Question on delayed reconstruction

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arabiansrock
arabiansrock Member Posts: 98
edited August 2020 in Breast Reconstruction

Just diagnosed, haven't seen surgeon yet, but plan on requesting double mast. I do not want implants so would have to have a delayed reconstruction. For those of you who have done DIEP, do you know if there is a restriction or preference for what type of flat closure you get to still be able to safely do DIEP later?

I would love to do all in one, take them off, rebuild at same time, but I have not found any hint that there are any PS's in my area (Sacramento Co) that do DIEP, much less do a lot of them and do them well. I have already told my husband I want to call NOLA and see if they take our insurance. But for now I am assuming I will have a flat closure, while I decide on whether or not to reconstruct. I just really don't want a floppy, saggy, wrinkly mess left on my chest "just in case" I want to reconstruct later. That's why I am asking now before surgery if there is a preference or requirement for how the flat closure is done.

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  • Moderators
    Moderators Member Posts: 25,912
    edited July 2020

    arabiansrock, we're sorry you have to be here for this reason, but wanted to say welcome!

    There is a popular thread where you may want to ask your question on flat closure too. It is called Topic: Anyone regret going flat? and it's on the Living Without Reconstruction After a Mastectomy forum. Women there have tons of experience and we're sure they will be able to help you!

    Good luck and let us know how you're doing!

    The Mods


  • Whatjusthappened
    Whatjusthappened Member Posts: 283
    edited August 2020

    arabiansrock, I had a BMX last Feb. and had delayed DIEP a few weeks ago. I think most PSs can work with whatever kind of closure you have. I had a flat closure, though if I did not do DIEP I planned on going in for a revision to get rid of the "dog ears" that were left on the sides. I will say this- the less of your own skin you have on your chest, the more of your stomach skin that will show after DIEP. Those who have skin sparing MXs have a more natural looking outcome after DIEP since the stomach tissue is "buried" under their own skin, if that makes sense. I have large flaps of stomach skin showing, though the scars will diminish over time. This doesn't bother me, but it may bother some women. You might research a football-shaped flap vs. a lollipop-shaped flap to see the difference. There is a Facebook DIEP support group page that you can join if you are considering DIEP where lots of women post pictures of the different outcomes that they have. If you don't mind the larger flaps after DIEP, I would go with the flat closure after MX. You may find you are fine with being flat. This was my original intention but I eventually changed my mind because I wasn't at peace being flat. I am still recovering from DIEP, but am already much happier. Every woman is different, so I would give it a chance at least.

    So sorry you find yourself here. I wish you all the best.

    PS: It occurred to me that I forgot to mention that some women use tissue expanders before DIEP which would also allow less stomach skin to show. This is not an option if you have radiation.

  • arabiansrock
    arabiansrock Member Posts: 98
    edited August 2020

    whatjusthap... Thank you for the reply. I have seen my surgeon and she has talked me into bilateral lumpectomies instead of double mast. So for now at least, I will not have to do diep. however if it comes back, bye bye girls, hello diep.

    Good luck with your continued recovery, may you be cancer free from now on.

  • Whatjusthappened
    Whatjusthappened Member Posts: 283
    edited August 2020

    arabiansrock, no problem at all, glad you get the keep them! There is no option that comes close to the real thing. Did your surgeon talk to you about radiation treatment? Generally goes hand in hand with a lumpectomy.

    Wishing you well during your upcoming treatments!

  • arabiansrock
    arabiansrock Member Posts: 98
    edited August 2020

    Whatjusthap... She just told me I will need rads, which is part of what I was trying to avoid with the double mast. Majorly reduce chance of recurrance, and avoid rads. Now I'm reading the rads section, and am really not happy about having to have it. Almost, but not quite, ready to call her back and say I want the double mast. No good choices here, just bad or bad, Just have to keep in mind that the goal is get thru this to have a long happy life after.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited August 2020

    arabians - have you checked at UC Davis? Here is a link:

    https://health.ucdavis.edu/plasticsurgery/procedures/diep.html

    Also, if you are willing to travel to the Bay Area you might check UCSF, they have a very well known breast center.

    https://www.ucsfhealth.org/clinics/breast-care-plastic-surgery

    You might want to check and see if you are a candidate for BMX with immediate flap reconstruction. If not, some plastic surgeons will place tissue expanders as place holders so that the later tissue transfer can be placed under the existing breast skin rather than using the transferred flap skin

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited August 2020

    Seconding what Special I says. You can definitely have tissue expanders placed during BMX and then still have radiation before reconstruction.

  • Whatjusthappened
    Whatjusthappened Member Posts: 283
    edited August 2020

    arabiansrock, I am so sorry you're having to make these choices. Many women have no problems at all with radiation, but some have lingering side effects from them (like me, unfortunately). Also, while mastectomy usually means no rads, that is not always the case, just so you're aware of that possibility as well. In my case I ended up with the radiation anyway, though lumpectomy was never an option for me.

    SpecialK and MinusTwo make some good points. I didn't think of the TE's being put in at the initial surgery. Just to be clear, they can go in before radiation, but they cannot be used after radiation, or at least that's what I was told. Radiated skin doesn't like to stretch.

    You're right that there are no good options. But there is the best option for you. Do your research and advocate for what you want.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited August 2020

    Actually they are now doing wonders with fat grafting & expanders even after radiation. I think it depends on your doc. And new things are offered every day.

  • Whatjusthappened
    Whatjusthappened Member Posts: 283
    edited August 2020

    MinusTwo, thanks for the correction. I sought the opinion of three different PS's and two of them told me my only option was autologous because of the rads and that TE's wouldn't work. But new things probably take a while to trickle down from the big cancer centers to the rest of the docs. The other consult I got was at NOLA but I was already settled on DIEP at that point and TE's weren't really discussed. Didn't end up going there because they were out of network.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited August 2020

    I hope someone who knows a BUNCH more than I do will check in. I was told I didn't have enough fat for a DIEP so it's certainly not my area of expertise.

    I had BMX w/expanders and 7 months later - exchange to implants. Two years later I had what was called a "local recurrence" in a lymph node so had chemo, ALND surgery that managed to avoid the existing implant on that side, more chemo and rads with the original implant in place. As far as I can see there was no 'damage', but it sure rides higher and tighter now after the radiation compressed the muscles & skin.

  • BlueGirlRedState
    BlueGirlRedState Member Posts: 1,031
    edited August 2020

    Delayed reconstruction - I explored the DIEP option in another state because it is/was not available where I lived. The surgeon told me that most do it at the time of bilateral to reduce the number of surgeries, but others do not. She had had one patient who did a DIEP 10 years after a bilateral. As it turned out, I was not a good candidate, not the right kind of fat it the right places. So I opted for no reconstruction. One friend suggested I also consult a surgeon who specialized in transgender, didn't do that, but maybe I should have.

  • VegGal
    VegGal Member Posts: 507
    edited August 2020

    BlueGirlRedState, I love your name!

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