Referred for follow-up without any mammogram results

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skigirl4916
skigirl4916 Member Posts: 6

Hi. I had my regular screening 3D mammogram (I have dense breasts) yesterday, and today I received a call to schedule my follow-up diagnostic mammogram and breast ultrasound at the local breast cancer center. I haven't received any test results from yesterday's mammogram nor a call from my doctor, and I'm anxious (and angry) that no one has bothered to tell me what is going on.

I've never had a callback (this is probably my 10th or 11th annual mammogram), and the best I could get from the radiology scheduler who helped me set up the callback appointment is that my mammogram was inconclusive.

Is this normal to be referred before anyone tells you what is going on? Is my situation so dire that they felt it was urgent to schedule a follow-up before even giving me my test results? I would greatly appreciate any perspective or insight from those of you who've been there. Thanks!

Comments

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2021

    Yes - I believe the call back for diagnostic mammo & ULS without any formal results of the first one is normal. And yes, inconclusive is the usual reason. And inconclusive means just that - they couldn't make a determination. I was called back every time for over 30 years for a diagnostic & ULS and never saw results first. It's my opinion you should be glad in this virus time that they are scheduling you right away.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2021

    skigirl4916, about 1 in ten mammograms get a call back, so if you have had ten or eleven, yeah pretty normal. Most of the time the additional views and/or ultrasound resolves it and the say “see you next year." It can be something as dumb as your skin being folded under the plate. Even if you should need a biopsy, the bast majority are benign, because anything deemed to have over a 2% chance of being cancer is recommended for biopsy

  • skigirl4916
    skigirl4916 Member Posts: 6
    edited January 2021

    Thank you both for the reassuring comments, and yes, I feel fortunate to have been scheduled so quickly for follow-up. I have the diagnostic mammogram and ultrasound in a week, so I don't have long to wait.

    One follow-up question is that for the screening mammogram, I was shocked when the technician just sort of slapped me in there, when during previous mammograms the technicians have always been meticulous about body positioning. She didn't even tell me to hold my breath and not move as has always been the case before, so when the 3D started on the first (left) side, I had no warning.

    At the time I was thinking "oh my gosh - I'm still breathing and moving!"...and sure enough, it's the left side that the radiologist wants to explore further. I'd thought that the 3D mammograms avoided many problems related to bad images, but maybe not. I'm just going to hope for the next week that the issue is a bad image and nothing more.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited January 2021

    No wonder you have to go info additional views. I can't believe it. Sending you positive thoughts.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2021

    Make sure you let the people at your breast center or imaging center know about the bad positioning. I had the same issue with a Dexa scan in 2018 which showed my spine falling apart. When my new primary care doc said it was time for another one, I told her that the previous technician hadn't given me time to get in position. Sure enough, this one came back with much better results. It freaked out the nurse who called me because she said there'd never been such major improvement in just two years - so I had to give her the whole story. Never let anyone rush you through a test, imaging, or treatment.

  • skigirl4916
    skigirl4916 Member Posts: 6
    edited January 2021

    Thanks for the thoughts. This morning I woke up to the mammogram report in my email, and it indicates a focal asymmetry in the posterior inner inferior left breast. The radiologist had no prior studies to compare with, since I went to a different hospital system this year for my screening, but none of my prior mammogram results noted asymmetry.

    Still hoping that this turns out to be nothing of concern.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2021

    Often focal asymmetries, especially if only seen on a single view, “disappear” when more images are taken. They can also be caused by benign processes

  • skigirl4916
    skigirl4916 Member Posts: 6
    edited January 2021

    Quick update. Yesterday I asked to have my past screening mammogram results sent from another hospital system to the provider that did this week's mammogram. To my surprise, the new provider already has the results and the radiologist just posted updated findings results that now have the addendum:

    "Prior outside studies dated 7/27/2016 through 12/4/2019 are available for comparison. Focal asymmetry in the left breast not definitely visualized on previous examination."

    Does "not definitely visualized" mean "possibly visualized" in previous examination, as in...this asymmetry may have been there all along? I suppose it means what I've known since getting the original results - that the findings are incomplete and more images are needed.

    I know it's crazy to try to read too much into any this, and my follow-up diagnostic mammogram and ultrasound are next Tuesday, so I don't have long to wait. Just looking for calming words in the hopes of sleeping better tonight.

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2021

    skigirl, the most calming words I can give you are to tell you that something like 95% of call-backs do not result in a diagnosis of cancer. And as others have said, focal asymmetry is one of the most common reasons for call-backs, with the concern often resolved just with the diagnostic mammogram and ultrasound.

    So take it one step at a time. With luck, you will only have to go through this one step!

  • skigirl4916
    skigirl4916 Member Posts: 6
    edited January 2021

    Update: I had the diagnostic mammogram today, and the conclusion was that the "focal asymmetry" was actually a superimposition of tissue on the screening mammogram. I was surprised to learn that this was an imaging error, because the asymmetry was seen in two different images on a 3D screening mammogram, but I'll take it. I'm hugely relieved.

    Thanks to all of you who offered reassuring words and perspective through this forum. I certainly had some restless sleep while waiting for the follow-up imaging, but I felt far better than I would have otherwise, thanks to your comments. You are angels!

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2021

    You are welcome! Glad you got good news

  • HeyJude808
    HeyJude808 Member Posts: 3
    edited March 2021

    Skigirl, I'm in a similar situation as you were and reading your post and update helped ease my anxiety a little so thank you. Happy you're fine. I am still in the process of scheduling my diagnostic mammogram and ultrasound of my left breast after my mammogram yesterday showed asymmetry of the left breast in two different locations and views. I only learned about the results of the mammogram thanks to MyChart and have yet to hear from my primary care physician, but I did contact the breast center where I'm to schedule the ultrasound.

    I'm really hoping and praying that the asymmetry from the mammogram (3D) was from overlapping breast tissue or bad imaging. The technician was nice but very QUICK -- I was in and out of there in 10-15 minutes and wondered if she wasn't positioning me with as much care as in my previous mammograms where the techs were more exact and careful.

    My question to you is - during or after your ultrasound does the technician or radiologist let you know their findings? I am hoping they let me know right then and there following the ultrasound.



  • skigirl4916
    skigirl4916 Member Posts: 6
    edited March 2021

    Hi and so sorry you're going through this anxious period. Your situation sounds exactly like mine - I had a technician that seemed incredibly fast (and sloppy), I learned of the results through MyChart without an opportunity to talk to a doctor about what they meant, and I was referred for a diagnostic mammogram and ultrasound.

    What happened in my case is that when I had the diagnostic ultrasound, the technician took some new and different views of the area where the asymmetry had been observed. In a diagnostic ultrasound, my understanding is that a radiologist is on site to look at the images immediately and request additional views, etc. as needed. So I believe you will get some sort of finding right there, but there may be others more experienced on this forum that can weigh in.

    After the diagnostic images were taken, the technician came back to tell me that the radiologist had declared me good to go. The "asymmetry" in my case was overlapping tissue, not an actual asymmetry. This also meant that I did not need to have the ultrasound; it sounds like that was booked in case the radiologist felt it was needed based on the new mammogram images.

    My experience was anxiety-provoking but had a happy ending, and I'll know next year to schedule my mammogram at the hospital I used to visit, where they always did a great job. We moved recently, so this hospital is now way across town (which is why I went to a new mammogram center in January), but I'm happy to drive to be seen at a place I trust. I hope your asymmetry turns out to be nothing, and in the meantime I wish you some peaceful and calm moments!

  • HeyJude808
    HeyJude808 Member Posts: 3
    edited March 2021

    Thank you for your quick reply skigirl4916! I appreciate your insight on what you went through as it gives me some idea of what to expect. I'll update you when I've had my diagnostic mammogram and/or ultrasound. Take good care!

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2021

    Hi HeyJude808, In most cases, but indeed hospital dependent, you will get the results before you leave. Please keep us posted. We all understand the anxiety that typically accompanies this process.

    The Mods

  • LivinLife
    LivinLife Member Posts: 1,332
    edited March 2021

    Just want to welcome you HeyJude!!! Yes, please let us know how things go....

  • HeyJude808
    HeyJude808 Member Posts: 3
    edited March 2021

    Thank you for the welcome and I definitely will update after my diagnostic mammogram. I appreciate all of you here!

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