Almost 10 years IDC free ...now Recurrence of ILC

Options
amyedb59
amyedb59 Member Posts: 3
edited September 2020 in Just Diagnosed With a Recurrence or Metastasis

Hello All

This sucks as you all know too well but I guess it's time to put my big girl pants on and accept this new reality . I had a axilla biopsy positive for ILC . I have enlarged lymph nodes at collarbone and some tailbone mild pain .

First diagnosis I was 50 now I am 60:.

I am going for a bone scan tomorrow and then Tuesday to see my oncologist for results and planning .

I was timid about going off Arimidex after 8 years on that and Tamoxifen . I tolerated them both very well. Oncologist said no more benefit staying on it ,,,,ugh now I am Wondering if staying on it would have prevented this ,,,just thinking out loud to you all .

Thank You so much !

· Share on FacebookShare on Twitter

Comments

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited August 2020

    Ugh, I'm so sorry. I don't have any medical knowledge to share but I would say it's better to look forward than backward. We all made the best decisions we could, based on what doctors knew at the time, so we shouldn't waste energy on regret. Please let us know how you are doing and as someone who's had cancer twice I wish you the best. You can beat this thing.

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited August 2020

    Dear amyedb59 - Welcome to the BCO Community. We are so sorry that you had to join us for this reason, but glad you found us!

    We know that you'll get tons of support and understanding here, so please stay connected and keep us posted on how you're doing. As you can already see, we have many, many wonderful and inspirational members who post regularly about their experiences living with metastatic breast cancer and we're sure it can be really helpful for you as you start your new treatment plan.

    Best wishes, and good luck with tests results!

    The Mods

    · Share on FacebookShare on Twitter
  • amyedb59
    amyedb59 Member Posts: 3
    edited August 2020

    Thank you Georgia1 and Mods ! I have a stage III triple negative ILC . Nothing found on the bone scan or the CT scan,,,,,,, Hooray !!!

    Will be starting with chemo followed by surgery. See the breast surgeon on Tuesday and start chemo on Friday. They are not sure whether it is a new primary breast cancer or a recurrence of my previous breast cancer which was IDC .

    Guess I will check out some forums for that now ! Thanks again !

    amyedb59

    · Share on FacebookShare on Twitter
  • KBeee
    KBeee Member Posts: 5,109
    edited September 2020

    I'm sorry you are facing a recurrence. I definitely recommend jumping on the chemo forum for the month you start. Those groups were my sanity savers during chemo!

    · Share on FacebookShare on Twitter

Categories