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  • BlueGirlRedState
    BlueGirlRedState Member Posts: 1,031
    edited August 2020

    Miles - I am sorry you are going through this and not getting diagnosis that fits. Cancer comes with a lot of stress, and stress does strange things and is a health problem all by itself. I did think about throwing in the towel when the 3rd BC was diagnosed in 2019, and at times have thought that the treatment/drugs is worse. I feel their effects, but the cancer is silent except for the imagery, lumps, and biopsy. Until Covid hit i was going to a support group which had just started. I found it helpful, and hope that it resumes. I find this site helpful as well. If what you are feeling is from stress, yoga, meditation might help. I find continuing to do what I like doing, hiking, walking my dog, exercising, helps a lot.

  • BlueGirlRedState
    BlueGirlRedState Member Posts: 1,031
    edited August 2020

    I forgot to mention chocolate, it helps too

  • Miles
    Miles Member Posts: 62
    edited August 2020

    Thank you all for taking the time to write. I really appreciate all of your words and wisdom.

    This is no easy path. I have always loved the poem. For those of you who do not know it:

    Stopping by Woods on Snowy Evening; Robert Frost

    Whose woods these are I think I know.

    His house is in the village though;

    He will not see me stopping here

    To watch his woods fill up with snow.

    My little horse must think it queer

    To stop without a farmhouse near

    Between the woods and frozen lake

    The darkest evening of the year.

    He gives his harness bells a shake

    To ask if there is some mistake.

    The only other sound's the sweep

    Of easy wind and downy flake.

    The woods are lovely, dark and deep,

    But I have promises to keep,

    And miles to go before I sleep,

    And miles to go before I sleep.

    I've thought a lot about changing my tag line because through this journey I have learned that there are promises I can't keep and I may "sleep" before I can go miles...

    If no one has told you: You are important. You have made a positive contribution to life and to the Earth. You matter.

  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited August 2020

    Thank you, Miles. When I memorized that poem, living in Maine, I could easily picture that snowy scene in "snowy woods". I loved it!

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited August 2020

    I can read that poem as my plea to go many more miles and fulfill more promises. My appeal and affirmation of life. But I suppose most people leave things unfinished, whenever they leave... There is a childrenโ€™s book with that poem and lovely drawings by Susan Jeffers that show none other than Santa Claus in that snowy wood. He has promises to keep.

  • sarakhan
    sarakhan Member Posts: 3
    edited October 2020

    hy i hope that u all are doing well my mother is diagnosed with metastatic disease in bones lungs and liver after matestocmy 7 years ago now she is taking armidex endoxan and xeloda plz advice me if anyone know any best treatment

    her ER PR is weakly positive

    HER 2 neu :(2 equivocal) according to the old biopsy results that was done 7 years ago

    and plz also advice should we again go through liver biopsy


  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited October 2020

    Yes, Sara, the liver biopsy is the right step to determine the best treatment. ER, PR and/or Her 2 could have changed. If they can get enough tissue, they could also get genomic testing of the tumor (Foundation One, Caris, etc.); something to ask about. I have had two liver biopsies, and though it was a strange experience, I did not suffer pain or fear during the biopsy. They have good drugs to help you through it.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2020

    Hi everyone

    I haven't been around for awhile. I have had right hip and around the back up to liver pain. All right side. Finally went to GP. Got x ray and ultra sound as well to check for bursitis.

    Just spoke to nurse and she said I have osteo arthritis and not bursitis. So this is from xray and u/sound.

    Hmmmmm. I wonder....anyone here know about if bone mets and osteo look similar on xray? Anyone else wondered if they might have bone mets or can I dismiss this out of hand?

    Luckily I see my breast doc on Monday so should I push for mri? Because my liver area hurts too...

    I know we all get anxious around check up time. Don't see my GP til next wednesday either to get more detail.

    I'll be happy to 'just' have osteo at this point.

    Any similar experience advice or knowledge entirely welcome!

    Thanks sister friends.

    Astrid.๐ŸŒพ

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2020

    what a lovely post!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2020

    Hi Miles

    I wanted to say I loved your post, but when I pushed 'reply' button, it doesn't relate to any post. I guess I'd have to copy and paste.

    Anyway

    I hope ypu are feeling a a whole lot better and get to the bottom of brain issues.

    Astrid.๐ŸŒพ

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited December 2020

    Astrid, I think anyone with upper abdominal and/or right flank pain, and a history of breast cancer, should get an ultrasound of the area, possibly followed by an MRI, PET or CT scan. There are other possible causes besides bc mets. Whatever the cause, you need to know so you can find out how to stop having pain there. Your oncologist needs to order some imaging for you.

    I'm sorry, maybe someone else will be able to answer your bone questions.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2020

    thanks Shetland

    I appreciate that. Just a tad anxious.

    ๐Ÿ™๐Ÿ™‚๐ŸŒพ

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2020

    I know its anxiety producing, but I would push for the MRI. I thought my back pain was osteoarthritis due to history, but it wasn't. An MRI would be more specific, and especially if you are having liver -area pain as well. If its mets you want to get that under control as soon as possible.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2020

    thankyou Sondra.I appreciate that. Could bone mets look like osteo arthritis on an x ray or do tjey look really different? Just trying to get some peace of mind on this I guess.

    I will definitely ask for an mri or pet...not sure what my chances of that are but will make clear my symptoms and how I'd like to be sure of what is going on.

    Thanks again for replies shetland and sondra.๐ŸŒบ๐ŸŒพ


    ..

  • Ana12
    Ana12 Member Posts: 2
    edited December 2020

    After eight years of disease and carboplatine as the last treatment, do you think there's other chance treatments? Urgent. Please.

  • moth
    moth Member Posts: 4,800
    edited December 2020

    Ana, your other post is in metaplastic forum. Is this what you have?

    It will help us help you if fill out the full diagnosis , hormone markers, grade, and all the treatments so far. We can't tell what might be avail without knowing what has already been tried

  • LillyIsHere
    LillyIsHere Member Posts: 830
    edited December 2020

    I have a question regarding liver mets. What are the first symptoms that cancer has gone to the liver and surrounding area and if blood tests will show any abnormalities.

    Thank you so much!

  • MountainMia
    MountainMia Member Posts: 1,307
    edited December 2020
  • BevJen
    BevJen Member Posts: 2,523
    edited December 2020

    Lilly,

    I just looked at that link. I don't think it's the clearest. I will tell you that I had NO symptoms of any issues with my liver at all -- all of my liver function tests were absolutely normal. My tumor markers had started going up, and my MO had me do an abdominal CT. There was a little bit of a shadow in the back part of my liver (no definitive metastasis). As a followup, we did an MRI with contrast, and that's when they showed up.

    If you peruse the liver mets thread, I don't know if anyone who posts on there said that they had prior symptoms, other than a few people whose liver function tests started going a bit wonky.

    Of course, this is anecdotal, but it's important that you understand that liver mets not show up except on certain imaging.

  • moth
    moth Member Posts: 4,800
    edited December 2020

    my liver hurt on palpation by Dr.

    Also, I have an above counter bowl sink and I'm near sighted and when I leaned against it to look in the mirror it pressed right under my ribs and was tender there.

  • Whatjusthappened
    Whatjusthappened Member Posts: 283
    edited December 2020

    I wasn't sure where to post this, so I figured this was as good a place as any. On my left side flank, right under my ribcage, I have about a baseball-size area of skin that keeps turning pink. It doesn't hurt or itch, no welts or sores, it's just pink. It seems to be most pronounced when I wake up or after a shower. Sometimes it fades and comes back again. I've noticed it for at least a few months now, and I have no idea what it could be. If I press on that area, my rib is a bit tender, but then again it's tender if I press on the opposite side too so I don't know if that's got anything to do with it. I don't want to be paranoid every time something new pops up, and I've already had a lot of imaging investigating various things (which has led to even more tests). I know if I mention it to my MO it will probably result in more imaging, so I don't really want to do that.

    My thinking is that it will either get better or it will get worse, and if it gets worse then I can mention it. Is that a safe assumption on my part, or do we always have to be hyper-vigilant? I don't want to be the one who cries wolf too often.

  • LillyIsHere
    LillyIsHere Member Posts: 830
    edited December 2020

    Thank you Mia, Bev and Moth. My skin and eyes have turned a pale/yellowish color but the blood tests are normal. I feel new pain on the right side under the rib or right kidney location that comes and goes. I also have a feeling that my nerves have become very sensitive since I started letrozole and it may be that I feel pains and aches I wouldn't normally feel. I don't know what to think anymore. I have my annual physical in January and I will mention it to my new PCP. My MO only tests for SE of letrozole on kidneys and liver and the breast cancer center I go don't check on tumor markers. MO doesn't want to order scans if he thinks are not necessary.

    Moth what a story. I even went to push my right side against the countertop but I am tall and had to lower myself to position right. My kids asked me Mom what are you doing? I told them I'm scratching like a cat! I don't want them to worry.

    Thank you again, Ladies. Hugs!

  • BevJen
    BevJen Member Posts: 2,523
    edited December 2020

    Lilly,

    If your skin and eyes are looking yellowish, I would at least call your MO about it now rather than waiting for your annual physical in January. It's worth the call even if it means that you have to go in for another appointment (I know, it's a pain). If you are not comfortable with calling your MO, I'd try and move up your appointment with your PCP so you can have someone look at you and also re-do your blood tests.

  • moth
    moth Member Posts: 4,800
    edited December 2020

    Lilly, I agree about going back sooner rather than later. Test liver enzymes for sure

    I'd probably push foe ultrasound at leaat. Remember, key is to say symptoms present for more than 2 weeks, same or worsening. Emphasize the pain.

  • LillyIsHere
    LillyIsHere Member Posts: 830
    edited December 2020

    Thank you, Bev and Moth. I had my liver and kidney tests done in May and November because of my yellowish skin and eyes. Tests came back normal. Sometimes I feel these large cancer centers are like factories and I feel I want priority to go to cancer patients who are in more critical need than me. MO also said that even if I wait for 6 months, the treatment will be the same. I read it as don't bother us between 6 months scheduled appointments.

    A question, if you press where the liver is and it hurts, should it go away when you stop pressing?

    Hugs

  • BevJen
    BevJen Member Posts: 2,523
    edited December 2020

    Lilly,

    My personal opinion about any doctors/cancer centers is that if you need help at a particular time, you need help. None of us really knows (unless we are medically trained) if we are in need -- we can only report what's going on with ourselves.

    I don't have pain in my liver, so unfortunately, I can't answer your question.

  • LillyIsHere
    LillyIsHere Member Posts: 830
    edited December 2020

    Thank you so much Bev. Honestly, I feel more comfortable with PS who is young and I was his first patient than my MO who is well known and I feel like I'm one of his zillion patients. He doesn't even check, I can grow a third breast and he won't know :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2020

    Good luck Lillyishere!

    Had appt with breast surgical oncologist.

    Bone scan in a month. He is confident something would have showed besides ostwo arthritis on x ray... but happy to look further and at the least if it shows more arthritis in other areas it is helpful for a tx plan. He thougt the right side pain might be related off the spine or rib and thus no ct or mri . I am not convinced of course!๐Ÿ˜€

    Gonna ask my GP (Internist) for a ct for my peace of mind.๐Ÿ˜‰

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2020

    hi all, just updating

    I got a referral from my GP for a ct scan whuch I had (don't remember them being so quick, but my last was years ago). Jad contrast dye and chest/abdo so I feel confident that if there is anything besides osteo arthritis, it is going to show.

    Hoping to save myself unecessary anxiety over christmas period.

    Astrid.๐ŸŽ„


  • BlueGirlRedState
    BlueGirlRedState Member Posts: 1,031
    edited December 2020

    Astrid - wishing you well on the CT.

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