Her2neu gals from Seattle

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cindbo
cindbo Member Posts: 67
edited June 2014 in HER2+ (Positive) Breast Cancer

Looking for others in the area who are HER2neu discuss current treatment/support options.

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  • AuntieRuth
    AuntieRuth Member Posts: 2
    edited March 2007
    Hey Cindbo,

    I'm in the Seattle area and just got the 'good' word that I am +++ and confused about what to do. I will be getting my education from the oncology pharmacist on Monday and meeting with the doc after that on the same day. My head is spinning. There are two types of chemo that they will be running past me but I didn't write down what they were since I didn't even think about looking them up on line first.

    I may not be of any help to you but if you want to chat, I'm here.

    Ruth
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  • chrissy41
    chrissy41 Member Posts: 9
    edited March 2007

    Hi cindbo i am getting treatment in seattle i have until july. it's been pretty easy i do get a little tired after the 90 minutes of iv. after my treatments i go straight to work.if you have any questions let me know.

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  • PNWKaren
    PNWKaren Member Posts: 88
    edited March 2007

    I'm not in Seattle, across the pond on Kitsap Peninsula and get my treatment in Tacoma (Group Health) but always happy to chat with a fellow Washingtonian. I am currently doing rads after five months of chemo and will continue Herceptin every three weeks until November.

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  • chrissy41
    chrissy41 Member Posts: 9
    edited March 2007

    I also get my treatments at Group Health in Capital Hill.

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  • AuntieRuth
    AuntieRuth Member Posts: 2
    edited March 2007
    What treatments are you guys getting? I meet with the onc on Monday to discuss two different chemo options that i didn't write down.

    any feedback would be great. I cannot have radiation since I did that 8 years ago so it will be chemo if anything following mast on 2/21. I'm er/pr and her2neu positive.
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  • chrissy41
    chrissy41 Member Posts: 9
    edited March 2007

    I am getting Herceptin every 3 weeks for 1 year i will be done in july. I already had a lumpectomy with 4 rounds of chemo adrimycin/cytoxan then 6 weeks of rad and now 1 year of Herceptin. I feel great my spirits are very high never give up hope.

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  • chrissy41
    chrissy41 Member Posts: 9
    edited March 2007

    Did they test you 8 years ago for the her-2 protein?

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  • PNWKaren
    PNWKaren Member Posts: 88
    edited March 2007
    AuntieRuth, I had dose dense Adriamycin and Cytoxan x4 (every two weeks) followed by 11 weeks of Taxol and Herceptin--was supposed to have 12 but developed transitory congestive heart failure and couldn't finish the last treatment. I'm now on Herceptin every three weeks until I complete a full year (November). I'm also doing rads for 33 treatments then will go on Tamoxifen (premenopausal) after rads.

    I had a double mastectomy (my choice) with three tumors found, largest was 3.5 cm, clean but narrow margins, and 3/5 nodes positive, one was 1.1 cm and considered a macrometastises (sp?). I am choosing a fairly aggressive approach and my oncs support me in this.
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  • cindbo
    cindbo Member Posts: 67
    edited March 2007
    Did you ever have any high blood pressure? Mine was up today, usually in the normal range, not sure what to make of it, makes me wonder if it might be a side effect to meds, they have me seeing a cardiologist just to be sure, since herceptin has that heart stuff.

    Excited to see so many of us Seattle gals (although I guess it would be better if it was a site for lottery winners). Will stay in touch, maybe even go for lunch! What did you all think about the FDA approval of Tykerb? Seems like more options, which is good news.
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  • chrissy41
    chrissy41 Member Posts: 9
    edited March 2007

    It's great news about tykberg but hopefully we don't have to go there. i have heard nothing but great news about herceptin.

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  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited April 2007
    Hi there. I'm not from Seattle but ever since diagnosis I have felt like I am... I'm 5 years out now without recurrence, and still Seattle is a regular part of my life for follow up and for clinical trials. I have not met a single person dx'd with bc in my area yet who is HER2 positive...

    AlaskaAngel
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  • KarenO
    KarenO Member Posts: 4
    edited April 2007
    I see that this post is two years old. I just wanted you to know that there are women here in Alaska that are Her2Nue positive now. I am and met another at Providence's Breast Cancer support group. The group meets the fourth Wednesday of each month at 7 pm at Providence if you are interested in joining us. It is always beneficial and inspirational to have survivors join us.

    I just moved to Alaska from Washington a year ago and elected to get my treatment at Providence rather than travel to Seattle. I feel I am getting excellent care. I just completed my second round of Taxotere-Carboplatin-Herceptin today. Both my new friend and I are ER-, PR- and Her2 +.
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  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited April 2007
    Hi Karen O

    Seattle is closer for me, Karen, but I'm glad are able to talk in person with another HER2. I work in health care and encounter many bc patients, but have never yet encountered another HER2 in the 5 years since dx. You'd think I would have come across one since somewhere between 1/4 and 1/3 of all bc are HER2+. It is nice to meet you.

    AlaskaAngel
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