Lump isn't a cyst

Options
Fitmom04
Fitmom04 Member Posts: 74
edited July 2020 in Not Diagnosed But Worried

I found a lump, had my mammogram and ultrasound. Mammogram found nothing and ultrasound saw it. Had my biopsy last Thursday and the radiologist said he thought it was a cyst but said it isn't as it didn't collapse or whatever it was when he punctured it. I have an appointment on the 17th for the results but I am terrified. I'm trying not to be, but I am so scared. I keep thinking they are going to call me before that. Is it normal to be so scared like this? Am I overreacting?

Thank you for listening

«1

Comments

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited June 2020

    I always wonder why women don’t do this over their pap smears. Same thing. You are getting a test for somethingthat most likely isn’t cancer.

  • Jons_girl
    Jons_girl Member Posts: 696
    edited June 2020

    fitmom: Absolutely not overreacting! Most of us go through this. Many postings here of women who have had to wait for results. Especially if you’ve had cancer in your extended family, that’s normally where our brain goes to the ‘what if’ scenario. I think it’s pretty normal actually to be worried.

    My advice tho.....your results more than likely May be back already. I had my biopsy on I believe a Thur and was called the following Monday. So if I were you I’d call your dr office and ask if you could have the results told to you. You should not have to wait til the 17th!! Goodness! I can’t believe they are making you wait that long for results.

    You also could email the dr. If you have mychart electronic type of chart system where you are located. You could email the dr and ask for the results.

    Let them know how much stress your going through either in a email state this or talk to the receptionist or could leave msg for the doctors nurse.

    But keep calling or emailing. If you don’t hear back keep bugging them. That’s ok.

    Just my two cents. 😁

    We are here to support you. Hang in there

  • Jons_girl
    Jons_girl Member Posts: 696
    edited June 2020

    fitmom: Absolutely not overreacting! Most of us go through this. Many postings here of women who have had to wait for results. Especially if you've had cancer in your extended family, that's normally where our brain goes to the 'what if' scenario. I think it's pretty normal actually to be worried.

    My advice tho.....your results more than likely May be back already. I had my biopsy on I believe a Thur and was called the following Monday. So if I were you I'd call your dr office and ask if you could have the results told to you. You should not have to wait til the 17th!! Goodness! I can't believe they are making you wait that long for results.

    You also could email the dr. If you have mychart electronic type of chart system where you are located. You could email the dr and ask for the results.

    Let them know how much stress your going through either in a email state this or talk to the receptionist or could leave msg for the doctors nurse.

    But keep calling or emailing. If you don't hear back keep bugging them. That's ok.

    Just my two cents. 😁

    We are here to support you. Hang in there

  • Jons_girl
    Jons_girl Member Posts: 696
    edited June 2020

    Melissa: I think some of us do worry over results for ovarian cancer tests. I never was concerned over a Pap test. But I had a scare over the past year regarding a wonky ovary. Was being watched. But I’m in the clear now.

  • Fitmom04
    Fitmom04 Member Posts: 74
    edited June 2020

    we can't email here, we don't have that option. I will try and call to see if they have anything for me. This wait is killing me.

    And thank you.


    Melissa: I did worry about my pap tests as I had a scare years ago, so that thought is always on my mind.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited June 2020

    My experience has seen that if there is a high probability of something being cancer the patient is told that at the beginning. Conversely, if someone is told that something has a low risk profile, like a cyst or something similar with a low-risk-appearance, more often than not they are told that too. Can they “cross over."? Sure, but things that don't look very concerning usually turn out to be okay. Does making yourself sick change anything? No. Worrying does not change what already is. Can't count the people who come here and literally make themselves ill and wallpaper the board with lots of posts for weeks over something that turns out to be benign, often when all indications pointed to that from the very beginning.

  • Mavericksmom
    Mavericksmom Member Posts: 635
    edited June 2020

    Fitmom04, you have every right to worry. I had breast cancer twice and I have to say the WORST part, was waiting for the biopsy report! You are helpless during that time, it is just a waiting "game." Ironically, if it turns out to be cancer, you change from panic mode to "ok, so now what do I do about it" mode. This is not to say you won't still worry, but the feeling of doing something changes it to a "more positive worry," if that makes sense. The second time I was diagnosed I didn't worry at all about my biopsy results because it had been 15 1/2 years since my first diagnosis and I was 100% sure it wasn't cancer. Actually, that ended up being worse for me because I went into shock and remained in that state well after my mastectomy.

    Did you get your ultrasound report? If not, get it. If you have a patient portal it should be on there, if not, call wherever you had it done and get the report. There are words on that which will indicate whether or not it is cancer. Of course only a biopsy can tell for certain, but there are indicators. I agree with Jons_girl, you should NOT have to wait until the 17th. That said, with both my biopsies I had to wait a full week, had biopsy on a Tuesday with results the following Tuesday.

    Wishing you the best. If you get the report, can you post again on here? Like I said, there is terminology that can help you to know if it sounds like cancer or just something else. I am so sorry you have to go through this!

  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited June 2020

    You are not overreacting, you have every right to worry. That’s way too long of a wait to get results I would call and ask just for peace of mind. I received my BX results within 48 hours, I believe it was even the next day.

    Best of luck to you. Hope everything is fine.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited June 2020

    Here’s where I disagree with most of you. How in the world do you think it is kind or helpful to validate irrational fear? If you read closely on most of these posts, most of these women posting in “not diagnosed” forum have been assigned as little as a 10% to as much as a 30% chance of being diagnosed with cancer-in other words, not likely. I can’t understand how you think it is kind or helpful to encourage them to cry and puke and starve for a few weeks, just because you did just that (and taking into consideration all the women who go away and don’t post anymore, instead of only the diagnosed folks here) You are validating their experience, not because it is helpful, but because it is how YOU FELT. Bear in mind you are the outlier. Most of the women who came through here did NOT have cancer. Even if they DO have cancer, how do you think your encouraging them to be fearful and terrified helps or changes a single thing? It doesn’t. At this point if they do have cancer they know nothing helpful as to planning or coping

  • Each_day_2018
    Each_day_2018 Member Posts: 154
    edited June 2020

    Melissa, I agree with you there...there is no need to validate irrational fear. HOWEVER, in my experience, I think if someone is worried, they should push to get answers for peace of mind, so if that means a second opinion or additional appointments, so be it. I don't thinking extra worrying will help or solve any problems....Only action can get most the answers they need.

    I had a palpable lump at 29 that I was concerned about. I went to the dr, had a mammo, followed by an ultrasound, and followed up with a breast surgeon. Nothing showed up and the BS did not recommend a biopsy at that time due to my age. Because no one else was concerned, I wasn't either...so I waited nearly 2 years before going through the whole dr/mammo/us again. If I had pushed then, my outcome might have been different. But I didn't want to be that pushy person with irrational fears.

    I don't think the other posters are pushing for fear...I think they are pushing for answers and peace of mind. The only way you would know is by biopsy. And if it was to the point that the OP needed a biopsy, it is concerning and I think her fear should be acknowledged. The unknown is scary...sometimes more so than knowing.

  • Fitmom04
    Fitmom04 Member Posts: 74
    edited June 2020

    Melissa, I'm sorry you feel that some of us posting on here are just worrying for nothing. But some of us, like me, have nobody to turn to and vent. Therefore we vent on here as it is the only place we have. And yes it might be nothing but yet again, it might be something, and it is my right to worry about my outcome. And if you don't want to support me than that is fine, just move on. No need to be rude about it and make people feel like they don't have a right to post and ask for support when there is no support elsewhere.


  • Beesie
    Beesie Member Posts: 12,240
    edited June 2020

    Each_day, I understand your point, but right now Fitmom has had a biopsy. There is nothing she can do but wait for results. Presuming the results, presuming that she will need more tests or need to push for more answers or have to go for second opinions... these presumptions just lead to more worry, which quite possibly is completely unnecessary worry. Her biopsy result might be perfectly clear. It will hopefully be fully benign. And if it's not, well, without knowing the result, there is no advice we can offer now about what to do next; the next step is entirely dependent on what the biopsy report says.

    Of course, if someone is waiting for biopsy results, it is normal to be scared. It is normal to be worried.

    But being scared and worried feels miserable, and frankly, it's not good for our health. Most of the time, it will turn out that we were worrying for no reason. So rather than accept feeling scared and miserable for days or weeks until the results are in, it's much better to figure out how to minimize these fears and the amount of time you spend worrying.

    There are lots of ways you can do this. One thing I do is remind myself that the odds are in my favor, and in all likelihood I'm making myself miserable for no reason. Since worry is something I can control, that's not very smart, is it? I also remind myself that whatever the results, worrying now isn't going to do me any good - if the result is good then I made myself sick with worry for no reason, and if the result is bad, the worry now isn't going to change that or help with what comes later.

    Another thing to do is to create a time when you worry and then to not allow yourself to have these thoughts any other time. I often post about how I give myself a figurative "slap upside the head" when I want to change my thought process and knock worrying thoughts out of my head; I actually visualize it when it when I do this. That's very effective and the visual always makes me smile, which helps me get the worrying thoughts out of my head.

    More common advice from around here is to keep busy. Do things that force your mind to think about something else. Attack those tasks that you've been avoiding. Clean up all your drawers. Or just get out and take a long walk and marvel at the beauty of the season.

    It is normal to be scared, but it's not a healthy to be scared. So don't accept it and instead figure out how to deal with it. Come up with a technique that works for you. It's a handy skill to have in life because we all encounter situations that scare or worry us. Having a technique available in your pocket that you know helps you get through stressful times is a very good thing. If you don't already have this skill, this is a perfect time to develop it.

    Edited to add: Fitmom, I don't think Melissa is being unsupportive of you. I think she is pointing out that telling you that it's okay to be nervous and stressed and to focus on the possibility that you might have breast cancer isn't going to help you get through the next few days until you get your results.


  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited June 2020

    I agree Fitmom. No need for negativity, sad when I see that on here. Of course being worried and stress isn’t good for your health but it’s a part of life. Especially when going through something like this. We would obviously shut it off and not worry or stress if it were that easy.

    Again best of luck to you, hope you get benign results. I’m here if you need anyone to talk to 🙂

  • Each_day_2018
    Each_day_2018 Member Posts: 154
    edited June 2020

    Beesie, those are great suggestions and I do believe staying busy is the ultimate distraction. Easier said than done though and we can't blame a person for worrying. There are so many women here who have a wealth of knowledge and experience to offer. Let's use that for good, esp with those who are scared! If you have never been scared or had what they thought was a cyst that didn't collapse when punctured (as noted in the original post), move along and don't say anything at all. Not every post is going to apply to every person.

    I would think that BCO is the exact place someone should come to with their fears and worries. And those of us who have had a diagnosis know what that fear and worry is like even before being diagnosed, so who are we to judge? I have a mammogram this week...I'm terrified. Last time I had a mammogram my whole life changed. But I can't talk about that with my family or friends....they don't get it. That's why I come here. I read other women's stories and ask questions. I don't think we should discount Fitmom's feelings. Fitmom, you ask and vent away!

    Edited to add: We don't know, but a number of people could be going through a similar situation and be too scared to ask. I read through posts on here for years before I ever posted!

  • Jons_girl
    Jons_girl Member Posts: 696
    edited June 2020

    Fitmom: what you said above was very well said! I’m here for you. 100%

    Beesie: yes completely agree keeping busy is what I try to do.

    Let us know how it goes chatting with yr drs office. Hopefully they give you results today. Sending a hug your way

  • edwards750
    edwards750 Member Posts: 3,761
    edited June 2020

    I agree with trying to get the results ASAP. That is a long wait. I got my results 2 days after my biopsy. Also I love the people who you not to worry or avoid stress. Exactly how do you do that? Like you planned on being stressed?
    We have all walked in her shoes so we know what the fear factor is. Keeping busy is helpful but I see nothing wrong with trying to speed up the process. Sometimes I wish the medical people who have not had to wait on a test would experience what it is like to wait.

    Praying for good results.

    Diane

  • Beesie
    Beesie Member Posts: 12,240
    edited June 2020

    There is a subtle difference between acknowledging fear and sanctioning or even encouraging fear. I don't think it is ever supportive to do the latter, even if the individual is expecting a bad result (a BIRADs5 biopsy, for example). I'm not saying that anyone here was doing that, but subtle differences can easily be lost in a short written reply.

    My point in my previous post was that it is possible to learn how to manage worry. No one plans on being stressed and we can't avoid stressful situations, but if you become stressed, there are techniques you can use to reduce the stress. The same things won't work for everyone, but everyone can figure out what works for them, if they try. For me what works is that figurative slap upside the head, as I visualize knocking some sense into myself. I came upon that in a very different situation, over 30 years ago when I was in a work environment that was enormously stressful. I'm female and Jewish, and a new boss came in who the whole company nicknamed "the misogynist Nazi". After a while when I realized that the situation was making me physically sick from stress, I made a concerted effort to figure out how to deal with it. From then on I managed just fine (and after a few months found myself a terrific job at another company). I have used that stress reduction technique often in the years since, particularly when waiting for test and biopsy results. It doesn't mean that I never freak out with fear, but I've learned to limit how much and how often that happens. For example, if I'm waiting for a phone call with results, I'll go cold with fear every time the phone rings, but otherwise be okay.

    Fitmom, I hope that your biopsy results are indisputably benign, so that you can put this behind you. And if they are not, you will get through whatever is thrown at you.


  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited June 2020

    You know what I did the day after my biopsy? I went to an awesome, rockin' concert and had the time of my life. I might have a different perspective because I'd had cancer before, and I might have been a little nervous with that first one - but the gynecology oncologist surgeon was a patronizing prick who didn't give me much information. So when I went through the whole test test test test kerfuffle with breast cancer, I wasn't particularly scared or emotional, I felt like an old pro in the cancer world. Which came in handy when I was told I had kidney cancer just a few days before the breast surgery! I have yet to cry or get myself in an emotional knot over any of them. Even with the first one, I got the phone call at work, and as soon as I hung up, I resumed typing the email to a client that the call had interrupted. As Melissa said, how you react is a choice. I was raised by a chronic worrier, and she stressed EVERYBODY with it, including the dog. So my choice from decades ago was to NOT be a worrier. And I'm not. You can retrain your emotional reactions, and leave much more time for the cool things in life - or even have more energy for tackling the not-so-cool things.

  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited June 2020

    Each day good luck with your appointment this week. Hope all is well 🙂

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited June 2020

    Okay, Of course I fully understand that we are going to be concerned and worried, within rational limits. Do I feel it is helpful to have multiple threads (the same people are going to respond to all your “not diagnosed” threads) endlessly asking for validation and reassurance? No. Nobody here can tell you if you have cancer or not. Do I think it is helpful to have endless strings of “Oohh, it is so scary.Isn’t it SOOO scary? threads? No.I think it is helpful to have rational responses that you most likely do not have cancer. I do not understand why anyone would find that offensive rather than reassuring

  • Jons_girl
    Jons_girl Member Posts: 696
    edited June 2020

    Fitmom keep us posted on what results say if you don't mind sharing. We are here for support.

  • Fitmom04
    Fitmom04 Member Posts: 74
    edited June 2020

    I got a hold of my nurse practitioner and she said tests aren't finalized yet. But right now it just says atypical papillary lesion. So more testing is being done. So no real answers yet.

  • beep7bop
    beep7bop Member Posts: 130
    edited June 2020

    Ok, for the ones that don't know I was here last March 2019, I did have cancer had double. turned out I had cancer in both breast upper and lower and it was IDC and ILC stage 1 grade 1 and 2 ER + PR + HR-.I am now back in the testing mode due to new mass 6mm by 6mm.I will have core needle biopsy on June 17. I thought I was done back December 31 when I had my implants put in I guess I may have been wrong, I hope that everyone comes out on top of this. Because the waiting for results is awful. I can handle anything with GODS help. BE STRONG but give yourself the right to cry, scream and just BE!!!

  • Fitmom04
    Fitmom04 Member Posts: 74
    edited June 2020

    thank you and positive thoughts to you beep7bop

  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited June 2020

    Fitmom04,

    I totally get why you are stressing. I did the same. Cried myself to sleep and stayed in the bed practically until my biopsy results were in. It's the fear of the unknown, and its totally NATURAL. It's not fair to say "don't stress" or "why are you stressing?" You do you. Tomorrow is the big day, correct? No matter what it is, you'll be fine. Take it from an "expert," the waiting game is the absolute worst. You're almost there. Feel free to PM me if you wish. Thinking happy thoughts....

  • Fitmom04
    Fitmom04 Member Posts: 74
    edited June 2020

    yes tomorrow is the day. I am very nervous but anxious to get answers.

  • Fitmom04
    Fitmom04 Member Posts: 74
    edited June 2020

    had my appointment this morning. Still showing atypical papillary lesion. They will remove it for further testing. So now waiting for that.

  • kathinohio
    kathinohio Member Posts: 16
    edited June 2020

    Hope you're hanging in there! Praying that it's benign and you find out sooner rather than later.

    The waiting is the hardest part for sure.

  • Fitmom04
    Fitmom04 Member Posts: 74
    edited June 2020

    @kathinohio I'm hanging in there. I finally got a copy of my biopsy report and the preliminary report says complex papillary lesion, concordant. And the final copy says complex atypical papillary lesion and definite classification will be done in the resection specimen. Waiting for a call to get a lumpectomy.

  • Fitmom04
    Fitmom04 Member Posts: 74
    edited July 2020

    well my lumpectomy is Tuesday morning. I have to be there for 7:30. It's weird, before my biopsy my lump felt like a pea, and now it feels flat and more elongated. Not sure if it's because of the biopsy that it feels like that.

Categories