Confusing Pathology Report

trishazma
trishazma Member Posts: 11
edited November 2020 in ILC (Invasive Lobular Carcinoma)

Hi everyone. Glad I found this group. I was just advised of the following and am trying to figure out what it means. Any help would be very much appreciated. So here is what is on my report::

INVASIVE LOBULAR CARCINOMA, 1.0 MM IN GREATEST DIMENSION WITH ASSOCIATED EXTENSIVE LOBULAR CARCINOMA IN
SITU WITH ASSOCIATED STOMAL FIBROSIS SUGGESTIVE OF RADIAL SCAR FORMATION, SEE COMMENT.
Comment: Immunohisto chemical stain for E-Cadherin is absent in the small focus ofinvasive carcinoma and in the in situ
carcinoma.Immunohistoc hemical stain for CK5/6 and p63 show absence of myoepithelial cell staining in the small focus of
invasive carcinoma. ER is moderately positive in 90% of the cells of the invasive carcinoma.

note from me: it seem like I dont have cancer. would you guys agree. thanks
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Comments

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited October 2020

    Hi Trishazma, sorry you find yourself here.

    Yes, you do have cancer. You have:

    1. Invasive lobular carcinoma. The E-Cadherin staining being negative confirms that it is lobular and not ductal carcinoma. Not that it is not cancer.

    2. Lobular Carcinoma In Situ, which are atypical lobular cells that are not as “far along” in their abnormality. Your invasive cancer may have arisen from this condition.

    3. You possibly have a Complex Sclerosing Lesion (Radial Scar), another atypical lesion.

    Your treatment for #1, which is the most serious, will take care of #2 and #3.

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  • trishazma
    trishazma Member Posts: 11
    edited October 2020

    Wow that was quick - thank you. Since I am new how were you able to interpret it. Thanks


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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited October 2020

    I have/had LCIS, so know the E-Cadherin test is to confirm that it is lobular. I’ve read a lot and been around here a long time

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  • trishazma
    trishazma Member Posts: 11
    edited October 2020

    ok thanks. what did you have to go thru. Are you ok now



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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2020

    Welcome, trishazma-

    We're so sorry you find yourself here, but we hope you find this to be a supportive place. We know you probably have a lot of questions, and hopefully you get some more information once you see your doctor to review the findings, but in the meantime our community will do our best to support you and offer some insight and guidance!

    The Mods

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  • trishazma
    trishazma Member Posts: 11
    edited November 2020

    I'm back and have learned a little bit more ILC. Now I am ready to go and trying to find a good surgeon in Miami or Broward County (prefer Broward).

    1. Anyone have any ideas or recommendations for surgeons familiar with ILC?

    2. Anyone chose a full mastectomy versus lumpectomy?

    3. I would love to hear others experiences with ILC

    Thank you so much in advance


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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited November 2020

    There is an active Florida group. Check out the search area to find it. Seems to me someone recently asked about Florida docs and some answers were posted. Or you can start a new thread - Florida recommendations please.

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  • trishazma
    trishazma Member Posts: 11
    edited November 2020

    will do - thanks

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  • Hipline
    Hipline Member Posts: 195
    edited November 2020

    Trishazma, you can also find information about lobular at https://lobularbreastcancer.org

    There is even a "questions to ask your doctor" download that may help when you meet with your medical team. Best wishes!

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