If you are not Stage IV but have questions, you may post here
Comments
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Hi everyone,
I’m not sure where to post but I’m so worried hopefully anyone out there can help me. A little over a week ago I suddenly felt sensation discomfort in my good right breast, it feels like when you have period and the breast swelling out to the right side. I do self breast exam and it feels soft no sign of new lumps. What can be happening? thank you
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Hello Friends, I'd like to run a concern by you. About 2 weeks ago I started to have pain in my right hip. I do not experience pain when walking but when i rotate my leg/hip outward. I also experience the pain when laying on the couch and lift my leg up straight. Waiting for onc to call me back on how to proceed. Thought I'd check in with this group for thoughts.
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Houston, it has all the hallmarks of hormonal uos and doens , not cancer ..
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jenjen - has the pain gotten progressively worse in the last two weeks? Alternatively, what type of pain - sharp or burning? Any tingling beyond the hip such as down the leg suggesting lower back origin/sciatica? Do you need pain killers to manage it at all or is it just if you happen to be in those positions?
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great questions, SondraF. The pain has increased and more tender today when talking. Haven't had to take pain meds and no tingling.
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had a bone scan today and hope to have results tomorrow.
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The bone scan is clear. Waiting for the report to see if it provides thoughts on the pain.
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bursitis?
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Big Peaches,
My mother lived for 19 years and had bone mets for 12 years. She literally had no pain. The doctors couldn't explain why when there were places all over.
She was very active and only had intravenous chemo the very first time she was diagnosed. After that it was all chomo hormone blockers.
Just thought I would mention it to you!
JCP
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Christy B,
What a testimony you are to God and a true miracle for all of us to hear about!
God bless you!
JCP
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Anotherone ,
Hello. You were diagnosed close to me. I was 2005. Currently, I was sent to a pulmonologist because on a chest xray
an area of calcification showed up in/around the lung where everything comes together in the hilar region. They are scheduling a CT scan
of chest. I am soooo scared. How did you find about the lungs?
Take care, and thank you!
JCP
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jenjenl
That is fantastic news about the bone scan! I just hope the pain gets better for you!
JCP
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Hello MNSusan,
I hope things are going better. How nice you have three grandchildren!
I recently had a chest xray and it showed an area of calcification and the allergist/asthma specialist sent me to a pulmonologist for a consult. I had that
the other day, and she wants a CT scan of chest. I am very very scared. How did you find out it affected lungs? I was originally dx 2005 September w/ Stage1 IDC Grade 2 and o postive nodes
E+ and P+ and the other one negative.
Thank you. I live in Jacksonville, FL!
JCP
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Lories,
How are you? I read your post and was wondering about you.
JCP
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Piggy99
How are you and your daughter doing?
I saw you answered another lung question for someone so I wanted to see if you know anything, perhaps, about my situation. I was dx in 2005 with IDC see below for details and a couple of months ago I was having trouble with my asthma and allergies so I finally went to an allergy/asthma specialist. They did a standard chest xray which hadn't been done since late 2013, and calcification area showed up on left side in hilar region where the blood vessels, lymph nodes, and lungs all come together. I am so afraid. They cannot tell if the node is full of calcification which would be a good thing (a scar) or if it had a pattern on it (bad). They also don't know if it has to do with the blood vessels. She may have mentioned the word lymph node but it was an online visit and I couldn't take it all in b/c I was naturally a little upset Do you know what lung mets usually show, or if this could be a primary to lungs? Thank you for all of your time, even if you cannot help with it.
SIncerely,
JCP
I was dx Sept 2005 w/ IDC Stage 1 Grade 2 o nodes
rt lumpectomy, chemo AC, rads 6 wks
Tomoxafin, Femara together one at a time for total of 10 and a half years.
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I have a hard lump behind each of my ears. I think it could be lymph nodes. I don't feel sick or have any infection going that I know of. Has anyone had this and it was nothing?
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I would get it checked by your Onco. There are lymph nodes there and if swollen always better to check if they last more than 2 weeks. Good luck. Praying its nothing.
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Since diagnosis, I found myself very observant of my body/pain. My MO said 2 years after chemo is when he expect things will come up, if they will come up. I’m a year and a half past chemo.. every pain I feel my mind goes to the dark side. With Anastrozole, aches and pain are part of the package, so there’s constant battle with paranoia.
Im having new bone pain and recent bIood shows my calcium is borderline high, all blood works and markers are normal except for the Calcium. My MO is not concerned, she ordered a ct scan but told me not urgent, to do it anytime before I see her in December.
Could you please share your story/symptoms that led you to confirm MBC - is it pain, abnormal blood works, routine scan, or combination?
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Hi, I am more than 5 years out from TNBC chemo and bilateral mastectomy. Two months ago I began to experience both bone pain and muscle cramps in my legs. Now it is primarily bone pain. It wakes me in the night several times and I have difficulty getting back to sleep. I have not injured myself. I have tried high quality mineral supplements (e.g., magnesiums) and it is only getting worse. I'm beginning to get depressed from the pain and the insomnia.
Do you think I should contact my oncologist to rule out bone metastases? (PS, I moved to a small town in NC 5 years ago and have yet to find a good primary care doc).
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I think any symptom that is severe enough to be keeping you up at night for this length of time should be brought to the Dr for assessment and diagnosis.
Best wishes
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I’m with moth! See a doctor / mo for evaluation!
Good luck.
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Get it checked out - IF it is mets you want that dealt with BEFORE you have a fracture or other problem that requires more extensive intervention.
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I definitely agree to get it checked. You'll "feel" better either way. If you contact your oncologist, rather than your PCP, he/she might be more likely to order the appropriate tests (nuclear med bone scan, MRI, etc.) to see what is going on.
Let us know. We're here for each other.
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Hello Ladies!
First I would like to state that I am going through all of my old test results to get them in one place in case of an emergency which is how I came across this info
I was diagnosed with IDC in August 2018 and the PET scan showed uptake at the cancer area and uptake in deep right aspect of sternum. My ON said he was not going to worry over that Because my treatment was not going to change and maybe it was just inflammation. This scan did not even show up the 10mm mass in my lymph node that we found out about after surgery. I had my chemo, Rads , and Tamoxifen. I guess I am just a bit confused and aggravatedbecause on 6/28/18 I had a CT of the chest to check on a small lung module they found the year before which was shown as stable. However, the radiologist mentioned a soft tissue mass in anterior of mediastinal.
I know it is kind of late to worry about this, but I am becoming frustrated with my MO. He states he does not do PET scans on breast cancer patients. Then he moved me out to six month check ups when I am not even a year out from treatment. This after stating at first he was going to keep a close eye on me for the next couple of years due to age and BRCA. I am just beginning to question my past treatment and future with this MO
So after going completely in a circle..........Could this soft tissue mass have caused the PET scan to light up and if so what could it be?
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Hey everyone quick question here. I have had enlarged Axillary nodes with compressed Hilums for over 6 months now and I am meeting with a surgical oncologist tomorrow morning. Recently this week I have had a lot of upper abdominal pain and fullness . Urgent care did a CT scan which showed moderate fluid in the stomach and thickening of the gastric antrum. Has anyone had this and it was Mets ? Thanks for your replies !
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Bookworm,
I would look for another MO if you don't have confidence in him. I saw mine every three months after my initial dx and treatment, then it went to every 6 months after a year.
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I am seriously thinking about changing. He did not want to follow standard protocol because of my younger age and BRCA...now he is changing that. So weird.
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Hi Bookworm,
While I would agree that you should change if you are not comfortable I did want to reassure you in terms of six month appointments and PET scans. I was diagnosed initially at 38 and once I was done with chemo I only saw my oncologist at six months or more (went to annually then stopped After a couple of years). I also saw my RO annually but that was because I was part of a clinical trial.
I have never had a PET. While it’s more widely available here now my MO still prefers CT scans.
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I'm sure this gets asked repeatedly, so my apologies in advance. For someone like me (TNBC stage 1B) and in the absence of symptoms, my care team uses minimal tests and scans during follow-up care. That means no MRI, PET, or CT, no blood tests for tumor markers, etc. That's fine. I prefer a minimal approach. But it leaves me wondering what symptoms someone might have of mets, which would lead to more testing? And for reference, TNBC mets is more likely in soft tissue (organs) than in bone. What would I even pay attention to?
Thanks for any insight.
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Well, for liver, I had occasional upper right quadrant pain and flank pain. If anyone (like my doctor at the time!) had pressed on the area under my ribs, it would have hurt.
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