newly diagnosed LCIS ADH and FEA

Everything will be fine, Sorry you find yourself in this situation. In keeping with your screen name, a diagnosis of DCIS is not invasive cancer, so you have an excellent, overwhelming chance that everything will be fine. You're already in better shape than your July 14 question of whether you think you might be Stage 2 or above. You are Stage 0 with DCIS.

Probably a better place to seek advice in your situation is the DCIS forum on this site.

The management trend is away from surgery for LCIS and DCIS. Of course, you and your doctors need to make a decision that you're comfortable with and that fits with your genetics (genetic testing would be a good idea for you) and your overall physical situation.

"And what is the recurrence rate in the future?"

I assume you mean after mastectomy, since that is what you are considering. After mastectomy, this study shows an overall 1.4% recurrence of DCIS over 10 years. But remember DCIS is not invasive cancer, so the 1.4% does not refer to invasive cancer, only DCIS. Your doctor may be able to give you more specific information based on your particular situation.

Mamtani A, et al: Impact of age on locoregional recurrence after mastectomy for ductal carcinoma in situ ± microinvasion. 2019 Society of Surgical Oncology Annual Meeting. Abstract P47. Presented March 29, 2019.

Located:

https://www.ascopost.com/issues/may-25-2019/locore...

Specifics from study where the older you are the better the odds:

"Although the 10-year rate of locoregional recurrence was just 0.2% of women older than age 50, said Dr. Mamtani, the rate increased to 2% in women between the ages of 40 and 49 and 4.2% in women younger than age 40. Overall, the cumulative 10-year incidence of locoregional recurrence was 1.4%."

what do your ladies think?

With any surgical decision, I'd get second opinion. I have done that personally with every abnormal mammogram. If there is a high risk breast clinic near you, that may be a good place to get another opinion.

Good luck to you.

"The management trend is away from surgery for LCIS and DCIS."

This is true only for a small percent of DCIS diagnoses, those that are deemed to be very low risk, for example a diagnosis of a small single focus of grade 1 DCIS. Even then, the majority of breast cancer experts would still recommend surgery rather than watchful waiting. Only a handful of doctors fall in the "watchful waiting" camp, but they get all the press. In any case, given that her doctor is recommending a mastectomy, it's probably safe to say that everythingwillbefine's diagnosis does not meet any doctor's criteria for watchful waiting.

"After mastectomy, this study shows an overall 1.4% recurrence of DCIS over 10 years. But remember DCIS is not invasive cancer, so the 1.4% does not refer to invasive cancer, only DCIS."

No, not true. Numerous studies have found that approx. 50% of DCIS recurrences are still DCIS, but the other 50% have developed into invasive cancer by the time the recurrence is diagnosed. In fact some studies, but not all, have found that after a MX (versus a lumpectomy), the percent of recurrences that are invasive cancer may be significantly higher than 50%.

As an FYI, the recommendation for a MX for DCIS is not as unusual as it might seem, given that DCIS is non-invasive. The issue with DCIS is that because the DCIS cells are confined to the narrow milk ducts, as the cells multiply, the DCIS spreads out through the ducts. This is different from an invasive cancer, which tends to form a solid mass as the cells multiply. For this reason, it is much more common for someone to have a large area of DCIS (5cm or more) than for someone to be diagnosed with an invasive cancer that size. Hence the need for more mastectomies. This is also why the NCCN treatment guidelines specify the need for wider surgical margins for DCIS than for invasive cancer - with invasive cancer, removal of the mass is sufficient whereas with DCIS there is concern that there could be more DCIS in the duct beyond what was visible on imaging.

Hi,

I was BRCA 1... and am 25 years out from all my original cancer which was different from yours. My surgeons et all were at Northshore Evanston. Everyone was amazing.. Dr. Katherine Yao; the head of the breast center did my surgery and the other drs that she works with (oncol. , etc) are equally as fine. I know it is all so overwhelming right now. This is the worst of it. Once you make your decisions and move forward on your treatment path.. it gets better. I will keep you in my prayers.