Unsettled about Diagnosis

Good evening! I am posting in hopes of receiving some reassurance, or affirmation if my concerns are legitimate, I suppose.

First, I should say that I have a strong family history of BC, have very dense and fibrocystic breast tissue, am 38 y/o, and have been getting annual mammograms and ultrasounds for the last few years. I have had breast MRIs with contrast for the last two years.

About 9 weeks ago, I had a small red spot appear on my right breast. It appeared about two weeks after my annual breast imaging. Over the next 4 weeks, it grew. I was seen by my gynecologist, then had an MRI, and have since been referred to a dermatologist. My doctor was torn between sending me to a breast specialist or the dermatologist, but we decided to start with the latter. On my first visit, he decided it was breast eczema and gave me a steroid cream. This was 6 weeks into the rash. After a week, the rash had begun spreading. The color has deepened and I have 4 spots on the other breast now. I returned to the dermatologist and he then decided it was Pityriasis Rosea.

I am still a little concerned: my right breast has gotten noticeably larger than the left, I am now 9 weeks in and the condition isn’t even remotely improving. The rash is intensifying on both breasts, I have NONE of the other symptoms associated with Pityriasis, and I have two spots that have developed on my nipple.

I suppose I will move my appointment up from the one scheduled six weeks out if it continues to spread, but wondered if anyone else has experience with this diagnosis or MISdiagnosis? My first rash is larger than the others and somewhat oval shaped (ringworm or any other fungus have been ruled out twice). The edges are blurring where they were once more defined. The red places in other areas are flat and patchy, rather than looking like pimples or bug bites. The places itch occasionally, and the initial onset involved DEEP stabbing pains, especially when I laid down at night. In general my breast aches pretty constantly.

I’m feeling like a hypochondriac, and I apologize for bringing it here, but I am not able to find much online OR with my doctors. They have all appeared a bit alarmed and ready to refer me for testing to rule things out, until my dermatologist. I’m on my second diagnosis in two weeks with him. I don’t feel like myself, which could simply be from the mental drain. My MRI was clear. My mammogram and ultrasound were reported to be Bi-rad 3, and I was told to return in 6 months for more imaging. That was before the red patches began because of some cysts they’re watching.

Thank you so much to anyone who takes the time to read this. If you have any experience that relates to any of this, I would appreciate the feedback. I will be following up with my doctors as they have asked...or sooner.