Evista

Hi Lakegirl - We want to send you a warm welcome to the BCO Community.

Until you hear from others here as well, we wanted to recommend you the following articles from our main site and other related thread from our boards where you may want to chime in:

• Evista
• Atypical Ductal Hyperplasia
• Topic: Anyone on vista?
• Topic: ADH Club

We hope this helps!

Best wishes,

From the Mods

Hi Lakegirl, I have been on Evista for about 9 months and have done just fine. I was previously on Tamoxifen, then my Doctor switched me to Exemestane after menopause which caused all sorts of side effects. I have been pleasantly surprised with Evista, and it's not hard on your bones like aromatase inhibitors are.

I have been on Raloxifene ( generic equivalent to Evista) for 8.5 months. I was diagnosed with osteoporosis after dexa scan.In the last couple months, I have had various pains in my feet on tops, one ankle/foot swollen (but improved with rest/ice/ibuprofen). Now I have tremendous pain in my hips and back of legs. I can barely walk. So starting today I’m taking a break from the medicine to see if that’s the cause.

I have tried heat, foam rolling, stretches, rest, anti-inflammatory spices, coconut water, tartcherry juice and extra water, chamomile tea with no relief. I’m waiting to receive an order of Magnesium glycinate to start taking that.

Has anyone dealt with debilitating leg pain with success? Is there a natural remedy? Is it temporary and I just need to ride it out?

Here’s an update on quitting Raloxifene: it has been a little more than a month since I quit. Initially, I felt improvement. With sporadic Advil maybe a couple times a week, I felt okay during the day and stiffness would set in late afternoon and evening. I tried a lot of things like increasing water intake, coconut water, tart cherry juice, cut back on processed foods, chamomile tea. I also tried acupuncture and deep tissue massage which hepled some. I felt much better after two acupuncture treatments plus a few days recovery from that. But I have not recovered from the 3rd and 4th treatments. I may cancel this week’s appointment. Saturday, I tried running in the neighborhood, but it was too much and felt a setback in my recovery. So I continue to walk for exercise, ride my bike when the weather allows, stretching and light weights, but I wish I could do more.

I was on Raloxifene for 8.5 months and the drug has a 27-32 hour half life so at this point, I should be back to how I felt before the worst pain started, but I’m not. For it to be completely cleared out, I calculate that day to be mid November, 2021.

I have not read much on this board about Raloxifene side effects (and some people have zero problems), but in case someone else has a similar experience to mine, just thought I would update.