Skin lesions while on tamoxifen

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Momgr5
Momgr5 Member Posts: 20
edited November 2020 in Hormonal Therapy - Before, During, and After

Hello everyone. Maybe somebody can guide me. I seen 2 Dr.s so far both with different opinions of red inflamed scabbed sores on one butt cheek and hip. It’s started first on my forehead. I saw dermatologist she prescribed cephalexn. Took a month for my forehead to clear up. Then early July my hip broke out which spread to also my buttock. My IM Dr. thought it might be shingles. The same day I had a follow up with my dermatologist she thought it was Folliculitis again. She prescribed Cephalexin again. And a cream. This time they are not going away. They hurt like crazy if anything rubs against them. All this has started since starting tamoxifen. I only had mild skin issues over the years. I am 66 post menopausal. In two weeks I see oncologist for follow up. Has anyone experienced anything like this? I am at loss I have researched and researched. I thought this is the place to ask. Many people have been on tamoxifen maybe someone could help. Thanks advance.

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  • florence123
    florence123 Member Posts: 9
    edited August 2020

    I am on Femara and in July I started to have a painful rash in between my legs. I was put on cortisone cream. I thought it was my lichen schlerosus coming back. It cleared away but each time I hike or walk my dog in the woods, it flares up. So annoying. I am finishing Femara at the end of August and I can't wait.... Hopefully it will clear up. I truly believe it is the hormonal treatment that makes my skin so sensitive.

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  • gb2115
    gb2115 Member Posts: 1,894
    edited August 2020

    I get a lot of itchy spots that come and go, since being on tamoxifen, but I don't know if it's caused by it or not.

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  • Blue311
    Blue311 Member Posts: 7
    edited September 2020

    I am on tamoxifen and have some red spots and white heads, most do not hurt its just red and sometimes scars. I saw a dermatologist the other day and told him about it, he said I should get a blood test to rule out somethings. did your dermatologist offer a blood test? sometimes suplooments like Collogen do help.

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  • Momgr5
    Momgr5 Member Posts: 20
    edited September 2020

    blue311. No my dermatologist did not recommend any blood test. I still have Folliculitis as that is what she said it was since July 1. No new sores, just sores that don’t go away. I saw oncologist he recommended I stop tamoxifen for 2 months. Stopping it has changed nothing either. Now I found out my liver enzymes slightly elevated. Tamoxifen can cause that I am so lost with all this. I have no idea what I should do. When I saw oncologist last visited I was very surprised, so was my husband and friend who were at first visit to oncologist with us, tell me that my DCSI I had was precancer. What. Never heard that before. Now he says because it was only pre cancer I don’t need to stay on Tamoxifen if it’s causing side effects. Do I believe him especially after at last visit not telling any of us that the first time we saw him before the surgery. It was called Stage 0, level 3. I am really confused now. Do I take tamoxifen or don’t I. Do patients take it for precancer

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited September 2020

    DCIS =Stage 0 = In Situ = Noninvasive = Precancer - all are different terms for the same thing. The Level 3 is actually Grade 3. The doctor is just saying that if you are having problems that the benefit of the drug doesn’t outweigh the risk.

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  • Eigna
    Eigna Member Posts: 438
    edited November 2020

    Hello ! I started taking tamoxifen since end of May. Last week I developed a rash (red spots) on my neck, breast, tummy and arms! Has anyone had this before. I’m starting to think it’s tamoxifen that is causing this and I decided stop it for a few weeks just to see if I am going to get better...

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