Nipple Sparing Mastectomy- no reconstruction?

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renbird
renbird Member Posts: 110

Has anyone out there gone this path?

I’m deciding between this route and simple mastectomy, no reconstruction.

Thank you! -Renbird

Comments

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2020

    renbird - have you spoken to a plastic surgeon yet? I think it will be important to find a surgeon who not only has a lot of NS experience, but who has also done this specific surgery - more than once. I had a nipple sparing with reconstruction, but my concern would be nipple placement and symmetry if you do this without recon. Are you considering bi-lateral surgery? Success would partly depend on technique and your current size. My surgeon placed the incisions for mastectomy in the IMF, under the breast, so that when the expander was placed it occupied the space the breast tissue had and left the area of the nipple with no incisions, and the nipples were where they had always been. Without any volume underneath the nipple they might not be located in the logical spot, unless you are extremely small breasted. You may also find that they don't look symmetrical if there are any anatomical issues that make the sides of your chest unlike each other. Some surgeons who do nipple sparing actually relocate the nipples and graft them afterward, which would allow for a choice in placement, but mean a more extensive surgical experience. I am not advocating for reconstruction for you, as I think all choices about that are very individual and should be respected, I am just concerned that you end up with what you are envisioning. I believe that there have been a few people who have done a nipple sparing with no recon, try putting that combination of words in the search function and you may be able to PM someone who has done it and ask them about it. Wishing you the best!

  • Beesie
    Beesie Member Posts: 12,240
    edited October 2020

    I'm sorry no one has responded. I know what you are asking about has been done, but I don't think it's common.

    I just did a search using the words "Nipple Sparing" and restricting the search to the "Living Without Reconstruction After a Mastectomy" forum. I found these threads where posters mention having or being interested in having a nipple sparing MX with no reconstruction. There's not much discussion about it but you may be able to PM the members who are still active on the site:

    Topic: Going Flat? Be Clear! "Aesthetic Flat Closure"


    Topic: nipple sparing surgery without reconstruction


    Topic: Living flat: style without hiding it

    .

    Edited to add: SpecialK, we were posting at the same time with the same idea!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2020

    beesie - we were synced up!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2020

    I had a nipplesparing BMX, and my plastic surgeon biopsied the tissue under the nipple when he lifted them ahead of time to disconnect them from their blood supply before the actual surgery. I was small breasted and stayed that way, so it was a nipple-lift in the doc's office with a local, then the surgery. It was a non-event--little to no pain, but I had to sleep on my back on a wedge pillow for 3 weeks which wasn't so easy but i did it.

    I have breast MRIs every three years to check the implants and look for any mass. The MRI comes back "no detectable breast tissue, no masses" which makes me very happy.

  • renbird
    renbird Member Posts: 110
    edited October 2020

    Hi SpecialK, Beesie, and ClaireInaz -

    Thanks for your thoughtful and helpful responses! : )

    I spoke with the surgeon's assnt the other day and she mentioned the same thing about "if you have a nipple sparing mastectomy, your nipples will be 'where they are now' " - meaning they may land off-center a bit. I did not know that. I also did not know the nipple would "lie flat" (no nipple protrusion at all above the skin). Both were good to know as I make my decision!

    One note: I have already had a lumpectomy and a re-excision. So ONE advantage to having a nipple sparing mastectomy is that my surgeon would use the existing incision (under the curve of my breast) and simply add 1-2 inches toward my sternum, as opposed to a NEW incision across my breast.

    There's still DCIS in there, (not near nipple) and I 'could' have one more re-excision, but I'm kind of over it and there's enough calcs and clouds in there that I think maybe mastectomy would have been the smarter decision all along. I do not want additional mammos/biopsies/MRIs (if I can help it) on that side if I can help it. So glad your MRIs keep coming back clear, though, Claire! Yay! : )

    My breasts ARE super tiny, barely an A cup, so at this point, even after the lumpX, the right nipple is only slightly off from the left. Still , though, do I want a flat/off-center possibly necrotic nipple? I wish there were additional long-term studies on NSM, but I guess the practice is only about 15 years old?

    Any more thoughts, gals? : )

    -Renbird


  • renbird
    renbird Member Posts: 110
    edited October 2020

    Thank you for the links, Beesie! Very helpful. : ) See my additional response to the group. -Renbird

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2020

    renbird - you are asking smart questions. One thing to consider is maybe not sparing the nipple and doing a 3D tattoo later? That way you can chose the placement, and since the spared nipple amounts to a skin decoration, a tattoo basically does the same thing with more control. I ended up with some issues and after many surgeries - involving necrotic skin, but not the nipples - I ended up with an asymmetric nipple situation. It bothered me a lot, and I ultimately removed both. I will say that my initial skin and nipple sparing BMX result was amazing and it was just unfortunate circumstances that led to the successive surgeries. I wonder if your surgeon can use the existing incision for the mastectomy and an areola incision if the nipple is removed which could later be covered by tattoo. There is also something called a purse string incision that uses the areola incision for the mastectomy itself, but I don’t know if it can be used in your circumstance. Some things to consider.

  • renbird
    renbird Member Posts: 110
    edited October 2020

    Also, have heard from one surgeon that with NSM with no reconstruction, it may be uncomfortable to wear a prosthesis, as it may rub against the nipple? But if the nipple is numb, how is that an issue?

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2020

    I wore a prosthesis initially for seven months, then again for 18 months, with a spared nipple on my temporarily flat side and did not have any issues. I suppose it might be possible to have some chafing but I’m not sure it would be uncomfortable, rather not optimal for the skin.

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