ILC oncotype score

Mine was 16

When I was originally diagnosed in 2007 at age 38, I was Oncotype 18. Had a local recurrence 8 years later while on Tamoxifen. New primary contralateral side two years later, quickly spread to my brain. No rhyme or reason to this shit.

See the recent report on Lobsig.

Mine's 33, 0 out of 6 nodes

My oncotype was 13 and a 13% chance of recurrence with AI's.

My oncotype score was 21. All it was for was to predict if chemo would benefit or not.

Yes, it gives a recurrence score too, but I don’t care or believe in those!

I am on the cancer conveyor belt, th one size fits all treatment plan for my cancer, where they push AI’s. My prescription is going to run out about a two weeks before my MO appointment and I honestly don’t know if I will refill it.

jesse, your biopsy pathology should also be considered oncodx is just one piece of information to help decide treatment.

I have either a Recurrence or Metastatic Cancer, depending on who is doing the Staging I think. The first occurrence was IDC and DCIS. This second occurrence is ILC with pectoral muscle involvement. I'm told the ILC is NOT tethered or attached to the chest wall.

I'm told my Oncotype Score is 18. Since only the breast biopsy was Scored I am curious. Is this Score based on IDC recurrence or ILC recurrence?

I’m told Mitotic Score is 1 and it is Grade 2. Both of which should indicate a slow growing cancer. The diagnosis estimated the tumor as 6 cm. The MRI measured it as 7 cm. Six weeks later the MO measured it at 9 cm. This is a freaking huge tumor to me.

I’m 68 years old. I’m like every other person, I have reasons to want to hang around for awhile.

Is anyone else concerned that ILC doesn’t react like IDC

Mac5 -- yes, that is my new worry. Didn't think much about it when I was going through treatment, but now I'm doing more general reading about ILC and it doesn't seem like it's at all like IDC.

One good thought --- I have 3 friends who had ILC -- two are almost at the 5 year mark and the other had ILC 25 years ago and never took the pills as they weren't available then. She's still fine. She had a single mastectomy.

Thanks jessie123. I’ll take encouragement anywhere it comes from!

Hi Nash! How are you doing? So sorry to hear it went to your brain. I'm fighting the spread of ILC also. Mine has spread to my skin so I'm on I'brance and Femara. I also have Neuroendocrine cancer in my stomach and liver so treating that too. May I ask how they found it in your brain? Were you having headaches? I often think of you and our long journey through breast cancer. Lets keep kicking its butt and living our lives to the fullest:)

Take care,

Nancy

Hi all,

Great to see some of you from way back!!! I was dx in 2008 and ocotype was 26 or 27-- so I opted for chemo... also had lupron, letrozole and radiation. Seems like forever ago. Just had my bi-annual MRI last week- have not heard anything so I am taking that as good news!!!

In the intervening years I also had a low level thyroid cancer and a low level melanoma. I am feeling great- working full-time as always, bringing up these kids-- just doing it every day.... I do think occaisionally about the fact that ILC can recur years later- but I am not sure there is anything I can do about that except for be as healthy as I can be. I wish good health for all of us for a long long time.

Coming out with new oncotyping just for lobular called LobSig.

Staying on Aromasin inhibitors past the 5 years can help. Some studies show lowered recurrence by up to 70%.

Age 55, my score was 19 (I only know of one BC in my family, a great aunt in her 70s.... I had expected my number to be lower )

MO recommended an AI for 5-7 years. No radiation since I had a double mastectomy and they got clean margins.