Doctor told me not to worry but worrying is what I do best

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Klk121212
Klk121212 Member Posts: 4
edited July 2020 in Not Diagnosed But Worried

Hello All,


To start, I am a 30 year old, active woman, run almost daily, never smoked, drink socially, and have no history of breast cancer in my family. I also switched from a combo pill to a hormone IUD last fall. I've also recently lost 15 pounds intentionally through diet and exercise (after slowly putting it on over the last three years). They always said that you get comfortable in healthy relationships; I guess it's true. My breast are always the first thing to change size when I gain or lose weight though.

I have always had uneven breasts. My right breast has always been noticeably larger than my right, probably between a half and one cup size larger. I've always also had lumpy or fibrous breasts. A few weeks ago however, I noticed a good sized area in my left breast where the tissue felt a little harder than anywhere else. I brushed it off as I've always had fibrous breasts, and it seemed normal that the tissue would be more pronounced in my smaller breast. I thought I just noticed it because I lost some weight and my breasts got smaller.

Fast forward to last week, and that same breast also became a little tender and slightly painful. While I cant remember exactly if the pain started around the area of thickened tissue, that is now the tender area. I immediately freaked out and called my primary care physician. She got me in and did an exam. She considered it a 'normal exam' but also noticed the area of thickened tissue in my lower left breast. She said she felt similar tissue in my other breast but said it was less pronounced. She thought that it was probably because this breast was a little larger and had more tissue. She assured me not to worry and thought it was most likely fibrocystic changes due to weight loss and my IUD. However, she told me she ordered an ultrasound for 'peace of mind'. I try to repeat my doctor's words to myself, but Dr. Google has me convinced I have stage 4 cancer. She also thought I made the tenderness worse by obsessively checking the area. I've tried to stop, and while it seems better some days, I still notice a lot of tenderness around the area and a tiny bit of pain sometimes, especially after a run. I've never experienced any thing like this, so I'm very freaked out.

As far as I know, my doctor didn't rush an ultrasound because she wasn't worried, but I'm still waiting for my ultrasound to be scheduled. My appointment was only a few days ago and somewhat close to the weekend, so I'm sure that too is why I haven't heard from breast imaging. However, she never mentioned the word 'lump' during my appointment, but I read her notes in the after visit summary that got emailed to me, and she said, “healthy appearance but diffuse fibrocystic changes with cystic lump a 4'o clock'. I also told a friend, who is by no means a medical professional, who told me I should be very worried if I am having one-sided breast pain. That sent me in to a tail spin.

I'm just curious if anyone has experienced something similar. I'm trying to remind myself that the doctor told me not to worry, thought it was just fibrocystic changes, and understand that worrying does no good. Worrying is what I do best though unfortunately, and I've never experienced anything like this before

Comments

  • Beesie
    Beesie Member Posts: 12,240
    edited July 2020

    Hmmm.... so you believe Dr. Google (a notorious quack) and you believe your friend (who is by no means a medical professional) more than you believe your doctor?

    You have fibrocystic breasts. That's common - more than 1/2 of all women have fibrocystic breasts. Fibrocystic breasts mean that you may have lumpy fibrous breast tissue, and it means that you might develop cysts. Cysts are fluid-fulled lumps. They are harmless. Cysts are often painless but depending on where a cyst sits in your breast tissue, sometimes cysts cause pain. And while women who have fibrocystic breasts usually have symptoms in both breasts, one breast might be more affected than the other. So it is very possible to have one-sided breast pain with a benign cause.

    Over the years I've had more cystic lumps than I can remember. Some were palpable and very large - very noticeable by feel. Others were so small that I couldn't find them doing a breast self-exam, but a couple of these smaller ones were painful - I guess they were pressing on a nerve.

    Listen to your doctor. Go for your ultrasound. And stay away from Dr. Google and clueless friends who talk about things they know nothing about.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited July 2020

    Stay off Google. Stop poking your breasts.

  • Klk121212
    Klk121212 Member Posts: 4
    edited July 2020

    Thanks! I know goggle does nothing but cause worry, and I know my friend has no business saying anything. My fiancé was actually appalled she said that to me.

    I am trying to remain calm and remind myself worrying does nothing, but it's so easy to get caught in the “what if?" trap. After reading my doctor’s note that included the word lump, I feel as if I do have a large lump.I'm doing my best to stay busy and not to worry until I get an ultrasound. It's just easier said than done.

  • Beesie
    Beesie Member Posts: 12,240
    edited July 2020

    As I said, a cyst is a lump. Sometimes a really big lump. And completely harmless.

    Women are taught incorrectly that all breast lumps are bad. No, all breast lumps need to be checked out by a doctor and imaging, but most breast lumps are benign, either being cysts or fibroadenomas. And women are taught incorrectly that most breast cancer is caught because of finding a lump and yet many breast cancers don't form into lumps at all.

    The good news is that cysts usually can be identified clearly on ultrasounds, so if your concerns are caused by a cyst, hopefully the ultrasound will be able to provide a definitive answer.


  • B-A-P
    B-A-P Member Posts: 525
    edited July 2020

    Well Just wait and see what happens, If your appointment takes longer than you feel comfy, see if you can be put on a cancel list, or keep following up. I can certainly understand the worry.

    I did have this , and you'll see by my signature that I did have breast cancer.

    However! All my breast exams were "normal" and I also had very dense breasts (though small). No one could feel any issue with it, until I was given a breast exam sitting up and nearly relaxed (But this was after we knew I had at least dcis). Then you could feel how hard the underside of my breast was. It was wild. And when I had chemo, I could tell it was working because the area got soft again.

    What prompted a biopsy was that I ended up having nipple discharge as well. At first I was totally brushed off and then a few months later I demanded a biopsy bc it was bleeding. Then, came a dcis dx, then came more.

    Now this isn't to say that this is what you have. The more likely thing is that its just very dense area. It never hurts getting checked. Do try to stay off google. I find it never helps me. like ever.

    Follow up and get a second, or third opinion if necessary. And remember, It likely is totally fine.

    If it makes you feel better, I had the brca2 gene which explains why I got cancer and why I got it so young.

    good luck !

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited July 2020

    Hope all turns out OK for you. You're so young and you have that on your side. I agree with Beesie, not all lumps are bad. I have dense breast tissue too that feels lumpy, but it moves. What I remember distinctly about having a tumor is that it was hard and it did not move and I instinctively knew that it shouldn't be there.

  • Klk121212
    Klk121212 Member Posts: 4
    edited July 2020

    Thanks for all the replies. I wish everyone the best. The lump definitely moves. It just feels more dense and defined than other lumps in my breasts

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited July 2020

    If it moves, that's a good sign. It might be a lipoma, a benign fatty tumor.

  • Klk121212
    Klk121212 Member Posts: 4
    edited July 2020

    Thanks for your encouraging words. Breast imaging did call, and I have an appointment on Thursday. My breast pain and tenderness has subsided quite about (although still there), yet I’m noticing some sensitivity in my armpit...not pain, but it almost feels like the skin is chafed, but it’s not. It just makes me worry. Trying to stay busy though and stay off google.

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