Pain under lumpectomy incision normal?

Jons_girl
Jons_girl Member Posts: 696
edited May 2020 in Pain

Hi friends.

Question for you all. For my treatment I only had surgery July of 2017. Now when I sneeze I've noticed pain under my incision area like under on my ribs. When I sneeze. I also have twinge pains sometimes there. Is this normal? I haven't really had pain that I've noticed prior to this.

My dr who’s following me thinks I should have a MRI. But I’m thinking that’s maybe extreme? I just had my latest ultrasound screening (every 6 mo) and that showed nothing. All clear on ultrasound

Comments

  • gb2115
    gb2115 Member Posts: 1,894
    edited May 2020

    My scar area is sore to the touch but I don't notice it unless I poke at it. Surgery was in 2016 and it's been like that all along.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited May 2020

    Get the MRI make sure nothing else is going on. One scar still bothers me after 8 years, the other is more intense after 1 year, different side.

  • Jons_girl
    Jons_girl Member Posts: 696
    edited May 2020

    thank you both for replying!

    My scar has sorta just been numb pretty much all along. It’s got more feeling now but still weird feeling. But the pain is sorta new. So thought I should mention that at my last appt with my breast dr. And she said we should check that out.

    I’ve been worried to have mri with contrast. There is concern regarding gadolinium contrast. So I’m just sorta dragging my feet on this. I know I shouldn’t be. But I don’t want the contrast.

  • Beesie
    Beesie Member Posts: 12,240
    edited May 2020

    Jons_girl, do you have kidney disease? If not, the odds that a single exposure to the gadolinium is going to be in any way harmful are miniscule.

    The concern with gadolinium, which remains uncertain, is the possibility of build-up of gadolinium in the brain after multiple exposures. This means that having an MRI with gadolinium every 6 months is probably not a great idea, but an occasional MRI to check for breast cancer isn't a problem.

    Ultrasounds alone are not generally recommended for screening for patients who are high risk (or at risk of recurrence), without the addition of a second screening modality. While some studies suggest that ultrasounds may be as effective as mammograms, just like with mammograms, there are things that ultrasounds don't "see". Ultrasounds are not good at spotting architectural distortions, calcifications, or asymmetries. And just because an ultrasound found your cancer last time doesn't mean that it will see what is causing the pain this time. So since you are experiencing a new pain, being screened with a second modality is important. Your doctor recommended the MRI, which is pro-active and seems appropriate. What it comes down to is that while exposure to gadolinium on a regular basis might be a long-term problem, a missed breast cancer recurrence could be a much more serious problem for you now.

    Hopefully this is nothing, but you should get it checked out.

  • ThreeTree
    ThreeTree Member Posts: 709
    edited May 2020

    Jons - When I was 19 I had a lumpectomy for what turned out to be a "benign fibroadenoma". Over the years I would feel pain and general "weirdness" at the scar site. When I got mammograms or expressed any concern about the area I was always told that it was just "nerve damage" or "scar tissue" from that surgery that was bothering me and that it was nothing to worry about. Gradually, I quit worrying about it and stopped getting mammograms because I was always told the same thing about that area, and because I started to have concerns about all of the radiation I would be getting from the mammograms, the risks of false positives, etc. I never noticed anything else wrong with any other area on either of my breasts, so continued to believe that I was OK and that the weird things that went on with that lumpectomy location were just "nerve damage" "scar tissue" and then "normal aginig", e.g. changes from age related "sagging", etc.

    Well, 49 years after that lumpectomy, I experienced some slightly different "hardness" under my scar and it changed it's "look" a bit. I continued to think that it was just that old location being weird and pretty much ignored it until it got so changed I felt that I had to go see someone. Even then, I fully expected them to tell me that it was the old surgical area doing something weird and that it wasn't malignant (I was originally told that what was there was "benign"). Turned out that I had a large malignant tumor in that very spot; that the medical people considered "neglected" and now here I am. I ultimately had a mastectomy, chemo, surgery, radiation, now the hormone pill, and I watch and wait. There's no question I should have done more, in spite of my fears of radiation, false positives, etc.

    You need to do what you need to do, but after my experience I would strongly suggest you get the MRI. I think that the fears of the damage that can be done by the treatments are well justified but at the same time, I think it is possible to "over do" that and wind up in an even bigger mess. I still approach all of these treatments with extreme caution and read up on as much as I can, and look for the least damaging options, but you can reach a tipping point where the downsides of the treatments really do outweigh the justifiable caution against them. I think what Beesie has said makes a lot of sense.

    Good luck and I hope with all my heart that you are just experiencing some sort of "nerve damage" or scar tissue "weirdness" issue, but if it were me now, I would get it fully checked out.

  • Jons_girl
    Jons_girl Member Posts: 696
    edited May 2020

    Sorry for delay in responding. Thank you both for also responding to my post. I appreciate you taking the time to share your opinions.

    Beesie: no I don’t have kidney disease. But I read or was told by one of my drs that gadolinium builds up in the brain. That concerned me.

    I completely agree that I need to have two kinds of diagnostics done. Mammo is out for me due to my extreme dense breast tissue.

    I realize having a mri with gadolinium once in awhile might be ok. I had one I think a year ago for something else. Just concerned another one may have that stuff start building up in my brain. Ugh can you tell I am over concerned about stuff?! Lol. I know this sounds silly but it worries me. I am considering it tho! Seriously. Thank you Beesie. I do truly value your opinion! I’m waiting to hear back from a couple professionals too on this question. they are supposed to get me a answer.

    Threetree: thank you too for sharing. Wow. I don’t even know what to say! Thank you so much for sharing your story! Unbelievable huh!? All these years you thought something was wrong and finally that is found to be true and finally validated. Wow. Thank you for sharing. It never ceases to amaze me, the stories rather testimonies of what people on this site have gone through.

    I’m seriously considering having a MRI.

    Sending a hug to you all. Thank you all for sharing your thoughts. I sure value this site

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited May 2020

    I've read about the gadolinium but don't think about it much. I had my 1st MRI during the diagnostic phase and was told I would be alternating mammo/MRI every 6 months. I thought, is that a bit much? Turns out maybe not. I had some pain, hit my breast once with a weight and had some pain in treated breast so one MRI came back a birads 3. The follow up in 6 months was a 4, so I had a biopsy. I have fat necrosis there, so mine is scar tissue, and was even called giant cell reaction since my body doesn't like these little clip markers inside my breasts. What's one more clip? Glad you are considering an MRI.

  • Jons_girl
    Jons_girl Member Posts: 696
    edited May 2020

    ctmbsikia: Thank you for posting! So you had DCIS AND LCIS within a month of eachother. How was the LCIS caught? I am wondering if a MRI can catch LCIS better than other diagnostics. Just curious about that. My maternal aunt had ILC....her dx was two wks before mine. I had IDC. My maternal Gma had both. My mom has had biopsies but no cancer. I have no siblings. Cancer definately runs in my moms side of the family. I am trying to not be too overly worried about recurring cancer. But also trying to be proactive in making sure I have regular diagnostics. I have rechecks every 6 mo. So no I don't think that having rechecks every 6 mo is a bad thing. Thank you for posting!

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited May 2020

    I actually had to go back and look. The LCIS was diagnosed because of the persistence of my surgeon and another Doc at the radiology center. My 1st MRI shows a birads 2 for my right side. I was new patient with no prior imaging. The day I went in for the right side biopsy, that Doc read my reports, saw something else, called my surgeon and they ordered another biopsy. I had 2 biopsies that day. I felt blind sided and cried but I am grateful for their thoroughness. This is what the report said:

    CLINICAL INDICATION: 56-year-old female who presented with a palpable lump in her left breast last month. On mammography, there was a suspicious mass in this area which later underwent ultrasound-guided core biopsy, which was positive for malignancy. In

    the contralateral right breast, a probably benign circumscribed mass was seen in the lower outer quadrant, which could not be seen on sonography; 6 month follow-up was recommended. Her surgeon has requested stereotactic biopsy first tissue diagnosis.

    Additionally, the patient has subsequently undergone bilateral breast MRI, which does reveal this mass in the lower outer right breast which has imaging features suggestive of an intramammary lymph node.

    Comparison: Mammogram on 12/7/2017 and breast MRI 12/28/2017.

    The 1st biopsy was fibroadenoma. The 2nd one was LCIS. At my pre op visit my surgeon also decided to do a surgical excision of this mass on my right side, pathology also indicated LCIS. My latest MRI for my right side says there is no dominant mass or distortion.

    So, without the MRI I don't think they would have found it. I am lucky that the biopsy's were even ordered given the birads score of 2. They are two wonderful doctors that read more into those images.


  • Jons_girl
    Jons_girl Member Posts: 696
    edited May 2020

    ctmbsikia:

    Wow!😳. Yes you have great doctors to have advocated for you! I think my breast dr would do the same probably. It’s so important to have good doctors!! Especially when dealing with cancer.

    That’s amazing! So the mammo AND ultrasound did NOT see the LCIS then? I say that because the mammo obviously didn’t see it well enough for low birads score right? And you had ultrasound too right? Wow that’s amazing they both didn’t seem to really see this cancer for what it was.

    The MRI did see the LCIS with better view apparently then right?

    So this makes me think maybe MRI yearly or every other year is important. Especially since I had no radiation or hormone blocker drugs.

    Thank you for sharing this!

    I wonder if MRI is really the only diagnostic that can see lobular cancer well? And what about inflammatory Br cancer and some of the other more rare stuff? I wonder if those are only caught on mri?

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited May 2020

    The MRI didn't actually see LCIS, that ultimately can only be diagnosed with a biopsy of the breast tissue, but those images saw a mass, although not labeled suspicious (birads4), it was enough to prompt a biopsy.

    Let us know how yours goes if you do it.

  • Jons_girl
    Jons_girl Member Posts: 696
    edited May 2020

    Oh ok. That is interesting! Well at least the MRI saw the mass. That was good at least! Ok yes I will keep you guys updated.

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