Scheduled for core biospsies and have questions
Hi there. I had a 3D call back, followed by ultrasound. Radiologist found three masses in my right breast in two different outer quadrants, all with those bad words - spiculated margins, taller than wider, hypoechoic, architectural distortion, etc. The bi-rad is 5. I'm scheduled for 3 needle biopsies next week (the soonest they could get me in), and then they said another 5 to 7 business days for pathology report. Beyond stressed and have not been able to sleep. Called and emailed my regular dr to ask some questions about the biopsy procedure, since I was so shocked when the radiologist told me, that my mind was just blank. Yet to hear back from her. So I'm hoping someone here can help. I read that several specimens are taken with the core needle biopsy, so if I have three separate masses, does that mean I'm going to have something like more than a dozen specimens taken?? Also, why does it take up to 7 days to get the results back? I've read on here that some folks get them much faster than that. Thanks.
Comments
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Hi! I've recently had 3 core needle biopsies as well. 2 in one breast and 1 in the other. They took 4 samples from one spot and 3 from each of the others, so 10 samples together. I'm sure that could be different depending the suspicion and size of the area they are taking a biopsy of. My biopsies were done at 2 different times. The first was the 2 in my left breast and that was done on a Monday and results came back Thursday. The right breast was 1 biopsy and was taken Monday and came back Tuesday, but that one was benign. I think there's certain tests and stains they do on the samples that make it take a bit to come back if they have to do them. They told me on average it takes 3 or 4 days, but they say 5 to 7 because sometimes the lab is backed up too. Let me know if you have any other questions specific to the biopsy experience and I'd be happy to share mine. Good luck!!
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Thanks so much for the quick reply. So, how are you feeling after having had so many samples taken? Do you have bruising and are you sore?
Also, if you don't mind my asking, what was your bi-rad?
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Honestly, the biopsies weren't that bad. The lidocaine needle pinches a little and burns just a tiny bit and then you really only feel movement. It's a little uncomfortable when they push the ultrasound paddle on the other side of your breast while getting the samples, but all in all not bad. I took 1 or 2 Tylenol after the procedures and just kept the ice packs on/off for 8 to 10 hours after. A women radiologist did the first breast (with the 2 biopsy sites in it) and she was pretty gentle and the bruising was minimal and was fine within about a week. I had a man radiologist the second biopsy and he seemed a bit more rough. I do have heterogeneously dense breast tissue, so maybe it's harder to get the needle into that. I had it on 9/14 and I still have a yellow bruise, but it doesn't hurt and never really did. I slept with a bra on for 2 nights after each. You keep the steri strips on until they're almost falling off. If it helps, the thought of the procedure is way scarier than it really is...so try to not stress so much about the actual procedure.
I was a bi rads 4C.
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Okay, thanks. This is also helpful. This waiting is the worst part; thinking all sorts of negative thoughts. I'm mostly concerned about the bi-rad 5 and the fact that the descriptors in the ultrasound report include all of those words that are not favorable and indicative of cancer. Honestly, I can't wait for the biopsies on Wed so that I'm a step closer to at least knowing one way or the other. I guess you could say I'm expecting the worst, but hoping for something better.
Good luck with your testing/treatment. You seem to have a positive outlook, so that should help.
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The waiting is the worst part indeed. I don't overly have good advice for that except to just keep yourself busy while you're waiting. It helps to distract your mind for a little bit. I worked a lot and my hubby and I attacked our home projects list in the days I was in between waiting. It helped.
I was like you and I just wanted to know, whatever the outcome was. The not knowing was torture. Try your best to stay positive. But like you I was also prepared for not hearing something good. I figured it wouldn't hurt anything to just accept that could be the outcome before I heard it and maybe it wouldn't be so shocking. I was shocked to get the initial callback, since I had only had my 1st ever mammo. I didn't want to be caught off guard again. I hope you find some calming peace over these next couple of days before your biopsies and everything turns out well!
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Try to do fun things while you're waiting. It's a little harder this year, but I went to a great concert the evening of the day after my biopsy. Goofy movies also help. Or dancing to loud music. Or walks in the woods. And snug sports bras became my best friend during the tests and surgery, it really helps prevent swelling, and some have a slot (for removing the foam cups) that is perfect for the small round ice packs some breast centers use.
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The reason why it takes so long to get the results back is because its an involved process to prepare the sample.
First, they have to dehydrate the samples. They have to do this because the sample has to be solid in order to make slices thin enough to see through. (Its much easier to cut meat if its frozen than if its at room temperature.) If there is water in the sample, it will break up the cells so they can't be seen. (When you freeze water, it expands, and when the water in a cell is frozen, it, too, expands, and breaks the cell up so they can't see how it looks.) They usually use increasing concentrations of something like ethanol (ethyl alcohol). So this can take at least a day or two.
Then they have to let the sample dry, then embed the sample so its hard, usually in something like paraffin or plastic. Then they have to let that dry.
Then they have to take a very sharp blade and cut the sample into a layer that is thin enough to see through in the microscope. The light microscope requires that the sample be thin enough to see through.
They have to stain it with different dyes, some of which can be hard-to-get. (I'm not sure at what point they do the staining, or if they do it at different points depending on what they find.)
Then they have to have a pathologist look at the slide under the microscope. The pathologist looks at the size, shape, pattern of the cells and membranes in the sample in order to make the diagnosis. People can be on vacation, or there can be shortages of supplies.
For almost all breast cancer, you can't get diagnosed without a pathologist looking at a piece of tissue under the microscope. (The exception is the uncommon inflammatory breast cancer, which sometimes/often (?) is diagnosed clinically.)
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I am sorry you are in the waiting game. It really is the hardest part. I completely understand just wanting to know the results either way. BIRADS 5 is scary to see. I had my first biopsy on a Thursday and got my results on Tuesday. The imaging nurse navigator called me and simply said they had found cancer cells. They had already set up an appointment for me with a breast surgeon the next day. You might ask when you go how you will receive the results so you can anticipate that. I have had other biopsies, and one came back within two days. As for the procedure itself just speak up if you have any pain so they can give you more numbing medication if needed. After they took my samples they held pressure for a bit which I found uncomfortable, then a mammogram to confirm placement of the marker they will place. This identifies the area they took the samples from. I wish for you some peaceful moments as you wait, I know it is hard. Don’t hesitate to come back and ask as many questions as you need or just to vent your feelings. We are here for you
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Hi leerose- I was a bi-rads 5. My biopsy wa on a Friday and I got the results on that following Wednesday. I went into it knowing that the 5 meant it was more than likely cancer. When my husband and I got the results we both oddly felt better. I think it's the unknown that makes it worse. Once you start getting a plan together you will move into let's kick cancers ass mode. I hope it comes back as nothing but if not, the people here are very supportive and will help you through this.
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Thanks, all, for the encouraging words. This site already has been so helpful and I've learned quite a bit by scrolling through the posts. I do work full time and still have one child at home, with others in college, so I am busy. Its at night, lying in bed, when things really get to me. My Mom had BC when she was about 45 (both breasts removed) and ended up living until 75, so I know the long term outlook is good. I just want to get started on whatever is needed to move this along. I'll hope that I get the pathology report sooner rather than later. And thanks also for the tip about asking who will contact me with results. My regular dr has dropped the ball on this entire thing.
I did just think of another question. In March, I had a CT scan of my pelvis for another problem and they noted a cyst on one of my ovaries. I followed up with my dr and she said not to worry, unless I am having symptoms to indicate there's a problem, which I am not. Any chance this is somehow also related to my current issue? I guess I should definitely tell whatever dr I see as a follow-up to the biopsies, just in case the two are related.
Thanks, again! I'll report back when I know something.
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Hi Leerose, The waiting is hard as I’m back at the waiting game again after 8 years. I go Wednesday for my 5th biopsy on this breast. I turn 54 next month & was diagnosed 8 1/2 years ago at age 45 with breast cancer.
As for the cyst or whatever is on your ovary. If this ends up being breast cancer I would definitely say something to your Drs. I have a BRCA 2 gene variant & since your Mother also had BC. It would be good to have all things looked at or at least talked about. Any new Drs you might get won’t know everything that has been going on whether it’s concerning or not to another Dr.
I had this happen to me on some other medical issue that was being looked at & something else was seen during a test. Had I not spoke up to my Dr that prescribed the test when the results were given to him another cancer may not have been found in time. I don’t say this to say there is a problem. I say this to be proactive, ask questions it’s your right. Get a second opinion also.
It does help when you get the answers. Yes keeping busy helps. Hang in there these are a great bunch to help you get through this! Jule
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Thank you for the information and good luck with your upcoming biopsy, julz4. Hoping all goes well. Okay, yes, I will be sure to inform my future doctor about the cyst, just in case. I went back to look at the CT report and it just says a 6.3 cm simple appearing cyst. The radiologist recommended non-emergency followup with a pelvic sonogram and comparison to prior images, if any.
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Hope your biopsies went smoothly today, leerose!
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Thank you! I had the biopsies done this morning. I was so nervous. The one was fine, but I had a significant amount of pain for the other two. I feel okay now - a bit sore and some swelling, but not too bad. Now more waiting.... I'll post an update when I get my results. Praying for the best, but planning otherwise.
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That's good the biopsies are over and done with and went ok. They definitely aren't fun, but pretty quick recovery time. Did they mention 5-7 days for the results to come back? Hopefully they come quickly...waiting is really difficult, especially with a weekend in between
I'll say a prayer for you as well, for a positive outcome and also peace while you're waiting!
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Julz4, hope your biopsy went well today too!!
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Sorry you had pain, that really stinks. Keep those ice packs on! Sending good thoughts to you as you wait.
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Oh, and yes, they told me I shouldn't expect to hear back until next Wed or Fri. So, quite a wait. I understand why it takes so long, but it is so stressful. In the back of my mind, I keep hoping that a report miraculously appears sooner! I also keep logging in to my patient portal. Crazy behavior, I know, but I can't help myself.
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leerose, I know at my hospital network they do not load the radiology results to our patient portals for a week after they come out. I asked them about it and they said they had one time where the patient accidentally got the results in their portal before the doctor was able to communicate that cancer was found...and that's a terrible way to find out, so there's always a lag on those reports now. Not sure if your hospital is the same way or not. The waiting just plain old stinks
I hope you're able to keep busy these next several days and try and keep it towards the way back, instead of the front of your mind.
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The initial pathology report came back - invasive ductal for all three masses. The follow-on report with all of the other details is not yet in, so I don't know anything more just yet.
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I'm so sorry. With the description of the masses and the BIRADs 5, the diagnosis isn't surprising, but that doesn't make it any easier on you.
Move on over to the Just Diagnosed forum. Once you have the pathology information, you'll get a lot of information and support there.
Sending cyber ((Hugs)).
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Thanks, Beesie. Once I have the full report, I'll move over to the other forum.
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I'm sorry, leerose...big hugs!! You can get through this though! We're here to help you emotionally!!
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