I have ILC and no rads or chemo but take Arimidex. Anyone else?

Suzanne89 · September 2020

Feel lucky I didn't have to do chemo or rads, but was wondering if there are others out there. I do take Arimidex. Thank you.

Catsme · September 2020

Hi Suzanne,

I had ILC, had a double MX, no rads or chemo. I too feel lucky. I do take Arimidex every day. Tolerating it well.

Suzanne89 · September 2020

I had lumpectomy. Clear mamo this month . Thank you for responding

LillyIsHere · September 2020

Suzanne, did you have node involment?

KBL · September 2020

I am diagnosed de novo Stage IV, and I’m on Ibrance and Letrozole with ILC. I did not have a mastectomy, and I’ve had no chemo or radiation. I’ve been on this combo since June of 2019.

Suzanne89 · September 2020

no node involvement

MinusTwo · September 2020

Suzanne - can you go to My Profile and fill in your diagnosis & treatment to date? It would help to see that information.

I thought everyone who was not de novo Stage IV had radiation after a lumpectomy.

Suzanne89 · September 2020

I think I did that right. Can you see I had LCIS in 2013 and ILC in 2018? I was told it was too small to do radiation. But I am on Arimidex. Thank you Minus 2. I haven't been on this for a while.

GlobalGal · September 2020

I was diagnosed with de novo stage 4 breast cancer whichwas found in 3 neck central lymph nodes following thyroidectomy for papillary thyroid cancer. The pathologist said it was “possibly lobular”. I have had 3 PET scans with no evidence of disease so far, thus no surgery or chemo or radiation, just Anastrozole.

jessie123 · October 2020

Will you be having a yearly MRI? I was stage 1B, but the tumor was 2cm - no nodes. I did have radiation, but have refused the drugs. I thought all ILC patients who have lumpectomies must have the dreaded yearly MRI since ILC usually doesn't show up on Mammograms.

Suzyshacklechick · October 2020

jessi, I go to my Dr. for my 6 month blood check for Arimidex. I will ask him then. So far I haven’t had MRI after surgery

beach2beach · October 2020

ILC , no chemo or rads. I did a BMX. Take tamoxifen though.

I feel lucky also. I still sometimes feel guilty. When I said that to my gyno he told me that "you did not ask for cancer, nor for the type, the size, not anything about the cancer. You got what you got. Still is cancer.

I have ILC and no rads or chemo but take Arimidex. Anyone else?

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