Cocktails?

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Ttlili
Ttlili Member Posts: 14

Just curious how many of us still enjoy cocktails or wine? Not a heavy drinker but newly diagnosed metastaticand I could really use a glass of wine.

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2020

    Hi Ttlili - I think it depends on what medication you are on but my onc allows me 3-5 glasses of wine/cocktail per week.

    I am not a heavy drinker either, but I am social.


  • Lee64
    Lee64 Member Posts: 184
    edited June 2020

    I asked my Onc if I could have a glass of wine for Thanksgiving and she said it was okay. I do enjoy a nice cold beer a couple times a week. I don't think we should have to give up everything we enjoy!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2020

    tTlili,

    I was have lived with stage IV for almost 9 years with no progression. I am not a big drinker but when I want a drink I have one and enjoy every drop without a bit of guilt. Have that glass of wine 🍷

  • Ttlili
    Ttlili Member Posts: 14
    edited June 2020

    That’s incredible! I am newly diagnosed with multiple met to bone & lungs. Would love some words of encouragement, I have 2 small children, and I’m so scared Any advice would be appreciated. Did you make any diet or lifestyle changes, medications? Thank you❤️

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2020

    The short answer? No. I ate a healthy diet, was not overweight, active, etc. before my dx. For a short period after surgery I tried to be super diet conscious with green juices, no sugar, no exceptions! My younger dd was unmarried and living with me and became the food police and we fought. This was not living and so quickly abandoned. I still eat well but if I want a treat I eat one. I am not compulsive at all. I know that this is not the approach for everyone. We have members who are involved in all sorts of regimens and protocol, diets, supplements etc. For me, a grandmother, my treatment decisions may be quite different from yours. I may well have done “more” if I had young children. The truth is I have been fortunate enough to live my life fairly normally, without mets progression for longer than most and no one can really explain why. Take care and ask away when it comes to questions

  • Ttlili
    Ttlili Member Posts: 14
    edited June 2020

    Thank you for taking the time to share, I truly appreciate it

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2020

    my MO told me occasional drinks were okay, too. I usually only had one or two on holidays or special occasions, and have continued to enjoy a cocktail or wine once in a while.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2020

    My MO told me I probably shouldn't drink the evening after chemo. Otherwise no restrictions.

  • Sadiesservant
    Sadiesservant Member Posts: 1,995
    edited June 2020

    Hi. I’m probably a bit of a rebel but I don’t buy into the idea that I am going to influence my outcome by sticking to any particular diet regimen. I generally eat a very healthy diet with lots of fruits and vegetables and I am quite active, walking several times a day with my dog. I enjoy my wine and don’t deprive myself of anything really (I eat sugar but am not a big fan of excessively sweet things.)

    My philosophy has been shaped by my journey. I was originally diagnosed at 38 and always felt that the odds were stacked against me somewhat given my age and some of the characteristics of my cancer with lots of vascular and lymphatic invasion. It took a long time to start feeling like I had a future but there has always been a part of me that has focused on living each day to its fullest as you never know.

    I had a pretty good run with that philosophy, making it almost 16 years from original diagnosis. Now, I just don’t see the rationale for changing that philosophy. I enjoy my life on the days when I feel well enough to do that knowing there will be many days when that won’t be the case. And I can say that in the last three years there have been numerous times that drinking a glass of wine was the last thing I wanted to do.When I had a lung full of fluid, when I was on Taxol, when I had pneumonia and when I started Verzenio wine was vile. So, when I’m feeling well? You bet! You only live once!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2020

    You may also find that your sensitivity to alcohol changes once you start the drugs. I find that having any alcohol regardless of time in the cycle makes me feel not that great, so for the most part I have cut it out completely. I was never a huge wine person, however, and now if I have to drink I either "just have a sip of partner's beer", have a scotch and soda or just the soda with some lemon squeezed in. No one can tell its not a gin and tonic! :)

    Like Sadie I go by what my body wants - some days nothing is going to work but a pizza, so I get one but from a place that does more Neapolitan style with the fresh tomato sauce and far less mozz than say Dominoes. Other days I cannot eat enough of my favorite spinach salad. Some mornings I just want toast, others its scrambled eggs and vegetables. I try to keep snacking to a minimum and don't drink my calories, but other than that I go with the flow. I don't get the point of self deprivation at this stage - I've already been deprived of years of my life, why shouldn't I have that pizza if I want it?

  • Chico
    Chico Member Posts: 196
    edited June 2020

    Hi Ttilli. I was 12 years from bc Dx to mbc Dx of extensive bone mets nearly 4 years ago. I am a vegetarian but I love carbs and sugar and eat lots of chocolate. I also drink wine and champagne whenever I want although I am not a big drinker but enjoy a small glass a few times a week. I don’t do any real excessive per se but walk my Wolfdog across the fields everyday and am pretty active. I have accepted my position but I am hopeful that immunotherapy may be on the distant horizon for Er+ Her- peeps. In the meantime I live and love the life I have and am far toohedonistic to give up the things I like. However if they said I could be cured but had to change my eating habits you betcha I would. Good luck to you and everyone else whatever your regime.

  • JFL
    JFL Member Posts: 1,947
    edited June 2020

    I don't drink too often but will definitely enjoy a glass of wine occasionally. I haven't really changed my lifestyle. I eat generally healthy but do indulge in pizza, chips, fries, burgers, sweets, etc. regularly in small amounts. Everything in moderation. The majority of what I eat is super healthy but I don't deny myself when I have a desire for those foods. I ate very healthy before all this for my entire life and it didn't prevent me from getting BC at 30 and mets at 38. Thus, I figure for me there is something bigger going on.

  • Elderberry
    Elderberry Member Posts: 993
    edited June 2020

    Ttlili: I asked my MO if it was okay to have wine or maybe even a martini. He said "Of course. Why do you think we are doing what we do? So you can enjoy life" I am with Chico, though. If I was told it was a matter of life or death if I had a "beverage" I would stop. In the meantime - bottoms up!

    Cheers!

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited June 2020

    My MO said okay to occasionally glass of wine. I work part time at a winery! So maybe a small glass every two weeks special occasion.

    Since my DH doesn't drink and I only drink a small amount of wine, I pour the rest of bottle in small half pint canning jars with a little room at top. Then freeze. I do not like the wines in small bottles/cans you buy in stores.

    Works perfectly. I have only done this with dry whites and dry rose and the aroma and taste aren't changed that much. Have not tried this with reds. This advice came from a winemaker.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited June 2020

    Ttlili, I don't see any problem with having an occasional a glass of wine or other alcoholic drink. Abstaining doesn't cure us of cancer, so why deprive ourselves? We get so much enjoyment from food and drink. I don't drink much, but I am quite sincere when I say the pairing of a classic margarita with chips and salsa has got to be one of the most exquisite food and drink combinations I have ever had the pleasure to enjoy. I’m not giving it up.

    I do my best to savor the enjoyment. A couple times since my diagnosis, treatment affected my taste buds so that food did not taste right or taste good. The first time was just after diagnosis in 2011 when I had iv chemo and that lasted about a year. Then last year I was on Ibrance and then Verzenio, which greatly affected what I ate and drank. It was the first time I can remember not having a glass of champagne on New Year's Day, which I dearly love, and when I did finally have a glass of it, I was nauseous and out of sorts. I'm on different meds now and appreciate that my taste is back to normal.

    And this has nothing to do with anything, but I'm a day drinker. When I do have a margarita or glass of wine, I like it sometime between noon and six pm. Any later and I find I don't sleep well. Other than that, I drink water all day long.


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