10 Myths and Facts About Male Breast Cancer ​

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Traveltext
Traveltext Member Posts: 2,089
edited November 2020 in Advocacy

PLEASE SHARE: 10 Myths and Facts About Male Breast Cancer

Men living with this disease are coming out and rejecting the shame and embarrassment of being diagnosed with a so-called women's disease. Many of us are active patient advocates for our brothers and sisters with breast cancer. In the United States, alone, around 2,620 men are diagnosed annually, and over 500 will die from breast cancer.1 Help us spread the word: breast cancer is a genderless disease!


https://advancedbreastcancer.net/living/male-breas...



Comments

  • ceanna
    ceanna Member Posts: 5,270
    edited September 2020

    Thanks Traveltext. I will share your link. Thanks for all your work to advocate for male BC awareness and treatment. All the best, Ceanna

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited September 2020

    Thank you for sharing. I actually saw a male patient there who was being scanned when I went in for my last test. So many people do not realize it affects men as well.

  • edj3
    edj3 Member Posts: 2,076
    edited September 2020

    One of my husband's high school friends was dx'd before I was, and as is often the case his cancer was further along when caught. He's been quite outspoken about male breast cancer and every chance I get, I like and share his posts.

  • DebAL
    DebAL Member Posts: 877
    edited September 2020

    Thanks for posting traveltext. Discussing with my son right now. You are such a special member of this community. I enjoy coming across your posts. Hope you are doing well. Deb

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited September 2020

    That’s a good article, Traveltext.

    Can you tell me what percentage of men with a breast cancer diagnosis have a known genetic mutation that may have contributed? I mean BRCA, PTEN, etc. all taken together. I ask because having case of male breast cancer in the family is on the list of things that can contribute to a recommendation for genetic testing. Am I wrong in thinking that the majority of men with breast cancer do have a genetic mutation or family history? I know this is a misconception where female breast cancer is concerned...

  • Traveltext
    Traveltext Member Posts: 2,089
    edited September 2020

    ceanna. We go back a while. Stay safe

    edj3. Where does Your husband's high school friend post?

    Deb. thank you.

    Bcinc. Good spotting. He was one of around 2,500 guys diagnosed annually in the US.

    SP. BRCA1 men have a 3% chance of getting Bc, while BRCA2 men have a 12% chance. Overall, one figure I have seen puts 6% of bc men having a genetic predisposition. Yes, a family history of male bc is a red flag for genetic testing. My mom had bc, I have it, my 3 male siblings don’t, my 47yo daughter is in a screening program, but my 43yo son is not eligible.


  • Rah2464
    Rah2464 Member Posts: 1,647
    edited September 2020

    Traveltext great article and thank you for pushing for awareness of male breast cancer. Sorry to hear your son is not eligible for screening. Sounds like our medical community still needs to advance their protocols. I have no doubt that your efforts will push that forward.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2020

    WOW Traveltext - Great link. The list is clear & informative. Even better, it's written so men might actually read it. I've forwarded the link to my brother, who had prostate cancer. I'll send it to my son when he has time to be more receptive. And I'll certainly pass it along to others. Thanks for posting. And thanks for staying active in this cause.

  • edj3
    edj3 Member Posts: 2,076
    edited September 2020

    Traveltext he posts on FB. Every time he's gone for follow up, he shares info similar to what you've shared. And he's been very public about his entire treatment process--diagosis, mastectomy, chemo and now Tamoxifen.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2020

    And between all of us, we will keep this thread on the active list for at least a week.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2020

    Hopefully all of you are reading this!! It's very important.

  • suzygirl
    suzygirl Member Posts: 22
    edited September 2020

    SP

    In January my then-71 year old husband was diagnosed with Stage 3a IDC, six years after my own breast cancer diagnosis. He has had a mastectomy, AC-T chemo and tomorrow starts radiation. Virtually all men are offered genetic testing, although like the the vast majority of males, he was found to have no known genetic risk factors, much like most women. Men are somewhat more likely to have a close relative with breast cancer than women (20 percent as opposed to 15 percent) and my mother in law was a breast cancer survivor. He had no other risk factors except older age. His brother and sister in law are a pathologist and gynecologist and they carefully quizzed colleague geneticists who said his case is almost certainly the result of a random mutation.

    Perhaps as a result of seeing breast cancer first hand in his mother and wife, although our diseases were less advanced, and his more mature age, my husband has felt absolutely no shame or stigma at any point. He has been completely open with friends, even strangers when asked, about his diagnosis. Some men are very surprised to learn breast cancer is even possible in a male, many are curious about how he discovered it (inverted nipple, and only then did he notice the lump below it), but most of his friends knew it was a possibility. He has had great support from his male (and female) friends, although only one flower bouquet while our house overflowed with flowers in my case. One of his friends joked he must have caught itthat time I forgot to wash my hands, and he himself often laughs about being a member of the sisterhood. Not of course, that male breast cancer is not deadly serious. It is.




  • Traveltext
    Traveltext Member Posts: 2,089
    edited September 2020

    Thanks for posting your hubby’s story here suzygirl. He’s where I was at six years ago. My story is here:

    https://malebreastcancercoalition.org/Survivor%20Stories/rod-ritchie/

    I know of a few husband and wife bc couples. I’m sure empathy abounds it these situations. I also had a mom with bc and have a BRCA1 mutation, but with a variation of unknown significance. Like hubby, I’m sure mine was a random mutation. The are thousands of genetic variations and only future research will prove anything meanwhile, it is what it is. Likewise, I’ve been open about having the disease and will tell anyone, show the scar etc.

    The Male Breast Cancer Coalition site above has many stories of men. For years now I’ve edited them for MBCC.




  • DebAL
    DebAL Member Posts: 877
    edited September 2020

    wow traveltext. Thanks so much for sharing your story. I'm looking forward to reading the other links also.

  • Beesie
    Beesie Member Posts: 12,240
    edited September 2020

    Traveltext, great information, thank you! I had no idea that the percent of men with breast cancer who have a genetic mutation is so low.

    They say that 'you learn something new every day'. I guess I'm good for today then!

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited September 2020

    Yes, thank you for the education. I was under the misconception that male bc was much more driven by known genetic mutations than female bc. But it appearst to be more similar to female breast cancer, with the majority of cases having no known genetic mutation to blame.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited September 2020

    Traveltext, thank you for making this information available when we're about to get inundated with PINK. It's a people's cancer, not just a women's cancer.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2020

    OK - let's hear it for supporting Traveltext !!! Thanks for posting ladies.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited September 2020

    Thanks for your support everyone here. Each year, when Pinktober rolls around, out comes the Manifesto.

    Created s couple of years ago by me and the late BCO member Rob Fincher, you can spread the PDF around if you wish.

    http://malebc.org/wp-content/uploads/2015/12/MBCmanifesto6.pdf


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2020

    Oh damn - it's almost that pink month again already. But I like your manifesto and will share.

  • DebAL
    DebAL Member Posts: 877
    edited September 2020

    Im sharing your manifesto as well traveltext!. Printed out a few copies to post around the hospital where I work. I jotted down my email as a contact and I'll reach out to you if I get any responses.

    A local hospital system in Ohio is having local air time with short commercials. I was pleased to see that one of the commercials with a surgical oncologist mentioned she has male BC patients and that this disease affects men as well as women. Baby steps but moving forward with more awareness

  • Traveltext
    Traveltext Member Posts: 2,089
    edited September 2020

    Thanks to the post bumpers, we are keeping this topic live.

    In December last year I received funding as a patient advocate to attend SABCS in San Antonio. This is the prime bc event in the US and over 6,000 medical people attend and there's a topic for everyone. I met so many lovely people I'd known only from social media and we all had a ball.

    Here is an article I wrote on gender bias.






  • Traveltext
    Traveltext Member Posts: 2,089
    edited September 2020

    Thanks to the post bumpers, we are keeping this topic live.


    In December last year I received funding as a patient advocate to attend SABCS in San Antonio. This is the prime bc event in the US and over 6,000 medical people attend and there's a topic for everyone. I met so many lovely people I'd known only from social media and we all had a ball.

    Here is an article I wrote on gender bias.

    http://malebc.org/institutional-gender-discriminat...


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited November 2020

    So bumping again for a newbie on the active threads.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited November 2020

    Thanks MT. Hope this helps someone


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