Just diagnosed and terrified
Comments
-
You most likely won't get the staging information.
If you have chemo before surgery, then you will be provided with a Clinical Stage, which is determined based on the biopsy results and imaging. I would expect that additional imaging would be done (MRI, maybe a CT scan) before Clinical Stage is determined so you wouldn't get that today.
If you are having surgery first, then you might get an estimated stage (but probably not) and instead will get your Pathological Stage after surgery. This staging is based on what's actually found during the surgery, as well as anything else that might be evident from imaging.
Pathological Stage is the most accurate for those who have surgery first, but for those who have chemo prior to surgery, because the chemo will hopefully reduce the size of the cancer in the breast and the nodes (if there is cancer in the nodes), pathological stage become pretty meaningless. This is why Clinical Stage is provided to these patients, even though it may not be 100% accurate.
Good luck with your appointment today. You should come out of it knowing the ER status, PR status, HER2 status, grade, and recommended surgery plan.
-
this is very helpful thank you. I have not looked into much about the ER, PR, HER2 as I don’t want to worry until I know what I have. It sounds like there are percentage though? And this indicates how the cancer will respond to treatments? Strangely my mother doesn’t know hers, though she is in a different country and I think she did not want too much info.
-
Positive or Negative is what you will probably get for the ER, PR and HER2. You may get percents, but sometimes you do and sometimes you don't. The percents might be in the pathology report (but again might not be).
ER+ patients (and better yet, ER+/PR+) receive endocrine therapy - anti-estrogen therapy. In some cases these treatments are sufficient and chemo isn't required. These treatments are not helpful / available to patients who have ER-/PR- cancers, which means that patients who have ER-/PR- cancers are more likely to require chemo even for smaller tumors.
HER2+ cancers are very aggressive, and patients with even very small tumors will get chemo and Herceptin (a drug targeted at HER2+ cancers). The good news is that these treatments are very effective, bringing the risk for these patients down to levels comparable to much less aggressive cancers.
This information is crucial to the development of the treatment plan, so I'd guess that your mother's information was probably in the pathology report but maybe she never asked for a copy.
-
Loveyou, I am also in Elk Grove and also just diagnosed. Mine was caught early, so I will not have the same journey as you, but I am here if you need a listening ear. Feel free to pm me if you need someone to talk to. Good luck to you. let us know when you see your dr.
-
ok so Good news ER and PR positive both 99%. HER2 sent for FISH. Lot of information yesterday. Really hope to avoid chemo during Covid. This means I’m hoping for HER2 negative yes??
What a whirlwind. I am so glad results so far have been good. This is intense on an entirely different level than I have known before. All of it.
-
ladyc2020, her2 positive means definite chemo, but negative doesn't mean no chemo. How big is your tumor? You might be eligible for Oncotype testing - that will help your MO make a recommendation re chemo.
-
ok thanks. Still learning the right questions and answers

Yes The dr ordered mammaprint due to my age and mother’s history.
Hey, I read your dx. Sending you love. ❤️I don’t know any of you, but am finding a lot of support online. So thank you 🙏🏼🙏🏼
-
Your hormonal results are very hopeful for avoidance of chemo and reliance on meds, either tamoxifen or aromatase inhibitors. You are eligible for an Oncotype Dx test if your HER2 is negative. It seems your doctor prefers the Mammaprint. It would seem therefore that your HER2 is indeed negative. Here are the eligibility requirements for Mammaprint"
-
I had the genetic testyesterday and actually forgot to confirm which one it is. He mentioned both a few days previously. My HER2 is negative, with the FISH, also got those results later yesterday. I am really praying for good news on the MRI. The surgeon made a comment when I 'showed' him the lump, that he isn't so sure if thats where the biopsy was takn.... 11 o clock vs 12 o lock. I also feel feel this lump feels bigger already.
I'm wondering did you have the dull ache where your tumor was found?
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team