Blessed and good appointment yesterday!

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toria1212
toria1212 Member Posts: 136
edited June 2020 in Just Diagnosed

I met with my BS yesterday-she is AMAZING. 27 years experience, head of breast center at an adjunct hospital. She spent 90 minutes with me going over every detail of my diagnosis. First thing: NO MRI....the night before at 2am, I was awake and alone and bawling and lost in this process of fear and anxiety. More than anything, I fear the poking and the prodding. And she squelched my fears in the first five. The office was super quiet as I was alone. She first did a manual breast exam then allowed me to dress before we began our conversation.

She confirmed my diagnosis and added Stage 1A, which I did not know yet. She said area is 4mm, just so small that she fully recommends a lumpectomy. She went over every detail and told me that instead of the regular group meeting with her, Medical Oncologist and Pathology Oncologist, (due to the virus), each will meet with me separately. Surgery is scheduled for May 11, and she explained that in detail as well.

She said unless pathology post surgery indicates something else, she is thinking radiation, maybe even the accelerated one week treatment, then five years of hormone suppressor. Her kindness and knowledge grounded me and helped me to BREATHE. Her reassurance and years of expertise helped me to believe in her. I truly felt blessed to have her placed in my path as my Dr. She showed me real life pics of lumpectomy recovery as well as a masectomy, and a masectomy with implants.

The truth is that the knowing AND the plan in place helps sooo much to let you breath a little, and to now feel like someone is "in it" with you, your Drs., AND their expertise and wisdom. I had a list of about 20 questions which she intermittently answered throughout our conversation.

I felt so grateful and my fiance and children were/are so thankful that this appears to be caught very early on. After my research the night before, I asked her pointed questions about side effects and that THOSE scared me quite a bit. Her response what that if a medication is not working, then we will find one that does. She said to me, "I will be with you for the next five years." We also discussed our teen children and the effects of them being home from school extended. So, two mothers connecting, talking about kids and fitness, and she happens to be my breast cancer surgeon.

I was told that I would hear from the Nurse Navigator next to schedule the other appointments and provide any other information. The kindness of the office(I only saw women when I was there) was sooo comforting and reassuring to me...

I took yesterday "off" from looking at all things BC. I was given a great tote and all of my records were copied and so I need to organize those and my notes. I began a google.docs journal of sorts from Day 1 of my diagnosis. I've already received two medical bills, but I am going to focus on my path to wellness and try and not fester over the negatives, which I cannot control.

I treated myself to this AMAZING Indiana chocolate drizzled popcorn and a 'free' evening with my kids. Being cooped up at home has benefits-cleaning and organizing, spending time with my great kids, but I can go down the path very easily to fear and uncertainty. Michigan is a grey state, but the sun is blazing right now, so taking advantage of clean windows and a spring(ish) view of the beautiful outdoors.

I pray you all have a blessed day and appreciate the wealth of information and support I have already received here, less than one week into my journey.


Comments

  • Bellevue1110
    Bellevue1110 Member Posts: 29
    edited March 2020

    toria, how wonderful! Thank you so much for posting your experience...what a comfort to others too! Blessings on the next steps!

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited March 2020

    Never heard of a pathology oncologist. Perhaps it was radiation oncologist?

  • cm2020
    cm2020 Member Posts: 615
    edited March 2020

    I just found this post. I am so glad everything went so well. I have never heard of a pathologist oncologist (i meant to ask you about that in my thread). Why don't you have to have an MRI? I dread that more than anything. The chocolate popcorn sounds delicious!

  • toria1212
    toria1212 Member Posts: 136
    edited March 2020

    cm2020,

    Oopsie, with all of this new BC info, I misspoke, Radiation Oncologist....dear me...YES the popcorn is da bomb. I am also drinking green tea every morning now. I am a total tea lover, but green tea is not my fave, but said to be good for you...baby steps, hm? Have a blessed night


  • Nana2-8
    Nana2-8 Member Posts: 66
    edited March 2020

    toria1212 and cm202.....like a little (or big!) Mother Hen, I am so pleased that you two have connected thru this mysterious journey we are all on. I'm the 'old lady' of this April surgery group...oh, wait!...I just got pushed into the May group! Anyway, I'll be following you two! Make Mama proud! Which one of you is from Michigan and which one does their praying in the shower? Gotta love it!

  • toria1212
    toria1212 Member Posts: 136
    edited April 2020

    Nana2-8

    I wrote to you days ago but it disappeared? Anyway, thank YOU for your kind words and encouragement. I now live in Michy(11 years and going strong-always hoping for sunshine!) and I pray in the shower, and the car, and the laundry room, you get the picture...

    My MO appointment is on Thursday and honestly with the COVID19 exhaustive anxiety et al, I have not had much energy nor time to think about/focus on my appointment. My surgery is still scheduled for May 11 but I am so afraid that with the virus situation, it will be delayed.

    I hope and pray that you are well this week and that you continue to be the positive light that you are!

    (((hugs)))

  • Nana2-8
    Nana2-8 Member Posts: 66
    edited April 2020

    Thanks, toria1212! ~ Aren't you a ray of sunshine? What a nice way to start my day! Trust me, I know all about the lack of energy and praying everywhere and anywhere. I think the lack-luster energy might be because I am not sleeping well...can't seem to turn off my brain...(no matter how many Hail Marys I repeat) and combine that with the world focus on COVID19. My new surgery date is now May 18th.....but I'm not holding my breath. I won't be surprised if that date gets adjusted again. ~ Pop in and let us know how your appointment goes on Thursday. (p.s. ~ I was a Upper. Know what that is?)

  • toria1212
    toria1212 Member Posts: 136
    edited April 2020

    Nana2-8

    Lol, Yes, I know the "Upper"-we have lived here for 11 years. It has been WONDERFUL exploring and discovering this beautiful state. Coming from western PA(Pittsburgh area), I will never adjust to the flatness of other areas(We lived in western Ohio boo hiss! for a long time and man, it was FLAT)

    I have a phone consult/video chat maybe with my MO today. She has rave reviews of being empathic and wonderful. After researching tamoxifen, etc, I am reduced to an hysterical puddle this a.m. I call out to God, I need Him. So much courage here, so much support and freakin' INFORMATION. I take two blood pressure meds, one has tanked me as a person. I used to be the energizer bunny, but now lack motivation and drive. It has hurt my heart and spirit, the change in me, but blood pressure is stable. And now this....more fear for what is to come with the meds...ugh.

    I'll keep praying for us all. Sunshine here(finally!) in Michy for a couple of days. We will social distance outdoors later lol. I hope your day is blessed and sunny!

    xx

  • msphil
    msphil Member Posts: 1,536
    edited June 2020

    great news sweetie hang in there. Keep your spirits up with Hope. msphil idc stage2 0/3 nodes 3mo chemo before and after Lmast got married was engaged making wedding plans at diagnosis then 7wks rads and 5yrs on Tamoxifen. Survivor of 26yrs this yr Praise God.


  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2020

    Wow great news! It's critical to our health care that we have wonderful docs as you seem to have found. They really can influence how well we heal and recover. I wish all docs were like yours. Congrats!

    Claire in AZ

  • toria1212
    toria1212 Member Posts: 136
    edited June 2020

    @msphil Thank you for the encouragement! I need it in bunches lately. So happy to hear you have done so well. Praise God indeed!

    @claireinaz AZ is my happy place :) I am beginning my radiation journey and it overwhelms. I so appreciate the support and kind words! Thank you

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