Large 45cm blood clot in my vein

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Tanyas
Tanyas Member Posts: 3
edited August 2020 in Chemotherapy - Before, During, and After

Hi All,


I have confirmed via Doppler ultrasound that I have a large clot and was wondering if anyone else has experienced this? I have my last chemo session on Monday and we need to resort to my “lymphedema arm” and I’m concerned it will have the same reaction. I’m on blood thinners at the moment. Any insights will be appreciated!

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  • MountainMia
    MountainMia Member Posts: 1,307
    edited August 2020

    I see no one has responded. I'm sorry I don't have anything to say that would be helpful. But I'll answer to bump it back into the first page of the list.

    ALSO I assume you mean 45mm blood clot, not 45 cm. Those are very different. 45mm is about 1 3/4 inches.

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  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited August 2020

    Yeah, 45 cm would be almost 18 inches.

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  • Tanyas
    Tanyas Member Posts: 3
    edited August 2020

    Hi Guys,


    Firstly,Thank you for responding.


    No... I wish I was wrong... but I mean cm. The entire vein is coagulated which is why I’m worried... I’ve never heard of anyone have such a large clot. It’s resulting in my needing to switch arms because the vein on the left is blocked and cannot be used at any of the locations.

    The ultrasound was completed from my hand to as far up as my neck, but shows the clot ends at my upper arm, starts at my hand. The entire blood vessel is closed.

    Please help... I’m so worried that my next chemo is going to do the same thing to my other arm or worse... cause DVT.

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  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited August 2020

    That sounds awful. The obvious answer is that your oncologist needs to be working with a blood/circulation specialist to get this taken care of and to prevent future occurrences. I hope they can clear it up easily, or at least not painfully.

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  • pupmom
    pupmom Member Posts: 5,068
    edited August 2020

    Tanyas, why don't you talk with you doctor? We are not doctors here and cannot give you much information. Best wishes.

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  • Tanyas
    Tanyas Member Posts: 3
    edited August 2020

    Thank you ladies I have spoken to my doctor but she is being very dismissive about the whole thing... to be honest I have not had the best experience with my oncologist and was planning to change once the chemotherapy part was over.
    I was hoping to gain done insight here, but it looks like I’ll have to get that second opinion sooner.

    @Alice thank you great idea for blood specialists I think I’ll do that! T.

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited August 2020

    Tanyas - Sounds like you don't have a port. You can always request that they access through your ankle - then your LE arm is not compromised. Most nurses don't like to do that, but it works for me. Or depending on how many infusions you'll eventually have to have - you can request a port from your breast surgeon. Or you can get a 'pic line', which requires more care but is less invasive.

    Edited to add - if you go to My Profile, you can add your diagnosis & treatment to date so we will be able to make more informed comments.

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  • obsolete
    obsolete Member Posts: 466
    edited August 2020

    Hi Tanya, sorry to hear about the blood clot in your arm. Please ask to see a vascular specialist ASAP at your cardiovascular dept. Please keep us posted and best wishes. Please read...

    https://www.healthline.com/health/blood-clot-in-arm#complications

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  • melmcbee
    melmcbee Member Posts: 1,119
    edited August 2020

    Tanyas, healing prayers and hugs sent your way. I personally would not use the other arm and I agree with Minus Two that I would get a Picc which they can put in your leg. I would definitely be looking for a specialist about that clot and if your oncologist isnt paying attention To what is happening to you then I would get another one. Best wishes

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