Exemestane - anything new?

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Hi! I haven't been keeping up here - but wondering if there are any new recommendations with exemestane? I have been on it for five years now and was on the 10 year plan. My oncologist just left and I have been assigned to another that I have not met yet. I just received a letter from my mail order pharmacy saying that my doctor would not refill my perscription and if I had any pills left at home I should not take them anymore. I have a call in to the doctor, but I'm very curious as to why!

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  • BCat40
    BCat40 Member Posts: 241
    edited May 2020

    Perhaps she wants a bone scan or other tests before continuing your therapy. The docs are supposed to monitor for serious side effects and the new doc might not feel comfortable renewing until doing so. Some patients get switched to tamoxifen if their bones get too bad on an AI.

  • readytorock
    readytorock Member Posts: 199
    edited May 2020

    I’m current on bone scans

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited May 2020

    Readytorock, I myself would not stop taking my pills just because the insurance company and/or pharmacy said to; I would want to talk to the oncologist. They are probably looking at the typical standard of care, which is five years. However, as you may know, ER+ breast cancer can recur beyond the five-year mark, and ILC in particular may have a higher risk of late recurrence. I assume that this fact combined with your Oncotype score and your clinical risk as assessed by stage, grade, nodal status, and age (?) is the reason you were on the ten-year plan. The Breast Cancer Index is a test that uses your original tissue specimen from your biopsy or surgery to predict your benefit from extending endocrine therapy beyond five years. The hospital may have this tissue archived. If so, your doctor could order the test. Perhaps the new doctor just does not want to prescribe anything until he/she sees you. P.S. With ILC I would want to continue with an aromatase inhibitor and not tamoxifen, if possible. There is data to show it is more effective for ILC.

  • readytorock
    readytorock Member Posts: 199
    edited May 2020

    So, I got a hold of my doctor's office. The pharmacy never called - nothing in my notes. One person has been taking all calls, so she said she would have known. Wonder if they called my old doctor - I have no idea where she even is. But she would have said that I am no longer her patient - she wouldn't have told me to stop taking the prescription??

    I think this is probably a big error on the pharmacy's part. I just can't imagine being told to stop taking a perscription - in a letter -from a mail order pharmacy!!!

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