TRIPLE POSITIVE GROUP

annie - best of luck on your tests, I hope this turns out to be a non issue

SpecialK - Thanks for your insight. You are a fountain of knowledge

I'm doing surprisingly well. I had surgery a week ago Friday (6/19) and I feel really good. They took my drains out this morning and, I have been doing something well post surgery that I cut my PTO in half and went back to work today.

Granted back to work is sitting on a couch with a laptop, instead of sitting on a couch with a remote control 😁

I had residual disease so I will most likely go to Kadcyla, I'll find out this week when I meet with my BS and MO. They also found micromets in the Setinel node but (if I read the Pathology report right) the 2 auxiliary nodes were clear. I'm guessing I will need radiation as well but, I won't know until Thursday.

All in all, it's not what I hoped but, the worst TCHP is over, and the Kadcyla support group i joined on Facebook seems to be mostly "this is a breeze compared it TCHP" so that's promising.

Morrigan - glad you are doing well! Gives me hope for my BMX in August. Why would they switch to Kadcyla from Herceptin/Perjeta? Wondering that - I already know I had one positive lymph node from by diagnosis biopsy, but I'm on TCPH.

Kris

The test, CA 27.29 was 15 in October, 2019, 34.5 in May, 2020 and 41 last week. I finished HP on January 21, 2020.

SpecialK - Thanks for the information. I feel somewhat better.

Morrigan - I am so glad you are doing well.

Good Luck!

Yeah, mine shrunk, according to my Dr there was 10% left 😕. So it got most but, not all.

What is the general consensus on soy? I LOVE sushi and Chinese food, which comes with it's fair share of soy sauce and edamame. I also bought some Kind protein bars and saw that they contain soy as well. Is soy a no go for life with triple positive?

During chemo, I just ate whatever tasted good, with an emphasis on proteins. (Chemo can temporarily affect your sense of taste.) I also drank non-caffeinated drinks all day.

Is the soy protein isolate what is found in protein bars? The whey protein powder I bought is soy free, thankfully. But I am looking for ways to increase my protein intake.

smichaels - yes, soy protein isolate is in many protein bars. I like the vegan protein powder made by Plantfusion, it's pea protein. I make a shake with frozen strawberries, ice, the powder (1 scoop) and almond or coconut milk. During chemo I ate more red meat than usual, but also ate Greek yogurt, almond butter, quinoa, scrambled eggs, and fortified cereals to try to increase my protein intake.

Smichaels11 - I just had an appointment with my nutritionist a couple of weeks ago and asked her some of the same questions. She said that I would need to try and eat between 90-110 grams of protein per day. She said if I didn't think I could get that much, she told me to use protein powder. Her choice was "Orgain" Plant Based Protein Powder which is Organic Pea, brown rice and chia seed protein. I had already purchased the Plantfusion from an earlier post by SpecialK that I found when I searched for protein powder this site a while ago. She said that I should not eat more than 1 serving of red meat once per week. I can't remember why now, but that doesn't bother me because I mostly eat salmon and shrimp for protein and now some chicken breast. She said that soy is ok in food form, but not supplements. She sent me an article, Soy and Breast Cancer. Copyright is 2013.

smichaels - I struggled a bit with steak, mainly because rather than things tasting bad, they just didn't have taste. The texture of steak when I couldn't taste it made it harder to eat - kind of cardboardy (not a real word), but I did have it on occasion with sauce of some kind. I did eat more ground beef - in the form of cheeseburgers, lol! This was mostly an effort to keep my RBC and hemoglobin up. Normally I'm a salad girl, but I did eat a lot of cheeseburgers in the last week before the next infusion. I tended to eat what I could tolerate in the first two weeks, which was usually smoothies, scrambled eggs, Greek yogurt, melon, and potatoes in any and every form.

Edited to add - while it is great to go into chemo with a healthy eating plan - and many can maintain that, you may face challenges in following through depending on your side effects and how you feel. Don’t feel bad if you have to resort to whatever it takes to get through - there is time to establish an optimal eating plan afterward. Cheeseburgers and loaded baked potatoes are not really part of my healthy eating regimen, but they helped me make it to the other side so I could carefully consider how I wanted to eat going forward from there

i wonder if that's why my Blood Counts were borderline? I was trying to stick to the Mediterranean Diet so no red meat (I ate shellfish, chicken and turkey).

It took a full month for my platelets and hemoglobin to bounce back

The ice cream craving is real! I dont usually eat sweets, but I think because of the weather (and my 5 year old) I really have my heart set on it. I am trying to abstain from all dairy at the recommendation of the onco nurse. Dont want to deal with the after effects, but it's really hard! I am hungry but when I open the fridge nothing seems good

Anyone have any good non dairy ice cream recommendations?

I am going to go for a grilled hamburger for dinner though, with a Miller Lite or two because DAMNIT I want some normalcy.

I was told diarrhea.

If you are sensitive to any of the proteins in dairy, the Big D can be an issue. Of course, both Herceptin and Perjeta can also cause it, and some on chemo with no Her2+ targeted therapy also can have it, so trying to narrow that down is somewhat difficult. When I eliminated dairy I found the SO Delicious, no sugar added, coconut milk ice cream. It is not like premium ice cream, but it is not bad.

https://sodeliciousdairyfree.com/dairy-free-foods/dairy-free-frozen-desserts/coconutmilk/no-sugar-added-vanilla

Agree with wahoo on the soy, not a fan of tofu so no loss for me there. When I infrequently use soy sauce I usually use organic tamari that is gluten free.