Port causing swelling in arm???

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MommyErin
MommyErin Member Posts: 187
edited May 2020 in Surgery - Before, During, and After

I've had my port for 3 years and in October, my arm was swollen and tingly on my port side. I was diagnosed with a superficial blood clot. The blood clot has since resolved, but my arm is still swollen and tingly/painful sometimes. I had an ultrasound yesterday and no new blood clot. Could it be my port? Anyone else experience something similar? It's not super swollen and is not getting worse, so my oncologist hasn't been concerned. Given how long it's been going on though, I really want answers and to fix it! Thanks!

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2020

    mommy Erin,

    I am not a medical professional, but could it be lymphedema? I have mild lymphedema in one upper arm and sometimes have tingling and slight swelling. Have you brought up this possibility with your doctor? Take care

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  • flashlight
    flashlight Member Posts: 698
    edited April 2020

    MommyErin, did he say you had thrombophlebitis? Was your port checked for infection? If it isn't lymphedema it might be cellulitis. Let your doctor know that it hasn't resolved. Did he put you on an antibiotic?

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  • MommyErin
    MommyErin Member Posts: 187
    edited May 2020

    No infection. I've had repeat ultrasounds and all clear. It's very mild (like unless I point it out and you compare both arms, you absolutely would not see it), but still annoying me. She doesn't think it's lyphedema, but I will ask for a referral to a lymphedema specialist when the covid19 situation calms down a bit or if it gets worse. Thanks!

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