Calling all TNs

We arrived to our Florida Home on Friday. Very hot and humid. I have gotten so much exercise. YARD work that was neglected last year because I couldn't come down due to chemo and such. My yard is looking good

Hello

Just popping in to say hello to all. I have reached my 5 year mark. I don't know if I want to dance or cry. It has changed my life so much.

Congratulations, Valstim. What a wonderful milestone. Maybe you can just cry while you dance. This is such a crazy year, no one would think anything of it.

Stay safe.

Trish

Valstim!! DANCE!!! & Cry too. YAY!!

Thanks all. It is bittersweet. I'm thankful but still in a sort of shock. My dx was so terrible in the beginning and the longer I lived the better my prognosis got.

Hi everyone, I haven't posted in a while. I was just catching up and seeing how everyone is doing. I love hearing all the positive messages. I pray everyone is well. I was diagnosed 3 years ago in September. My double mastectomy was January 29th, so it's coming up on 3 years post surgery. I have found myself becoming more and more anxious as this date approaches. I go every 3-4 months for "thorough" physical exams but don't have scans unless there is a concern. No bloodwork either unless a yearly physical and that is next week. I swear I have PTSD. A good friend of mine has just discovered a recurrence and it's really been difficult. It just reminds me how quickly everything can change. My husband has noticed how I've "regressed" in my thinking and seem to be obsessing once again. I wish I didn't fall into this pattern. This is going to sound ridiculous but I think I'm creating a phantom shoulder pain and obsessing about it and googling mets to the shoulder, when in fact, it's probably from my peloton and the way I hold myself up when I'm riding. Yet..I'm convincing myself cancer is back in my shoulder. Ugh..thanks for listening. I just needed a place to share my thoughts...Maybe time for some meditation and deep breathing. Thank you for listening!

Dear A4ggy,

I can absolutely relate to your last post. I was diagnosed in August of 2017, started treatment in September 2017 and at that time I was told that if it doesn’t come back in 2 years of diagnosis then your chance of it coming back is very small. I had surgery in January of 2019 and more chemo after that because my surgeon wanted me to see a different oncologist who is doing a lot of research in TNBC. My nurse practitioner is the one that reminded me that I had passed the 2 year anniversary and was so happy! It took me by surprise and she said no it’s a big deal you made it to 2 year anniversary- my oncologist was pretty matter of fact and said it’s better to get past 3 years - geez I thought well ok. Needless to say even though I’m past the 3 years and you are too I still have such anxiety producing worries. My shoulder hurt as well, I went to physical therapy because they diagnosed me with a frozen shoulder, but I drove my husband crazy because I believed it was cancer. Physical therapy wasn’t helping all that much. So I decided to stop going and just kept doing my exercises and all of sudden my shoulder quit hurting. Now I’m having back pain, both upper and lower and I’m so worried that it’s in my back now. It is exactly like having PTSD. I know how you feel! I thought this would be getting better but it gets triggered by many things. I’m sorry you are feeling this way too. I really hate it when people ask me if I’m cancer free? I want to say I sure would like to be both mentally and physically.

A4ggy I think your feelings of worry about every ache and pain are absolutely normal! We walk a fine line between being aware of our bodies and being paranoid about recurrence. We have all been through a war and we do have a sort of PTSD. Yes give yourself a mental break with meditation and breathing exercises or whatever works for you. I know for me exercise is my vice, I just put my earbuds in and escape through music. Don't let the worries of tomorrow steal your joy today.Wishing you all the best.

Does anyone have any experience with this antibody drug SYD985? I just got put in a clinical trial: and they want me to do SYD985 instead of 12 weeks of taxol, but its very hard to find any evidence that this has worked for people. Would love any guidance or anecdotal experience! Scary to think about not doing traditional chemotherapy...

Kayak2, thank you so much for your note! I ended up getting my first infusion of SYD985. But honestly, the thought of not getting Taxol at all, and getting SYD985 as my first line treatment, is really scaring me, so i may end up dropping out of the trial and just starting taxol instead.

Thanks again for your note!

I find that exercise is my best friend to rid myself of thoughts of reoccurance of cancer. I feel better after working out and less stress. So far NED. doing well. Next follow up appt December 18th.

Today marks 5 years for me! Had to come and share with people who understand.

Wow! I got some tears in my eyes and we’ve never met. Thanks so much for coming back on and sharing. And I hope you have cake. There should always be cake to celebrate big life moments. And this is a big one.

⭐️⚡️⭐️💫✨🌟⚡️Yayy happy happy happy good for you!!!!

LoveMyVisla we are all cheering!!