If you are not Stage IV but have questions, you may post here

Hi everyone,

I’m not sure where to post but I’m so worried hopefully anyone out there can help me. A little over a week ago I suddenly felt sensation discomfort in my good right breast, it feels like when you have period and the breast swelling out to the right side. I do self breast exam and it feels soft no sign of new lumps. What can be happening? thank you

Houston, it has all the hallmarks of hormonal uos and doens , not cancer ..

great questions, SondraF. The pain has increased and more tender today when talking. Haven't had to take pain meds and no tingling.

The bone scan is clear. Waiting for the report to see if it provides thoughts on the pain.

Big Peaches,

My mother lived for 19 years and had bone mets for 12 years. She literally had no pain. The doctors couldn't explain why when there were places all over.

She was very active and only had intravenous chemo the very first time she was diagnosed. After that it was all chomo hormone blockers.

Just thought I would mention it to you!

JCP

Anotherone ,

Hello. You were diagnosed close to me. I was 2005. Currently, I was sent to a pulmonologist because on a chest xray

an area of calcification showed up in/around the lung where everything comes together in the hilar region. They are scheduling a CT scan

of chest. I am soooo scared. How did you find about the lungs?

Take care, and thank you!

JCP

Hello MNSusan,

I hope things are going better. How nice you have three grandchildren!

I recently had a chest xray and it showed an area of calcification and the allergist/asthma specialist sent me to a pulmonologist for a consult. I had that

the other day, and she wants a CT scan of chest. I am very very scared. How did you find out it affected lungs? I was originally dx 2005 September w/ Stage1 IDC Grade 2 and o postive nodes

E+ and P+ and the other one negative.

Thank you. I live in Jacksonville, FL!

JCP

Piggy99

How are you and your daughter doing?

I saw you answered another lung question for someone so I wanted to see if you know anything, perhaps, about my situation. I was dx in 2005 with IDC see below for details and a couple of months ago I was having trouble with my asthma and allergies so I finally went to an allergy/asthma specialist. They did a standard chest xray which hadn't been done since late 2013, and calcification area showed up on left side in hilar region where the blood vessels, lymph nodes, and lungs all come together. I am so afraid. They cannot tell if the node is full of calcification which would be a good thing (a scar) or if it had a pattern on it (bad). They also don't know if it has to do with the blood vessels. She may have mentioned the word lymph node but it was an online visit and I couldn't take it all in b/c I was naturally a little upset Do you know what lung mets usually show, or if this could be a primary to lungs? Thank you for all of your time, even if you cannot help with it.

SIncerely,

JCP

I was dx Sept 2005 w/ IDC Stage 1 Grade 2 o nodes

rt lumpectomy, chemo AC, rads 6 wks

Tomoxafin, Femara together one at a time for total of 10 and a half years.

I would get it checked by your Onco. There are lymph nodes there and if swollen always better to check if they last more than 2 weeks. Good luck. Praying its nothing.

Hi, I am more than 5 years out from TNBC chemo and bilateral mastectomy. Two months ago I began to experience both bone pain and muscle cramps in my legs. Now it is primarily bone pain. It wakes me in the night several times and I have difficulty getting back to sleep. I have not injured myself. I have tried high quality mineral supplements (e.g., magnesiums) and it is only getting worse. I'm beginning to get depressed from the pain and the insomnia.

Do you think I should contact my oncologist to rule out bone metastases? (PS, I moved to a small town in NC 5 years ago and have yet to find a good primary care doc).

I’m with moth! See a doctor / mo for evaluation!

Good luck.

I definitely agree to get it checked. You'll "feel" better either way. If you contact your oncologist, rather than your PCP, he/she might be more likely to order the appropriate tests (nuclear med bone scan, MRI, etc.) to see what is going on.

Let us know. We're here for each other.

Hey everyone quick question here. I have had enlarged Axillary nodes with compressed Hilums for over 6 months now and I am meeting with a surgical oncologist tomorrow morning. Recently this week I have had a lot of upper abdominal pain and fullness . Urgent care did a CT scan which showed moderate fluid in the stomach and thickening of the gastric antrum. Has anyone had this and it was Mets ? Thanks for your replies !

I am seriously thinking about changing. He did not want to follow standard protocol because of my younger age and BRCA...now he is changing that. So weird.

I'm sure this gets asked repeatedly, so my apologies in advance. For someone like me (TNBC stage 1B) and in the absence of symptoms, my care team uses minimal tests and scans during follow-up care. That means no MRI, PET, or CT, no blood tests for tumor markers, etc. That's fine. I prefer a minimal approach. But it leaves me wondering what symptoms someone might have of mets, which would lead to more testing? And for reference, TNBC mets is more likely in soft tissue (organs) than in bone. What would I even pay attention to?

Thanks for any insight.