My Husband, My Life, My Love, My Family, My Cancer

Good evening all. My book club started doing light exercise a 1/2 hour after meeting. It’s fun I mainly stretch. Most exciting thing my brother called me for a sunset jet ski ride! I said yes before my brain could react.

Holmes it’s so good to hear from you and that you’re doing well.

Mae thanks for sharing your update on xleoda. I’m glad the nausea meds are working.

Mara I admire your tenacity. Even with one foot in front of the other as encouragement you push past and trudge on and on. What you accomplish is encouragement and I always look forward to your outdoor adventures.

Here’s my adventure and all I had to do was hold on.

Thank you all for the support. I am humbled and grateful.

Tanya, that looks like a super fun day at the beach.

Got a new tattoo, it’s a traditional Hungarian embroidery pattern.

Rest In Peace My Sweet Boy

Huey Lewis

December 8, 2005 - October 23, 2020

Mae ~that’s beautiful the colors are so beautiful and vibrant! Nice choice.

Booboo so sorry for your loss. I was thinking of you yesterday bc I was in an area I'm unfamiliar with and saw a lot of nice restaurants. We will God willing go for lunch after the holidays or before if you like. There are many outdoor restaurants that are empty especially during the week and day time.

Mae I never heard of Hungarian embroidery. Thanks for teaching me something new.

I drove myself to the beach and met him there to avoid contact and the rest is the "yes" that I decided to say when he asked me and then I was questioning my sanity. I was so excited I wore house slippers lol.

Tanya

BooBoo

I’m sending virtual hugs to you for the loss of that adorable puppers. May you find peace in the coming days....🐾

Mae

Love, love, love your new tattoo. Beautiful colors!

Oh booboo, I’m so sorry, such a sweet face 💗

Tanya, yes, it’s very common among the folk people and quite beautiful.

Thanks everyone, it’s a pretty little nod to my hungarian side.

Tanya- Good pic and glad you had fun.

Mae- Love the tattoo. I always wanted a small one. But never took the plunge. Now, with the low WBC's and Covid, guess I missed my chance.

Boo- He is in Heaven now. Waiting for you.

Well today I went to the mastectomy fitter. Me and her were the only ones there. Both of us wore masks. I actually had 2 on-- surgical mask and one of Mel's over it. Thanks Mel. The fitter also wore gloves. I got a new prosthesis and some bras. Glad I did it. Done with that for a year. Got home and had one of those exhausted spells. Mara I admire you and all your walking. I could not do that. I just felt so weak today. Like zapped of all energy. Didn't nap, just sat down for a while with my cat on my lap.

This weekend doing Dollar store shopping in am (early hours). Church online services on Sunday. Zoom gaming. And lots of sitting and reading.

Candy, blood counts and the ability to heal well are very important but any good tattoo shop is likely very sterile, especially now. Honestly, my guys shop is cleaner than the grocery store and my own home, even.

I am currently on Xeloda. Tumor markers have jumped but no scan yet, but I understand next options are all IV chemo. I wondered if anyone had retried a previous treatment? I have limited cancer in my body but struggle with brai nmets and not sure I can do the IV chemo ☹ I live alone iwth one son who lives out of state and my few friends are all working and busy with their lives. It's been a toubh job mostly alone.

Dorimak- Sorry I cannot give any advise about revisiting a treatment. I know some meds can cross the blood/brain barrier and some cannot. Since you have brain mets, you need to read up on something you would like to try (revisit). And have trust in your MO. I empathize with you as I am alone too. I worry a lot about the day when I go to IV chemo and need more help.

Well shopping done early today and now the day stretches out before me. I thought about reaching out by phone to a couple of friends, but since it is Saturday they will all probably be busy. They do not hibernate in the house like I do. They are out and about, have family things, etc. Tonight my church is having a bonfire/weiner roast. Would love to go sit by the fire and roast a marshmallow or hot dog. But... cannot. There will not be masking or social distancing as they think it is silly. Actually, our area is under restrictions of limiting gatherings to less than 25, but they won't adhere to that either. Sigh....

Today's weather is much calmer and cooler today. Have done some surveys and also housework and laundry. Bored as heck. Decided to plan a 10 k or 6.2 mile walk roundtrip to have my favourite snack burger meal and pick up extras from home. I want to train my legs as much as possible to get ready for winter walking in the snow. Other than that, nothing else planned for when I get home.

I did sleep better last night despite neighbours out back of the building talking loudly. I listen to rain meditation and a white fan app besides my own fans going so it drowned them out and kept me from shouting SHUT UP which is really not helpful.

I am still thinking of you Booboo and your family today about your furry family member, hugs going out to you. I don't think any of you can imagine how much I would love to hug everyone here in person, but virtually is the way it must be.

Well the hot dog roast my church is having tonight is postponed till next Saturday (due to cool weather today--highs in the 40's and cloudy). And the piano player has contracted Covid. She is doing ok so far. She is in her 70's. But, I think she was at church last Sunday and she is a no-masker, so I wonder if she spread it to others. That is why I am not going to church (or anywhere) right now.