Please help, so worried.

Options
Bluesky123
Bluesky123 Member Posts: 9
edited May 2020 in Not Diagnosed But Worried

I'm 39 years old and have been having cyclic left breast pain for several months. After one menstrual cycle I decided to do some digging and found a mass right behind my nipple. It feels like glandular tissue, a round ball I can pick up when pulling my nipple. I found a similar ball under my right nipple but much smaller. Also, my left nipple looks puffier than the right when not stimulated. Why would that glad by bigger in my left? Could it be because I'm constantly prodding at it? I have a mammogram and ultrasound scheduled but I'm worried sick. I have health anxiety and this isreally consuming me, I'm making myself sick with worry. Does this sound suspicious?


«1

Comments

  • WC3
    WC3 Member Posts: 1,540
    edited May 2020

    Bluesky123:

    It's always best to have any breast issues that are new to you or that cause you concern examined by your doctor, so I am glad you have already taken that step.

    That being said, I always had lumpy breasts and all of my normal, benign lumps clustered behind the nipple. My breast cancer originally stood out to me as worrisom because it was not behind my nipple but in the upper part of my breast by itself where I had not previously had any lumps.

  • Beesie
    Beesie Member Posts: 12,240
    edited May 2020

    Bluesky, as WC3 said, you should get this checked out by a doctor, but to your question, "Does this sound suspicious?", I'd say "No, it really doesn't".

    The fact that you have something similar in both breasts... the fact that it feels like glandular tissue... the fact that it sounds as though is it mobile.... those are all signs that this is most likely a benign mass, either normal lumpy breast tissue (which is surprisingly common) or something harmless like a cyst. And yes, your left nipple would be puffier if you keep poking around it. So don't do that!

  • Bluesky123
    Bluesky123 Member Posts: 9
    edited May 2020

    Is it possible for one breast to be more glandular than the other? It doesn't feel like hard lumps...I guess I'm not sure what I'm really looking for when I do breast exams.My PA found the area I was talking about and wrote a script for Mammogram and US. I can't eat or sleep I'm so worried!

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2020

    Dear Bluesky123,

    We are sorry that you find yourself here with these changes and the worry that they bring. You have received some good feedback here. Waiting for answers is very stressful for sure. You have done all of the appropriate things to see this through to a conclusion. You mention that you have health anxiety. Perhaps you might use some practices that have proved to be relaxing in the past and avoid those things that increase your worry until you get to your appointments. These are such troubling times for most right now and we are sure that breast changes only add to one's anxiety. Take care of yourself. Keep us posted on what you learn.

    The Mods

  • Bluesky123
    Bluesky123 Member Posts: 9
    edited May 2020

    Anyone else have any input? I’m worried sick

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited May 2020

    What Bessie said. Breathe. Go for a walk. Pull weeds. Clean a closet.

  • LillyIsHere
    LillyIsHere Member Posts: 830
    edited May 2020

    Bluesky, don't borrow the worries. It is easy said than done but breast tend to get lumpy before PMS, hormonal changes, etc. You are doing the right decision to have the doctor check, but until then, my theory is not to worry for what can be nothing.

  • Bluesky123
    Bluesky123 Member Posts: 9
    edited May 2020

    Last question! Can the same gland in one breast be much bigger in the other breast

  • Beesie
    Beesie Member Posts: 12,240
    edited May 2020

    Yes. Our bodies are not symmetrical so it would be natural that might be be differences in our breasts. While fibrocystic breast condition usually affects both breasts, it doesn't affect each breast exactly the same way.

  • Bluesky123
    Bluesky123 Member Posts: 9
    edited May 2020

    Thanks. It’s scheduled tomorrow and I can’t stop crying/shaking. I’m in such a bad place right now I don’t know what to do. Please can you give me reassurance

  • romashka
    romashka Member Posts: 62
    edited May 2020

    Bluesky123,

    I'm around this place for a little while now and can see from the responses you've received that you have good folk supporting you here. They know their stuff.

    We all worry differently and just please know that we are with you all the way. That we can assure you of.

  • Bluesky123
    Bluesky123 Member Posts: 9
    edited May 2020

    So I had a mammogram and ultrasound today. The radiologist did the ultrasound, was right on top of the lump with her wand but saw nothing except normal breast tissue. I’m still in pain, it’s pretty bad now to :(

    Should I ask for a biopsy?

  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited May 2020

    Bluesky, if a mammogram and ultrasound found normal breast tissue, I personally would not ask for a biopsy. Continue to do monthly self breast exams, emphasis on once a month. As you do exams each month you will learn more and more about what is "normal" for your breasts and become better prepared to recognize any abnormality. Also, if you limit to once a month you will be able to know when/if any pain or soreness occurs that it is not due to too frequent examinations! Don't forget that most of us are at least a bit lopsided with one breast larger than the other.

  • Beesie
    Beesie Member Posts: 12,240
    edited May 2020

    Bluesky, since the mammogram and ultrasound found nothing, what is there to biopsy? The Radiologist doing a biopsy is usually guided by mammogram or ultrasound imaging to ensure that the needle is placed into the right area. With nothing showing on imaging, how would the Radiologist know that the needle hit the right area?

    You said that your breast pain is cyclical and that the mass you found feels like glandular tissue. Every person who has read your post and responded has told you that from your own description, it sounds as though you have normal lumpy fibrocystic breasts. But since this is a new change to your breasts, it should be checked out.

    Now you've had an ultrasound and mammogram, and both came back clear, seeing nothing but normal breast tissue. So it seems likely that your screening didn't find anything because there is nothing there, except for normal glandular breast tissue.

    Normal breast tissue can be lumpy. Normal breast tissue can be painful. Lumpiness and pain that is cyclical is very common and completely normal. And it is also normal for new pain and lumpiness to develop at your age. You are 39, and most likely are just entering peri-menopause. Please read the following articles; they both describe exactly what you are experiencing:

    Are Sore Breasts a Sign of Menopause? https://www.healthline.com/health/menopause/sore-b...

    "Breast soreness related to perimenopause will likely feel different from the soreness you may have felt at other times in your life. Menstrual breast pain usually feels like a dull ache in both breasts. It often occurs right before your period.

    Breast pain during perimenopause is more likely to feel like burning or soreness. You may feel it in one breast or both breasts. Not all women experience breast discomfort in the same way. The pain may feel sharp, stabbing, or throbbing."

    How Menopause Affects Your Breasts https://www.webmd.com/menopause/guide/breasts-meno...

    "During perimenopause -- the years before your periods stop -- you'll start to notice changes in the size and shape of your breasts. You may also notice that they feel tender and achy at unexpected times. Or they may be lumpier than they used to be."

    .

    I know it's no fun to have painful breasts... I lived with that all my life, and yes, it did get worse when I hit the peri-menopause years. That's also when I started to develop cysts - over the years I had more than I can remember. I agree with Beaverntx that you should monitor your breasts. My advice additional is that since this is something you may have to put up with for years, you should investigate ways to try to reduce the breastpain - maybe see if your PCP has any suggestions, or read up on peri-menopause websites.

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited May 2020
    Yours is very likely fibrocystic from what you have described, but I will tell you that I had a palpable lump, the size of a marble that was not seen by mammogram nor ultrasound. It was right next to the nipple. If you have a hard lump that you can feel that doesn’t go away, maybe you should ask for a biopsy. With your health anxiety, it sounds like your worry is not going away until you do so. Do you have any risk factors or family history?
  • Bluesky123
    Bluesky123 Member Posts: 9
    edited May 2020

    oh no!!! That scares me...I’m glad you are OK. So they didn’t find ANYTHING or did they say it’s fibrocystic then do a biopsy?

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited May 2020
    First off, it is rare for the ultrasound not to find cancer. Secondly, mine was a hard, movable lump. I had a moron for a pcp and she called me and said the ultrasound was negative and did not recommend further testing. My twin sister had a tumor that was found with ultrasound but not seen on mammogram so I thought that meant ultrasound could rule out cancer. I assumed it was a fibroadenoma and didn’t get it out until 20 months later when it started hurting. Shooting pains, not what you have described. It had not grown in diameter, but inward so I didn’t think it had increased in size. However, I debated posting this as I didn’t want to increase your anxiety, but I would like women to know that it can happen that ultrasound does not always find the cancer. I am lucky as I am 5 years out now and hopefully the misdiagnosis will not affect my long term outcome.
    You need to go with your gut and decide either to pursue it or forget about it because the anxiety is not healthy for you. I know this from experience. Best wishes and let us know what you decide.
  • Beesie
    Beesie Member Posts: 12,240
    edited May 2020

    "I would like women to know that it can happen that ultrasound does not always find the cancer."

    Important message. In Bluesky's case, she mentioned that she had both a mammogram and ultrasound, and both were clear.

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited May 2020
    That is my point - so were both of mine. I had ten years of clear mammograms, found a lump within a month of most recent mammo, asked to get it out, but pcp said let’s do ultrasound first. Ultrasound was negative, as well. I know this is rare, but it does happen. In hindsight, I should have gone to my gynecologist, but in my small town, one lady who was a nurse did all of the breast exams and she missed my sister’s breast cancer, so I didn’t have a lot of trust there. I trusted my pcp who I had been with for 15 years and I shouldn’t have. She was criminally negligent in my opinion for not recommending a biopsy. I don’t post about this often, but I also don’t want to see someone go through what I did. Blue sky, I am not suggesting you get a biopsy, but maybe give it a little time to determine if this is really cyclical or not. Perhaps you should take your concerns to a gynecologist who is more familiar with breast issues.
  • WC3
    WC3 Member Posts: 1,540
    edited May 2020

    Bluesky123:

    I hate to be the harbinger of fear here but mine was missed on the mammogram and ultrasound. While your lump probably is benign, I wish I had been aware of the option to have a breast MRI at the time of my missed dx and so I wanted to let you know that that might be an option for you even if it's just for peace of mind.

  • Bluesky123
    Bluesky123 Member Posts: 9
    edited May 2020

    These sounds horrible....ugh. I guess I will schedule with a breast surgeon. Did the ultrasound tech do the ultrasound or radiologist? The radiologist held the lump and placed the wand right on top of it and showed me on the screen what we were seeing. Could it still be wrong? Also was yours a 3D mammogram? Are those more accurate

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited May 2020

    Mine was not 3D and the radiologist did come in and look after the tech couldn't find anything. Later, when I saw him for my sentinel node dye injection before mastectomy, he said he would have recommended biopsy or MRI, but he didn't bother telling me that at the time! So, actually I guess I am suggesting you ask about a biopsy or MRI just to be on the safe side. Or at least see what a breast surgeon says about the lump.

  • Beesie
    Beesie Member Posts: 12,240
    edited May 2020

    Bluesky, this is a breast cancer website. People who've had those rare situations where a mass was not found by imaging are going to be on this site - but their experience is their experience, it is not yours. None of the people who've come here with situations similar to yours - and who turned out to be perfectly fine, with no diagnosis of breast cancer - are hanging around this site. So these people aren't here to reassure you.

    Based on everything you've posted to-date about your situation, there is no reason to believe that your situation will be the same as the scary cases. Here's why. There are three factors that you mentioned in your first post that are important. First is that your pain is cyclical. Second is that your mass feels glandular. Third is that you have a similar but smaller mass in the same place in your other breast. All of that, together with your age (just entering peri-menopause) suggest that what you have are normal lumpy breasts that are experiencing normal pre-menopausal pain and changes.

    Now, importantly, you've had both a mammogram and ultrasound. It's critical that you've had two modalities of screening. Both the mammogram and ultrasound have come back clear. It sounds as though the Radiologist was thorough - making sure to feel what you are feeling, ensuring that she focused the ultrasound on that area, and showing you the results. So other than the fact that other people have had masses that have been missed by screening, there is nothing in your situation that suggests that anything is being missed.

    Do you have a copy of your imaging reports? It may be helpful to see what they say, and to see the BIRADs rating. It won't be a BIRADs4, since a biopsy has not been recommended. If it's a BIRADs3, that means short-term (usually 6 month) follow-up with a repeat of the screening. With a BIRADs 3 you may be able to get insurance approval for a biopsy, but maybe not. Certainly you could get in to a breast surgeon for a second opinion. If it's a BIRADs2, it's unlikely you will get approval for a biopsy. In either case, if you are able to get in to see a Breast Surgeon, in all likelihood he/she will either recommend a redo of the screening, or if the mass feels glandular and normal, recommend nothing at all.

    You of course need to do what makes you comfortable, but you should make this decision based on the specifics of your situation, not anyone else's. I think that monitoring your mass and the pain - to see if it is cyclical and if the mass seems to be more or less noticeable depending on your cycle - is a logical next step, perhaps combined with a 6 month follow-up screening.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited May 2020

    I'm still wondering how BLuesky could have a biopsy when none of the imaging found anything to biopsy. I get the anxiety, but why cut if there's nothing to dig for? My choice in this case would be to have it re-checked in 6 months. Or it you really can't let it go - fight for an MRI.

  • WC3
    WC3 Member Posts: 1,540
    edited May 2020

    Bluesky123:

    I did not have a 3D mammogram, just a conventional one. My ultrasound was done first by a technician and then the radiologist. My lump though was different from yours in that I did not have any pain associated with it and I had nothing similar in my other breast. It was also very solitary, wherase feeling behind my nipple felt like feeling a bag of marbles due to the benign glandular tissue there.

    Beesie is probably correct that your lump is benign. I just wanted you to be aware of all of your options.

  • Beesie
    Beesie Member Posts: 12,240
    edited May 2020

    WC, just to clarify. I'm not saying that the lump is benign - I am not a doctor, nor am I psychic (unfortunately).

    What I'm saying is that Bluesky's description of the mass and her pain is consistent with having a benign glandular mass (which would be very common at her age), more so than it sounds like cancer. More importantly, the mammogram and ultrasound appear to have confirmed that there is no solid mass. So I'm suggesting that Bluesky be cautious (monitor her breasts, perhaps request a 6 month follow-up) but that she trust the Radiologist and the imaging. If the mammogram and ultrasound findings had been discordant with Bluesky's description (i.e. she'd found a hard immobile/attached mass and nothing showed up on imaging), then certainly it would warrant further investigation.

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited May 2020
    Just to clarify, my lump was mobile. After diagnosis, I read that early cancer can be mobile, so don’t assume that just because it is movable that it cannot be cancer. Another misconception that led to my misdiagnosis.
  • WC3
    WC3 Member Posts: 1,540
    edited May 2020

    Beesie:

    My apologies. Thanks for the clarification.

  • Beesie
    Beesie Member Posts: 12,240
    edited May 2020

    WC3, no problem.

    Peregrinelady, the thing about breast conditions and breast cancer, and probably most other health conditions, is that nothing is ever certain and there will always be exceptions. You can have a perfect screening and be diagnosed with breast cancer 3 weeks later (yup, that's me). Or you can spend months or years anxiously trying to track down what's wrong, having test after test and seeing doctor after doctor, and in the end it turns out that the doctors were right and nothing is wrong - I've been around here long enough to have seen this situation happen too many times. In the end we each have to make the decisions that balance our risks, decisions that we can live with. As for Bluesky's risk, I'm a stats person, so all I know is that if someone exhibits several symptoms that all point in the same direction and each symptom has about a 90% certainty, the odds are pretty high that we're looking in the right direction. But it's never 100% certain, because that's impossible.

    Bluesky, good luck deciding what to do. I suspect that this discussion, and particularly my part in it, is not very helpful to you at this point, so I will bow out.

  • Bluesky123
    Bluesky123 Member Posts: 9
    edited May 2020

    You all have been so great and helpful I really appreciate it. My doctor said I have a Birads 2 score and I ended up scheduling an appointment to a breast surgeon just be cautious.

Categories