2017 Diagnosed-- A Place To Share "What's Next"

Dodge, I can understand how this response from the govt makes it feel like they agree with your terminality and that makes it seem really real. One must remember that govts have no brains. Lots of workers, but no central brain that does any large amount of thinking so....take thier opinion with a grain of salt. But I do know that it would be a galvanizing moment. I hope your exhausting shopping excursion brought you a few goodies to smile about when you get your wind back. And you will. 

Hi Ladies,


I just found this group also after I went to the starting chemo February 2018 and saw the link. I have been doing good until this 6 month check up with OD, found a axillary node, I had a biopsy on Wednesday the 15 th. but don't have the results yet. Did get the results of the PET scan. I feel numb about by what I read, it states I have presumptive mets in lung, liver, and axillary node. Does that mean I have reoccurrence. STAGE IV, just asking for your input. I see my OD on July 23. Thank's

LKinKC - so hard to hear the PET results. Life changing, but as DodgersGirl said not confirmed yet. My heart goes out to you. HUGS

LKinKc — 😔 — I’m sorry the biopsy results were positive. Even when we “know” what the result will be, it’s still disappointing and scary when the words are said out loud. Going to feel like twenty years before Thursday gets here 🙏

🌈

Hey gang, I haven’t posted here in a long time and am not caught up but wanted to check in and let you all know that I’m still here.

It’s been a tough year so far with a craniotomy in January and a damaged nerve that paralyzed my left vocal cord, I still don’t speak or swallow properly but after 5 1/2 months on soup and boost drinks, I can finally eat! All bucket list trips cancelled but the hubs and I get along well, so being home bound has been fine.

I’m happy to see this thread still active and hope you’re all managing life ok despite everything.

Dodge, it makes me happy to read this. I am punching you in the shoulder and smiling stupidly at you. I look in on you often, even though you don't know it. 

Hey DodgersGirl and all. So good to read through the posts and catch up with you. DG, sounds like you are getting mostly good results and I second what others have said about SSDI -- although I totally get the initial gut reaction. People who never dreamed they'd need government help are now unemployed, enrolling their kids in the school lunch program, and waiting for Congress to get their act together to help all the small businesses hanging on by a thread. All of that is why you and I paid taxes all these years! So I'm always happy when Medicare, Medicaid, or SSDI can help make someone's life a tiny bit less stressful.

I'm doing fine although I never did start the recommended Prolia shot. It feels too risky to go to a doctor's office, and I'm instead walking, lifting weights, and being more careful about getting enough vitamin D and calcium. My last mammogram was in March and was A-OK.

And baseball is also making me happy! Too many players are testing positive for covid to be sure the season will continue much longer, but it sure is relaxing to watch a game on a hot and steamy summer evening.

You are all in my thoughts.

Yep DG, my MO has tricked my insurance company into paying for annual scans. I’ve seen modest improvement but still classified as osteoporosis. Hoping it cools down so I can get back to the daily walks.

Hi everyone, Had my first taxol. Perjecta., herceptin for the stage IV BC reoccurance yesterday. It went well. No side effects yet hope they stay away or are much less than last time. Anybody else on this combo?