My Husband, My Life, My Love, My Family, My Cancer

Thanks Ladies..Illimae...I will definitely update you all.

Sb...yes...I you remember correctly my feeling with Zometa/Xgeva..(I was allergic to Xgeva so it would be Zometa in my case)...I don't know that, that is the answer..but I do think Faslodex can possibly help???>> yes I failed Ibrance/Letrozole/Faslodex as my first line..but we do not know which failed...and I don't think it was the faslodex because I didn't have any bone met progression on it only liver met progression.

Someone in the Liver met thread just told me radiation to the skull base can be very bad...but I didn't know C7 would be considered that area since its like the last vertebra before the thorasic spine??? So now I am thinking that maybe I shouldn't do it????

Nicole sending a big hug your way. You'll find more info out tomorrow after the scans. I'll be in your pocket at 5:45 let's find out where everything is and then let the doctors get their plan of attack together.

Booboo I'm waiting for your checkin I know you had a big appt.

Candy are you back from second opinion land yet?

Good to see you Moomala sorry about your back pain.

Mae that sounds like some good eating even if proportioned sounds delicious.

I don't know the Kelly Preston lady. Since she's a celebrity or her husband is I hope they share some of their alternative treatment/diagnosis info with other BC patients. RIP

Tanya

Nicole, you and I must have posted at the same time, as I didn’t see your post re scary results until just now. Hope the initial shock is soon taken over by your team having a sensible plan for you. Glad you’ve posted a couple of more times today and that folk here can give you some support as always. Hang in there.

Nicole,

To the best of my knowledge, Faslodex is not targeted to bone strengthening the way Xgeva or Zometa would be. Ask your MO what he/she recommends. The c7 is the cervical spine, but targeted radiation is as they say, very targeted. My RO showed me my scan, the targeted diseased bone, and the margins she was taking. Tiny margins and she only hit the 3 areas. It is so precise, I can't imagine it is any more dangerous than hitting any other bone.

I elected to try to stop the cancer in my pelvis with the radiation rather than changing drug protocols, I am 2 weeks post last treatment, too soon to know if the bet will pay off.

My vote would be to try the radiation. See what the MO has to say.

Best,

Stacey

Nicole, Get some Information first, maybe they can radiate it. I’m sure they have seen this before. Try to Take a big breath And remember there are options. I’m sending you all my Strength , I know it’s not easy.

As far as Kelly Preston, those people Who run the “org” Do not believe in regular treatments for cancer or mental sickness. They “audit “ it out of you and they make you feel like you’ve done something. Like talking you well. It had obviously metastasized Because of lack of Treatment. People that are early stage get to Fight , and wait out the chances of hope to not have a reoccurrence. Two years ? No one knew anything at all? Scientology at its best non discloser about anything. That could be why she died so fast. Why else wouldn’t anyone know about it. ? They hid her away and just let it be. I did read where she was in treatment but we will Never know what treatment meant. Such a shame. So pretty and married so long with enough tragedy in the family. I feel sorry for any family goes through a loss like this. Came out of no where really. Life is so strange.

Runor, I was enjoying your story about your hubby and the bleach rag. Did he come home ok? Lol you’re a trip!

Runor, your story about your husband’s sandwich and where to put the mustard reminded me of my DH from many years ago. I asked what he wanted for lunch and as was the typical answer he let me know he didn’t care. I must have reached my limit that day because I fixed him an ice cube sandwich which was 2 slices of Roman Meal bread (is that even sold anymore???) with mustard on both slices and lots of small ice cubes in the middle. Ta Da— The now famous ice cube sandwich..... and while I haven’t made a 2nd one, we still joke about the ice cube sandwich when he tells me he doesn’t care what’s for dinner

Ya, DodgersGirl because “I don’t care” means “I won’t help you come up with an idea even though you are sick and tired of coming up with what to feed people for years and years.”

Ok I am grumpy. I have had a fever for FOUR DAYS because I am apparently that many days overdue for a biliary stent exchange, which is tomorrow. Four lost days of my life. Four days of feeling lousy while my house falls into pieces around me. I’m so worried about getting past the TSA at the cancer center. And yes, I had a pre-procedure covid-19 test on Sunday.

Thank you, DodgersGIrl.

Morning ladies. I got some sleep and now caught up on your posts.

Nicole- In your pocket. I cannot give you any advise about the C7 met. I do have mets in my C2-- found at diagnosis in 2017. It was scary due to the location, but I have not had any trouble from it. I am sorry to hear of your bone and liver progression. I am so sorry you have not had a good, successful treatment thus far. I pray for you.

Shetland- Hoping your procedure goes well and the fevers abate.

Stressful day today. I am thinking about yesterdays appt and the decisions I need to make-- transfer care to new MO or not. And also my niece is having surgery today. I cannot be there due to COVID restrictions. Parents only allowed. So getting texts with updates. They say stress is not good for the cancer----ha. How do you not stress??? That is all there is anymore.

having a hard time finding cream of celery soup at my local stores. Amazon shows “out of stock “ or $6-$9 A CAN. Not something I thought there would be a run on during the pandemic

Dodgers ~I never knew anyone else even used it! I use it for a recipe of chicken enchiladas! Now I’m Hungry !

SP,

Hope all goes smoothly and that you are soon feeling better again.

Dodgers and Micmel...thank you so much for being here for me!!!

So I have decided to already be proactive and just research and schedule consults with a Radiation Oncologist (there were 2 very good ones at my current cancer center excellent on line reviews) and I also called a separate Nuerosurgeon just to get some info about cyber knife etc..from someone NOT associated with my cancer center..he got really really good reviews...I read over 40 - 5 star reviews for him all from people that had spine surgery. I am not jumping the gun that I will have to have that...but it can't hurt to have those appointments for consult lined up...right?

Plus I am waiting for my IR to review the MRI and report and call me to set up consult for TACE...

Had an MRI with and without contrast today of my lumbar and pelvic region. A different radiologist read each report. I'm sitting here on my second beer. It's not because I'm worried about what's to come. It's about the total difference between scans, biopsies, and more scans. I just can't with all the differences. I've been dealing with this crap since 2013. Can someone in the medical world please tell me what the F*** is going on with my body? Rant over.

love Tanya’s new pic! You look great!