stuff is being worked on what is left?? Worst scenario is all that's on my mind. I am trying so hard to think positive but I'm falling into a dark place.

If it's not sinus etc what's left??????

Hugs,

Thanks, Lexie

Hi Exbrnxgrl

The sinus ct scan didn't show much which was surprising to me. She said it was pretty much normal except those few things that I mentioned. Wouldn't a ct show what's in your nose etc. All I know is I can't live like this. It's so maddening.

Of course I'm still worried about the brain mri mostly now because if it wasn't my sinuses, sinus infection, etc what else could my headaches being caused by? If these headaches and plugged ears would just go away I would be so happy! I'm shaking just writing this.

You are so sweet to respond to me again.

Thank you,

Lexie

Hello everyone. This is sort of an update and also asking if anyone has ever experienced what I'm now going thru. My right ear is still clogged and painful and my left ear is slightly clogged. The ENT person I was seeing has said she's pretty much done all the tests and can't see a reason for what's happening. She reached out to my primary care doctor and pretty much asked for her help to maybe calm me down. I don't want to make this too long of a story but the next step was doing a video visit with some sort of behavioral / therapist? She sent me a questionaire on email which I answered. She then talked over the phone and said I hate it when docs have someone say for example shed a tear in their office and instead dealing with it in the moment the doc sends these people to me. I was surprised she owned up to that. I forgot to mention insisting on seeing my primary in her office and she pretty much accused me of this just being stress. She's been my doctor for awhile and I just couldn't believe she said that. This is really ruining my life. I can't go on living in this fog and shooting pain. The ENT mentioned maybe it could have something to do with TMJ?? Anyone out there have TMJ/TMD that affected their ears? Also in the midst of this now I've developed some sort of Acid reflux/gerd/lpr?? It would be much easier to cope with if SOMEONE could at least figure this out!! I keep saying this has to be coming from somewhere. I am truly at my wits end. I cry most nights and envy my husband for being able to sleep. I just go out on the couch 99 per cent of the time.

Thanks ladies for listening......Appreciate any input ahead of time.

On 4/28 I'm having an endoscopy. Worried about this too.

Hi Giddyupgirl,

Who did your daughter see that told her it might be TMJ? Did she go to a tmj specialist. I wasn't sure if you meant she also saw a chiropractor. What about yourself?? Did a doctor verify you are grinding? Can't you get help? All the research I've been doing says tmj can plug ears and that Using an orthotic would help. I just keep seeing so many different opinions. For me, I've tried Flonase, sudafed, antihistamines, neti pot and on and on and on. I shouldn't have to figure this out! I am so frustrated. After everything I've been thru with breast cancer and then heart failure this is now gonna take me down! I pray every night for relief. I just want my life back.

Thank you so much for your input. I'll wait for your answers to my couple questions.

You are so very sweet to share info about you and your daughter.

I wasn't sure if anyone would see this post. I've been dealing with this since I posted my fear of all these scans I was told to do.

I have to admit I'm never sure how to make sure people see a new post from me.

Healing Hugs

Good Morning GiddyupGirl,

I've never heard of a bite plate? I've heard of mouth guards and special orthotics made for the individual? HOW ARE YOUR EARS NOW? Anything you can share regarding tips from the Osteopath?

I have read about a chiropractor helping a bit but it turned out to be temporary for the person I was reading about. Can I ask about the time frame for your daughter. Was this recently?

I never thought to ask if your on the west coast? I hope my responses aren't getting to you at bad times.

Again, thank you so much for having a back and forth chat with me. You don't know just how much I appreciate it.

Hugs,

Lexie

PS: Do you know how I can make sure people see my latest post?

Thank you edj3

I asked her about Meniere's back in February. She said because I had no vertigo problems etc. she ruled that out. I also had to have a brain mri in February to rule out recurrence because of BC. Something HAS to be causing this. I need an answer.

I am so sorry you are having to deal with that disease.

Lexie