Just diagnosed and terrified

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Comments

  • Beesie
    Beesie Member Posts: 12,240
    edited August 2020

    You most likely won't get the staging information.

    If you have chemo before surgery, then you will be provided with a Clinical Stage, which is determined based on the biopsy results and imaging. I would expect that additional imaging would be done (MRI, maybe a CT scan) before Clinical Stage is determined so you wouldn't get that today.

    If you are having surgery first, then you might get an estimated stage (but probably not) and instead will get your Pathological Stage after surgery. This staging is based on what's actually found during the surgery, as well as anything else that might be evident from imaging.

    Pathological Stage is the most accurate for those who have surgery first, but for those who have chemo prior to surgery, because the chemo will hopefully reduce the size of the cancer in the breast and the nodes (if there is cancer in the nodes), pathological stage become pretty meaningless. This is why Clinical Stage is provided to these patients, even though it may not be 100% accurate.

    Good luck with your appointment today. You should come out of it knowing the ER status, PR status, HER2 status, grade, and recommended surgery plan.

  • Ladyc2020
    Ladyc2020 Member Posts: 197
    edited August 2020

    this is very helpful thank you. I have not looked into much about the ER, PR, HER2 as I don’t want to worry until I know what I have. It sounds like there are percentage though? And this indicates how the cancer will respond to treatments? Strangely my mother doesn’t know hers, though she is in a different country and I think she did not want too much info.

  • Beesie
    Beesie Member Posts: 12,240
    edited August 2020

    Positive or Negative is what you will probably get for the ER, PR and HER2. You may get percents, but sometimes you do and sometimes you don't. The percents might be in the pathology report (but again might not be).

    ER+ patients (and better yet, ER+/PR+) receive endocrine therapy - anti-estrogen therapy. In some cases these treatments are sufficient and chemo isn't required. These treatments are not helpful / available to patients who have ER-/PR- cancers, which means that patients who have ER-/PR- cancers are more likely to require chemo even for smaller tumors.

    HER2+ cancers are very aggressive, and patients with even very small tumors will get chemo and Herceptin (a drug targeted at HER2+ cancers). The good news is that these treatments are very effective, bringing the risk for these patients down to levels comparable to much less aggressive cancers.

    This information is crucial to the development of the treatment plan, so I'd guess that your mother's information was probably in the pathology report but maybe she never asked for a copy.

  • arabiansrock
    arabiansrock Member Posts: 98
    edited August 2020

    Loveyou, I am also in Elk Grove and also just diagnosed. Mine was caught early, so I will not have the same journey as you, but I am here if you need a listening ear. Feel free to pm me if you need someone to talk to. Good luck to you. let us know when you see your dr.

  • Ladyc2020
    Ladyc2020 Member Posts: 197
    edited August 2020

    ok so Good news ER and PR positive both 99%. HER2 sent for FISH. Lot of information yesterday. Really hope to avoid chemo during Covid. This means I’m hoping for HER2 negative yes??

    What a whirlwind. I am so glad results so far have been good. This is intense on an entirely different level than I have known before. All of it.

  • moth
    moth Member Posts: 4,800
    edited August 2020

    ladyc2020, her2 positive means definite chemo, but negative doesn't mean no chemo. How big is your tumor? You might be eligible for Oncotype testing - that will help your MO make a recommendation re chemo.

  • Ladyc2020
    Ladyc2020 Member Posts: 197
    edited August 2020

    ok thanks. Still learning the right questions and answers :)

    Yes The dr ordered mammaprint due to my age and mother’s history.

    Hey, I read your dx. Sending you love. ❤️I don’t know any of you, but am finding a lot of support online. So thank you 🙏🏼🙏🏼

  • windingshores
    windingshores Member Posts: 704
    edited August 2020

    Your hormonal results are very hopeful for avoidance of chemo and reliance on meds, either tamoxifen or aromatase inhibitors. You are eligible for an Oncotype Dx test if your HER2 is negative. It seems your doctor prefers the Mammaprint. It would seem therefore that your HER2 is indeed negative. Here are the eligibility requirements for Mammaprint"

    https://www.mammaprint.com.au/do-i-qualify/

  • Ladyc2020
    Ladyc2020 Member Posts: 197
    edited August 2020

    I had the genetic testyesterday and actually forgot to confirm which one it is. He mentioned both a few days previously. My HER2 is negative, with the FISH, also got those results later yesterday. I am really praying for good news on the MRI. The surgeon made a comment when I 'showed' him the lump, that he isn't so sure if thats where the biopsy was takn.... 11 o clock vs 12 o lock. I also feel feel this lump feels bigger already.


    I'm wondering did you have the dull ache where your tumor was found?

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