All about Xeloda

Thanks denny.

I think that so far my cancer center has had only 2 cancer patients with Covid and they were really sick. But they have recovered. But now a very good friend of mine with multiple myeloma was exposed and has just been tested. I am very worried about her.

Hi Grant I started taxol in mid-september and I'm finding it tolerable, although I did have to have a 10% dose reduction after the first two weeks because of side effects. I have lost my hair except for a few sprigs here and there that make me look like a funky baby bird.

The neuropathy in my hands and feet that I developed while on xeloda has worsened, but I am icing and doing finger and toe exercises which will hopefully help. I bought some slippers for icing on Amazon and some gloves although I haven't been is diligent about using the gloves during chemo since I'm using my hands to read or scroll on my phone or eat!

I have read that B12 also helps.

There is a taxol for stage 4 group on here but it is not very active.

Let's cross our fingers and hope the taxol is not only easy on your wife but effective. I have my first scans in December and we shall see what we shall see!

Katty

Pearltears, isn't thrush yeast? You could have a yeast infection in your urethral area. I have had 2 episodes with similar description and was given that oral yeast pill (two doses)..just can't remember the name of it..starts with a "D".

SandiBeach and Denny123, yes thrush is a yeast/fungal infection, but it's primarily in my mouth. The discharge is not the usual vaginal type (it's urethral). I'm using a Magic Mouthwash specifically for thrush:

diphenhydramine hydrochloride/dexamethasone/nystatin magic mouthwashAn oral suspension containing diphenydramine hydrochloride, dexamethasone and nystatin, with anithistaminic, antiinflammatory, and antifungal activities. Diphenhydramine hydrochloride/dexamethasone/nystatin magic mouthwash inhibits the cytokine-mediated inflammation and yeast colonization of the oral mucosa associated with chemotherapy and radiation therapy.
I just want the mouth sores to go away. I guess I'm an outlier on this SE.

Hey Sandi, did you have the bad mouth sores? If so, how did you resolve?

I am hoping somebody can help with this question. I thought someone had posted that Xeloda should be taken 30 minutes after eating. My instructions say within 30 minutes, does it matter? I also could have imagined the whole thing

Thanks for any info!

Claire

Grant, please keep us posted!! Sending hugs.

Marley, there's a study that shows that's Xeloda actually works better if you take it 30 minutes after a meal. Others can chimed in with more details and perhaps provide a link to the article.

Grant-please feel free to stop back! I haven't take Kadcyla for 3 years, but I still pop back in on the thread once in awhile to give advice or tell about my experience.

How sweet of you to shave your head too!

Here to say goodbye, only four months on xeloda and although the radiologist said it it is working excellently on some lesions others are progressing [ l have never heard a radiologist use 'excellent' before]. Although i dropped dosage levels I was still gathering more SE's, sad it didn't last longer but...

I will be joining the taxol thread , after one zap of radiation for pain relief and a port being fitted.

I wish all the remaining xeloda takers a long, healthy run on this drug.

Enjoy black friday!

Denny,

Like other have said, maybe Taxol will be the treatment that will be effective! I'll be praying that this is the one and you'll have minimum side effects. Liz starts her Taxol next week.

Grant

Denny: Wishing you the best with your next treatment. Let us know how it's going.

Thank you for your kind wishes, I will be popping back occasionally to see how you are doing. I am so grateful to have found this site and all the wonderful supportive people who participate in the threads.

I hope you enjoyed Thanksgiving and enjoy the Christmas festivities.

Well, boo. It appears that my BC is now in my left ribs #6 & 7. Ironically, I keep breaking my right ribs. First time for a spread for me since it was in 2 of my chest nodes, but I have been NED for almost 3 years.

The nurse told me that they will further evaluate it with my next scan in April.

Dec 12 will be the start of my 19th year, and I don't need this.

That really sucks Denny, I’m sorry to hear that. You are my inspiration........if I can go another 18 yrs I could die a happy old women

Thanks ladies! The head nurse told me that they usually don't do anything at this point. I just called my endocrinologist again to see about the follow-up to my scans, and got the ball rolling better there.

I have been on Prolia for about 4 years and he had suggested (depending on my scan results), that I need to add an additional med to the Prolia...either a nasal spray (preferred), or daily injections (ugh).

That Dr. has been waiting on notes from my onc. So I left a message for my onc.

I don't know about radiation at this point, since I don't have pain there. I do have occasional pain on my right side where I keep breaking my ribs.