My Husband, My Life, My Love, My Family, My Cancer

waving to Bev Jen. Hope all is well!

Mara~ you’re so creative. That’s awesome!

I know exactly the feeling. You almost feel worse for them. My little one would run in the house and all around each room looking for her buddy. That lasted about two weeks now, and she’s doing better. I hope your guy will be okay and be happy again. Hugs. Our heart breaks for them.

Hi, Mel! Thanks for the shout-out.

Just reading, not too much to say right now. Might have progression, but will talk with my interventional radiologist and consulting MO next week, both via Telehealth appointments. Then we shall see... This just isn't any fun at all.

And Mel, that picture of your other dog on Tag's bed -- so sad. When we had to put our Great Pyr down, our other dog looked for her for weeks. Finally she settled down, and yours will too. But it is upsetting for sure.

Just FYI, if anyone is in the mood for an interesting and fun family friendly show, I recommend Tiny Creatures on Netflix. It’s a day in the life of the animals we don’t see too often like a kangaroo mouse, burrow owl, flying squirrel, etc.

I’ll try to check it out. I need something to lift me out of this foggy sad feeling I have. We owned that dog for so many years it just doesn’t go away in four days. I know this feeling sucks.

Bev Jen~ am thinking of you as well. Hoping it’s not progression as well. Everyday runs into the next.

Even with Dh working from home. It still runs together. Now I’m just bored in another room while he works his ass off. Poor guy never gets a break. Caretaking is really hard work. I don’t envy him at all. I wish I could do half of the things I was able to do before the cancer took up its little residence in the worst possible Skelton spot. S3. Just can’t stand sit and walk to long. I get some nasty pain from stiffness and prior damage. That’s why I don’t travel anywhere. Although I wish I could. Dh deserves it.

Hi, Mel. I’m not sleeping either. There’s so much troubling stuff going on in the world that I’m surprised any of us can sleep. If my DH weren’t snoring away I would probably be cleaning my house or doing laundry (LOL)! Think I’ll try a really boring book ... hope you find dreamland soon.

I'm still awake because it's only 10 pm & also I had IV steroids today. I've been chatting with my dd all evening.

Mel -

Don’t expect the pain from the loss of Tag to resolve in 4 days! It’s been 4 years since we lost my heart dog, Dolce. Even with 3 other goldens in our home, there are times my heart aches for her. The grief will ebb and flow....

Hi, Mel. Thank you for the hello. I have been exhausted and not taking naps even though I’m really tired. It seems to help me with being able to sleep at night. I usually still wake for a few bathroom runs but have been able to get back to sleep. Some nights I can tell I’m going to have trouble, and I will take Zquill. I hope you get some sleep tonight.

SondraF— my bone mets are “stable” but the pain lingers. Hard to tell where mets pain stops and arthritis pain starts! Been a busy 3 weeks. Going from one life event to the next without being able to catch my breath. Had new a/c and furnace installed last week with final work to install new duct work and humidifier yesterday. That was a large check, for sure.

Your pain au chocolat sounds good !!!

yikes I eneded up staying up till 2 and woke up just past 7 so I this will be a weird day. I had so much fun with my dd last night though so it was worth it.

candy - the pelvis has three main sites: sacrum (the lower back bit), ilium (the big flat hip parts), ischium (the bottom of your butt part). Your rads reports possibly identify the pelvic mets more precisely using those terms so you'd know where they are exactly. The sitting bit is the ischial crest. It's an area where hamstrings attach and you can get injuries in the tendons there and/or bursitis or referred pain from tight hamstrings.

My thought at this point is that we're underutilizing physio and massage in cancer pts. Esp now with covid but even before, some providers were unsure about it and worried about what we could do. But I believe at least a small part of the pain and discomfort can be addressed through body work. I had horrible hip pain this time last year (& had the xray to rule out mets because my GP is super proactive on that) but it was an injury which I realized was from a fall on wet grass when I was out with my old setter. Physio was AMAZING at figuring out the problem and fixing it gently. It was mostly stretches & exercises I was prescribed to do at home (on an app which laid out the prescription, had video of the exercise to remind me if I needed it & timed all the stretches because my physio wanted very gentle but long holds. Reminded me of restorative yoga actually....) Anyway, hope you find relief soon!

Moth, I could not agree with you more about underutilizing the physio and massage. Especially with the bone mets people. Not withstanding being on all these drugs for so long. They wreak havoc on our joints and other parts of our bodies. Getting rid of some of the discomfort would allow us to move our bodies more and do other things that would help all of us.

Mel, I am sorry that it was such a shitty night and missing your dog certainly is not helping. Just want to hug you.

I went shopping this morning, got pizza to have for lunch and top with green olives feta as well. Had to let it thaw as do not have a full size baking pan. Cut it into pieces before freezing. My god I have to watch how heavy I pack the bag I carry home, it was really hard to haul, I did it but made me so tired.

Also got my mask, just a funny little one. It is a fungalitis shield.

moth- I looked up my CT report from diagnosis. It says "left superior pubic ramus". Then I looked at a pic of that area on the computer. It seems to be the spot I am talking about that hurts. When you are lying down, lift and bend left leg up, touch lower butt cheek. That bone. I am pretty skinny so I can feel that bone thru my butt fat. Also, when you are sitting, it is that bony area that you are sitting on under that butt cheek. Wouldn't think I would have RA pain there. Or that the AI use is causing pain there. Must be the cancer.

To me the pain is just pain. Not the knees is AI use, the butt is cancer, the spine is arthritis, etc. All just one big pain. Gotta love it.

The pizza was delicious and very filling. The green olives and feta turned a frozen pizza into a better tasting option as well. Put the other pieces in the freezer, will be nice to have other options.

Simone80, I don't have pain where my bone mets are, but an overall whole-body achiness that I consider an exacerbation of my arthritis from the MBC meds. I only take OTC meds for my arthritis that help some, but I find lidocaine patches and CBD rub help my achy joint pain better for hip and knees.