How long did you waited for surgery?

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Anonymous
Anonymous Member Posts: 1,376
edited January 2021 in Just Diagnosed
How long did you waited for surgery?

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  • Shani15
    Shani15 Member Posts: 11
    edited December 2020

    Hi, I am 30 and I was diagnosed with DCIS at the end of October, after that they did some labs and found other masses on the breast and a second biopsy found more DCIS but not invasive cancer. I got my mastectomy scheduled for January, two 1/2 months after diagnosis, is that a normal time to wait for surgery? I always thought cancer was supposed to be treated as fast as possible but obvoiusly I know that doctors have other patients too. I just wanted to know how much is an appropriate time to wait for surgery

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited December 2020

    Hi Shani, so sorry you are here. I think you're OK with the wait. I realize it's hard though. Most (but not all) breast cancers are slow growing. DCIS is an early stage which is as good as it gets if you're going to get this stupid disease. Some need chemo before surgery, which is months and months. I don't knw of any absolute time line from diagnosis to OR. Have some fun or distract yourself with something through the holidays. Good luck.

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2020

    Actually, while a breast cancer diagnosis feels like an emergency to us, usually it is not a medical emergency. Breast cancer tends to be slow growing - I've read that most cancers are in the breast 3-5 years before they become large enough to be detected. Some even longer than that. So in that context, 2 1/2 months is not a long time.

    From what I've seen on this site, generally the average time from diagnosis for invasive cancer is 5-6 weeks. There are exceptions of course, if someone has a particularly large or aggressive cancer. DCIS is non-invasive, so presents less risk than invasive cancer. In my case, my DCIS was found during an excisional (surgical) biopsy. I also had a microinvasion of IDC. That first surgery left me with involved margins all around, and a subsequent MRI showed that there was a lot more DCIS still in my breast. My DCIS was grade 3 with comedonecrosis. Between getting a second opinion, getting the MRI, having another biopsy (other breast; benign result), changing surgeons and coordinating surgery schedules between the breast surgeon and plastic surgeon, I went from a diagnosis on September 15th to MX surgery on November 30th. In the end, a lot more high grade DCIS was found, but no more invasive cancer and my nodes were clear. So the wait - which didn't concern my surgeon at all - had no impact on my diagnosis.

    If you had a larger area of invasive cancer, I would think that 2 1/2 months would be pushing it, but with DCIS I don't think most doctors would be concerned. How large is your area of DCIS estimated to be, and what is the grade and hormone status?



  • moth
    moth Member Posts: 4,800
    edited December 2020

    DCIS is stage 0. Some doctors consider it a pre-cancerous condition, as it has not invaded surrounding tissue, so there is some breathing room here.

    I'm not aware of studies evaluating time to surgery (TTS) for DCIS. For invasive cancers, there is a benefit to having surgery earlier. One issue that does sometimes occur is that people go into surgery with a diagnosis of DCIS but sometimes final pathology finds some invasive cancer. Generally speaking for IDC, it seems surgery within 60 days is recommended.

    I personally would not want to wait that long. I had my surgery 8 days after receiving biopsy pathology reports.

    How do you feel about it? Is there a reason for the delay? Perhaps there are other surgeons with shorter waitlists or maybe you can get on a cancellation list?

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited December 2020

    I agree that surgery for DCIS is not an emergency. Although I had IDC as well as DCIS I waited about 2 months for surgery because of the need to coordinate schedules between surgeon and plastic surgeon. Truly, I would not be concerned unless it is causing you great stress but even then, a better understanding of DCIS will help ease your stress. I know the desire to get it out “now” can be great but even with low grade IDC such as I had, it’s not an emergency

  • Shani15
    Shani15 Member Posts: 11
    edited December 2020

    The cancer is negative to hormones and there are various masses, it takes up almost my entire breast, between all the masses is around 7-8 cm. I already changed doctors once because I went with a second opinion after my initial diagnosis and the reason they gave me for the surgery being so far away is because they have to coordinate a day for both breast surgeon and plastic surgeon to be available, and also holidays are coming up so they take some days off. I guess I’ll try to distract myself because there is not much I can do, I don’t think I may be able to get a surgeon available before the holidays. Thanks everyone for the responses, I am a little less anxious now

  • LivinLife
    LivinLife Member Posts: 1,332
    edited December 2020

    I agree with what the others have said. I had Grade 3 DCIS with comedo necrosis initially thought to be 5 cm. The first surgeon I saw said I had some time to think about what I wanted to do (surgery type decision) though he did not want me waiting too long b/c it was high grade, large (since then we realized much of it was benign and other precancerous stuff), comedo necrosis they expected to find some invasion. that was true for the second surgeon I saw as well. I was diagnosed July 21 with surgery Aug. 31. Had I gone another month it would not have made a difference medically, other than maybe emotionally...

  • msphil
    msphil Member Posts: 1,536
    edited January 2021

    hello sweetie found my lump in shower in September got biopsy in October started chemo wks after biopsy. Three months chemo before and after Lmastectomy got married was planning at diagnosis. Then 7 wks rads and 5 yrs of tamoxifen.Praise Gid now 26 yr Survivor. Hope and lots of Positive thinking. msphil

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