My Husband, My Life, My Love, My Family, My Cancer

Oooohhh! Mystery solved. Thanks, Mara!

Booboo, I have beans, a small amount of cheese with queso and tiny handful of crushed tortilla chips every day. Love those meals. Nutritious too.

hey everyone, I did finally fall asleep after texting my night owl son for fresh icepacks several times to keep the fever down & just trying to focus on the tv show. My.anxiety really kicks in at times likes that too so that's not helpful

The fevers are getting worse now. MO & i have a sort of unwritten rule - if I'm over 40 C, if bp is dropping, or if my mental cognition is affected, I need to call the mo and proceed to ER. Otherwise i can self manage at home. I've been hitting low to mid 39 a few times so if it keeps crawling up, I don't know what will happen.

I like the idea someone mentioned of a sticky note of everyone's scan / big appt dates. I will start doing that.

Hugs everyone

Oh Moth~I don't like those fevers. I'm so sorry you're dealing with things like this. All we need is our rest. Without it. Forget it. For me just the suggestion of the symptoms of covid, I think I've surely gotten it. I really hope you feel better. Geez this is so hard.

It looks like some states are opening soon. If that's a good idea I don't know. Some say yes yes yes others not so much. I'm just wanting to be able to be around others and not fear for my life of catching something. Obviously no hanging on each other. But I miss my kids snuggles. Part of me knows no one really knows for sure. But I am more and more certain this is not a natural borne virus. It would have happened long ago. Had it started the way they say it did. Which sucks. Innocent people dealing and hurting over someone else choices. Isn't that the way of it. ?

Here is the brand of queso that I use. I don't make it. If you don't sell it like that in the US, I am quite sure melting velveeta and adding salsa to taste would be the same as this.

Moth sorry about your painful feverish night. Glad to hear ice packs every pain killer in the medicine chest and murder she wrote did the trick. Is t amazing what breaks pain and insomnia.

Shetland thanks for asking about the queso.

Mara I was wondering about your queso too. I’m going to try dodgers girl recipe with substitutions. I have quinoa black bean tortillas, regular cheddar and salsa. If it resembles food when I’m done melting I post a pic.

Mel congrats on the new phone. My DH bought a charger from Verizon yesterday and they tried to sell him a. Phone for mother’s dayhaaaah! The phone was half price and get the other phone free but you have to take a new phone number. We’re trying to figure out how to do it w/o changing number. I guess we have until Sunday.

Moomala how are you.

Candy thanks for keeping us in a post it note by your computer. You are a kind compassionate soul.

I’m afraid I’ve eaten all the cookies 🍪 Mel. I don’t bake very much anymore bc I’m a fiend and will eat cookies for breakfast and snack all day like a kid ruining my appetite for nutritious food until I get belly ache. We can eat the queso and dip and I’ll bake a batch on the night before.

Booboo how are you. When we get a clear way from corona we’re doing breakfast lunch dinner a walk-very short on the beach 🏖 anything else we can think of!

Tany

Dodgers,

Thanks! Now I have the recipe!

Mara, yes, I’ve seen the Tostitos brand at the grocery. I’ll buy some and try it too. Yummy!

Moth, I really hope you are ok. I had the flu this past winter and thought that was as bad as it gets. But not according to those who have had this virus. Mel, I tend to agree with you....I’m not convinced this wasn’t a great big screwup or even intentional. But I hate to think that way.

Hello all.

Tired today. Woke last night at 2:30 am out of a nightmare. I think I screamed, but I live alone so who knows. Heart pounding. Then my back started in with hurting so no more sleep. Up at 6 to start the day as usual--feed cat and eat breakfast so I can take meds. Dozed this afternoon, but definitely ready for bed tonight. Hopefully the pain won't keep me up. My pain is worse at night.

Nachos sound good, but I have so much heartburn anymore I feel like a fire breathing dragon already. LOL.

My note says Moomala had scans today??? Moomala- Any results yet?

Bev- I don't have date for your scans, just May. What is the date?

Moth- Hope you are feeling better.

Hi candy, sorry to hear about your nightmare and being up at 2am. Hate it when that happens for sure.

Nachos are good, only reason I am able to eat any of this stuff are digestive enzymes. They really have saved me. Allows me to eat almost anything. If it is too spicy, I just add one of my rabeprazole to the meal.

I am stuffed as I had enough money from my penny sites to order a large burger dinner with cinnamon donuts and it was free for me. It was delicious but then older brother called and asked if I wanted to go for a drive. They offered to buy me a treat other than pop but I had to decline as I was so full. We drove to a park, had my SIL and I dressed warmer, we could have walked around as it is quite a nice park. It was a nice evening as I was quite tired from washing all my blankets. Since I only have a portable washer, it does not spin the blankets and I have to lift soaking wet blankets to get them to my big panda spinner. They are really heavy. Would love to be able to get a washer that also spins out the laundry first so I don't have to break my arms. I might save for one anyway and figure it out later. We will see.

I had scans today but I won't find out results until my appointment with MO next Thursday. Ugh I hate that they make you wait but it's the way she rolls. I am better at putting it out of my mind until the appointment but it is still not fair.

Today's CT drink was some nasty stuff mixed with cran-apple juice. It was gross and I had a few urpy moments afterwards. My stomach's still a little "off" hours later but I've drunk plenty of water and hopefully it'll be gone tomorrow. With CT and bone scan the same day it's a bit of a tiring day as you know. Especially so if you have an allergy to contrast dye and have to pre-medicate the night before with massive prednisone. I woke up at three am and didn't get back to sleep so I'm going to bed soon. Glad this day is over. I am always concerned over the contrast allergy but so far the pre-meds have worked. Fingers crossed.

BevJen, my TMs were upward the last two months. I don't have lobular but I frequently get a subsequent bone scan or Pet that mentions lesions that are not visible on CT. This is a little scary. MO lowered my dose of Afinitor around two months ago to combat fatigue and now wants to have conversation with me. I know what she's going to say but I have a few ideas of my own to ask her about. She will want to bring my dose back up to full, or start me on Piqray. I'm going to talk to her about going up to full dose Afinitor again and switch from Aromasin to Faslodex via some evidence shown on another thread.

You know how the patient is the only one allowed in the facility and spouses/caregivers have to wait in the car. So DH sat and waited for me in the car. I had a little break in between the two scans so I as allowed to go out to the car and have a lunch he and I had packed together. Plenty of people sitting in their cars in the lot. A man got out of his car and although he looked around for anyone walking by who could see him while HE PEE'D ON A TREE, he just plain forgot about all the people waiting in the cars in the parking lot. Plenty of people were laughing - I wish I could have ESP'd them all to roll down their windows and clap when he got done. So funny.

Moomala— glad your scans are behind you now. Hope you get to sleep tonight.

Micmel - thanks for the update from philly.

Waving to Illimae and Philly. Wishing good days ahead 👋

Candy- my scans are next Wednesday. Will be like Moomala in that all CTs and Bone Scan will be on the same day. No CT drink though. As I have mentioned before, I have to drink 32 oz of water 30 mins before the scans. And hope I don’t pee my pants.

Mara51506– I read all that you do in a day and think it’s amazing. You are spunky. Love it

Headed to bed. Hope to sleep all night

Morning all.

Mel- Hope you finally got some sleep.

BevJen- I use Pepcid daily for the heartburn with Tums as needed. My PCP just poopoos the complaints of the heartburn. What the crap!! I tell him that if I bend over after eating, I can have a mouthful of stuff. I don't know. Guess just deal with it.

Missing Philly. I know that hearing of our sisters succumbing to the cancer is hard, but I miss when one of us stops posting.

Moomala- Laughing about your parking lot story !!! Prayers for your scan results.

Dodgers- I have to drink 32oz of contrast 1 hour before my scans. And Yes, I worry I will pee my pants on the scanner table. LOL.

Rain, Rain ,Rain,Rain. All it does is rain. Already makes being home Rougher, I wish I had a screened in porch. I’d go sit outside with a blanket and read or listen to the rain. Some places even have snow falling. No thanks. In May? Almost half way through already. Wow Time flys. Gotta find something to do !

Dodgers~Thank you. My DH was right on target with it. It's good for surfaces but good old alcohol wipes are the best. We are always looking for disinfectants Especially now. To get a pack of wipes means you may have wonthe lottery.

It still works for colds and other things I am not really interested in getting. I looked up effective cleaners for corona. The microban 24 was on the list. But you never know.

Wow, so amazon is limiting regular cleaning supplies. Some of my staples for cleaning bathroom and sink areas are prioritized for frontline covid organizations. I understand that hospitals, paramedic, cleaners need these things for sure but it is getting hard to come by regular things for the household cleaning. I cannot find them readily at the grocery store. I will continue with vinegar as I will not pay the price gougers on Amazon sites who charge 15.00 for something that would normally be two dollars. Ridiculous. I would have preferred seeing limits imposed instead so everyone can get what they need. Guess I will be going store to store to see what I can get and keeping an eye out for bleach.