What would you do?

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Onlytimewilltell
Onlytimewilltell Member Posts: 4
edited January 2021 in Not Diagnosed But Worried

I don't want to make a mountain out of a mile hole. My mom was first diagnosed with breast cancer at 24 and then again at 29, however she does not have the genetic markers. Recently, I found a large hard lump on my right breast. I went to my OB who sent me for an ultrasound and the radiologist is calling it a complex cyst with a birad of 3 and ordered me to have a rescan in 3 months. My mom wants me to get a second opinion ASAP but I don't want to make such a big deal out of something that could be nothing. Any opinions on what you would do

Comments

  • kathabus
    kathabus Member Posts: 205
    edited January 2021

    Hi. I think with your moms history it’s reasonable to be on higher alert. Without knowing the details, it’s probably not unreasonable to get rechecked in 3 months. BUT if you would like a biopsy just to make sure, I think you should ask about that option. I have been lucky with all the doctors I seen throughout my treatment. We always talked about different options, different ways to approach things. And I will say that sometimes the wait and see approach is recommended, but if you ask, they can pursue the more definitive approach if it makes sense.

    I found a distant spot that was a concern and the wait and see approach was recommended. I told the radiologist I was having a hard time with that. We did a bone biopsy, it was benign and I was able to lay my worry to rest. No harm would have been done with waiting (obviously knowing that afterward, but I was having a hard time with that approach. And they understood!

    Sorry I don’t have any personal history with cysts...but more help will come along. Good luck with your situation!

  • Mountainlover
    Mountainlover Member Posts: 89
    edited January 2021

    Hello, I am sorry you're going through this.

    You ask what we would do - I would certainly go for a second opinion. The wait and see approach would not put my mind at rest.

    When I was diagnosed, the BS who did my biopsy was confident the mass they had seen was benign. It wasn't. They saw 1 mass with the initial mammo+US, it turned out there were 4.

    I sure hope this will turn out benign for you (and statistics are on your side!), but medicine is not an exact science and I don't think you have much to lose going for a second opinion.

    All the best!

  • LivinLife
    LivinLife Member Posts: 1,332
    edited January 2021

    Feedback to you thus far talks about reasonableness of seeking a second opinion or even asking about a biopsy and waiting as well if you are comfortable enough with that. I agree b/c of history it's reasonable to ask for additional evaluation sooner. It also seems reasonable to wait three months given the doc's expertise... Additional factors that may help you decide which is best for you is how you are sleeping, how preoccupied are you with worries/concerns about this or not as much, how are you doing taking care of your daily responsibilities, your belief you can cope and do all right enough with the waiting the next few months, etc.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2021

    Cysts are pretty easily identifiable with ultrasound. I’d be comfortable with waiting three months on a cyst-the percentage of possible associated cancer assigned to this is less than 3%, so a short term follow-up is entirely reasonable. Even if by some fluke it was cancer, three months would likely make no difference whatsoever, since most cancers are slow growing. If I was not, I would just ask that they try to do an aspiration/biopsy.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2021

    Onlytimewilltell, sorry you are here and worried, but welcome! We know sometimes it is not easy, but we hope our members and their kind responses help you make the best decision. If you finally go for a second opinion, here's more information on how to do that, from the main Breastcancer.org site: Getting a Second Opinion.

    Best wishes, whatever you decide!

    The Mods

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2021

    Mods, the link you included is very specific to getting a second opinion once already diagnosed. There is no discussion about second opinions for what appears to be benign imaging, which is the situation here.

    Onlytimewilltell, do you have the radiology report? The description of the complex cyst might be very helpful in deciding whether you should seek out a second opinion or wait the 3 months. Simple cysts are benign and harmless - they are round with even borders and fully fluid-fulled, Pretty much any cyst that doesn't match that description gets a BI-RADs 3 and a short-term follow-up. So the question really is how different the cyst looks. If there is just a bit of floating debris in what is otherwise a simple cyst (I've had BI-RADs3 follow-ups for that), that's not worrisome. But if the borders are irregular and there are solid components, that might warrant a second opinion to see if a biopsy should be done now.



  • Onlytimewilltell
    Onlytimewilltell Member Posts: 4
    edited January 2021

    Thank you so much!

  • Onlytimewilltell
    Onlytimewilltell Member Posts: 4
    edited January 2021

    Beesie, I do actually. I wasn't sure if it was against guidelines to share it. But it states, “ a 2.4x2.2x2.8 moderately complex cyst with internal septation corresponding to the area palpable concern. Probably benign."

    Thank you everyone for your responses. My mom is pretty adamant that we follow up somewhere else just to be positive and after your response I realize a second opinion can't hurt.

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2021

    Posting pictures is not allowed. But posting information from radiology reports and pathology reports, or posting screen shots of these reports (blacking out any information that could identify the patient) is fine and often can be helpful.

    Internal septation is an interesting one. From what I've read, if the cyst otherwise has the appearance of a simple cyst and there is just a single very narrow internal septation, then it's extremely likely to be benign. But a wide internal septation within a cyst, especially if associated with other concerning features (irregular shape, solid component, etc.) does present a greater risk. Those are usually rated BI-RADs4 and sent for biopsy immediately. Since your report says "probably benign" and doesn't describe any other irregularities, I would guess that your cyst fits the first description, not the second.

    Because of your family history, if you want to be extra cautious, one option would be to see if you can get another radiologist or a breast specialist to look at the imaging, to confirm that this is basically a simple cyst with a narrow septation and doesn't have any other concerning features. Perhaps your OB could help with that - getting a copy of your imaging sent to a different radiologist for a quick assessment.

  • annadou
    annadou Member Posts: 221
    edited January 2021

    Hi Beesie

    Hope all goes well with you but with your Mum’s history I would be in favour of a second opinion

    Keep well

    Ann

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