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  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited February 2020

    Second the leg pain being the worst! The discomfort went away at the two week mark for me.

  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited February 2020

    Any ladies have stitches that didn't desolve? I'm 6 weeks out now and had stitches on my left that finally fell out a couple days ago. But since then I'm having pain and pulling on that side. Also had some bad chest pains last night. Assuming it's normal and part of the course. Just wondering if anyone has had anything similar?

  • HikingLady
    HikingLady Member Posts: 650
    edited February 2020
    LiveLoveLaugh2020

    I think it takes a LONG time to heal, and what you're feeling might be perfectly normal healing, as nerves connect and start to send signals, etc. I remember feeling weird sensations, and occasionally I'd phone up the PS office, and a nurse or PA would relay my question to doc and get back to me. Pain sounds not good---I'd ask PS about that. I had discomfort, tightness, pulling, for sure, as things healed. Maybe it was 6-8 weeks before everything felt really healed up inside.

  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited February 2020

    Hikinglady thanks for the response! I know it's a long road to healing just weird that I'm getting these sensations after the stitches falling out. If the pain continues I will call the office. Hopefully PT helps me today :)

    Anyone have good results with organic coconut oil for incisions? I'm currently using Vit E oil. I've used silicone strips on other scars which works great but it's hard and just about impossible to use on my incisions (inframam).

  • SuzieQ2019
    SuzieQ2019 Member Posts: 10
    edited February 2020

    How much “fluffing” did you experience?

  • Islander89
    Islander89 Member Posts: 7
    edited March 2020

    Hi everyone,

    Just gone through my TE on the 25th and doing great. I see my PS on Wednesday. My question is and I’m sure it’s been addressed but there are so many posts to read through., but I was wondering how long recovery is for most people. I am a nurse so I do a lot of heavy lifting. I’ve read 2 weeks but with weight restrictions of less than 10 lbs for 4 weeks?

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited March 2020

    Islander - I never took opioids with exchange 6 months after BMX, and was back to driving in 3 days. I did have drains, but they were gone a week. Still - I'd be wary of the heavy lifting. I bought 1/2 gallons of milk to cut down the weight. It would be nasty if you rip out stitches and have go back to surgery.

  • SuzieQ2019
    SuzieQ2019 Member Posts: 10
    edited March 2020

    Islander,

    I just had my exchange surgery last week, and my PS instructed me not to lift over 5 pounds or make repetitive motions for 2 weeks. I had the same restrictions when I had my mastectomy with tissue expanders in November.

  • HikingLady
    HikingLady Member Posts: 650
    edited March 2020

    For my exchange, my PS said 3 weeks restriction on any lifting, also 6 weeks no elevating of heart rate, to reduce chance of infection and maximize body's ability to heal.

  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited March 2020

    For my exchange I was advised not to lift anything more than 5 lbs for 6 weeks.

  • scoop
    scoop Member Posts: 34
    edited March 2020

    I had my tissue expanders filled for the first (and likely only) time today. She put in 100 on one and 140 on the other. And now I am SORE. Like way worse than after the BMX and TE placement. Is this amount of discomfort normal for that amount of fill????

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited March 2020

    Scoop, WOW!! I had 60cc each fill nice and slow. I bet you are sore! I don’t get that? After last fill, which took 2 1/2 months, you let them sit for 3 months so pocket can form around TE for the exchange. Hope you get comfortable soon.

    Robin

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited March 2020

    Yup - I too usually had 50-60 ccs with each fill. Why do they want to rush so much? Same was true of chemo. Herception over 60-90minutes was great. Hercpetin in a 30 minutes infusion was horrible.

    Scoop - you can go have them take some fluid back out is the pain doesn't get any better. Also space the fills 2-3 weeks apart so you have time for your skin to stretch.

  • HikingLady
    HikingLady Member Posts: 650
    edited March 2020

    Scoop - pain and discomfort got better quite quickly after each fill--fine within 2-3 days. I had Rx cyclobenzaprine (Flexoril) which helped a lot---I took it at night, and some Tylenol as well the first day after each "fill." For me, the tightness of the pec and its spasming was what was causing my pain and discomfort. Good advice above my post: ask for smaller fills than that in the future, and you can have them take some out right now if you're uncomfortable. I had plenty of time (8 months, due to chemo and another health issue) between BMX/TE's and exchange, and I took my time and went slowly on the fills.

  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited March 2020

    Scoop I only got 60 cc each time but I was one of those who had terrible pain with the expanders for about 7 weeks. I hope your pain and discomfort gets better soon!

  • scoop
    scoop Member Posts: 34
    edited March 2020

    Thank you for the info! I didn't know 60cc was the norm. Not sure why she did more, maybe because I'm not planning on adding anymore? Still uncomfortable today, but slightly better. It is actually better to move than to lie still, so sleep was hard.

    I do feel like I have two turtle shells (someone else here used this term) glued to opposite sides of my chest. They feel so far apart, and hard! Does this get better with the TEs over time, or just live with it until exchange?



  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited March 2020

    scoop - actually my grown son who doesn't even live with me has a better memory than I do. He said I complained every single time we talked until the exchange about the pain &/or the discomfort &/or the hard 'turtle shells'. Aspirin was my friend. Hang in there.

  • Islander89
    Islander89 Member Posts: 7
    edited March 2020

    thanks everyone for your response. I went to my PS yesterday and I’m still on restricted lifting for 3 weeks. So a total of 4 weeks of no heavy lifting. He especially wanted me to be careful because he had to put an extra stitch on my left breast to hold my implant in place to keep me symmetrical. Also a sports bra for at least a month

  • HopeBry
    HopeBry Member Posts: 88
    edited March 2020

    I just got implant transfer yesterday. Now my right breast has bright red typ of rash. Is this normal bruising? or could it be like a cellulitis infection?

  • HikingLady
    HikingLady Member Posts: 650
    edited March 2020

    HopeBry My PS's office was really good about discussing on the phone whether I should be seen, and I could even send a photo along the way when I had a concern, but that never happened to me on a weekend.

    If I were you, and worried, I'd go ahead and phone up your PS's office, and of course, on a weekend, an on-call PS will phone you back to discuss.

    Is it warm to the touch, does it itch or hurt, are you running a fever....be prepared to answer those questions. It could be a dermatitis reaction to ointments or surgical dressings and drapes, or it could be a sign of something inside, and the on-call doc will ask you a lot of details to figure out what's next.

    Take a picture of it now, so you can compare whether it's better or worse in a few hours.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited March 2020

    Hope - am I understanding that this rash is on the opposite breast that had no procedure? Left breast exchange - right breast no surgery but now a rash?

    If that's the case it's more than likely a reaction as HikingLady says to an surgical wash, ointment, drape, tape, bruising or other that touched the non-involved breast. If you call, be sure to clarify that you're not talking about the side with the new implant.

  • OnTarget
    OnTarget Member Posts: 447
    edited March 2020

    Scoop, my PS liked to put in 100 at a time even when I asked for less. Mine hurt a LOT for some of the later fills. My skin did not want to stretch at all, and the TE's actually dug down into my chest muscles since my skin wouldn't stretch. They also migrated towards my armpits due to the pressure. My TE's started with about 1 figure width between them and ended with 4 fingers between them.

    The PS didn't say what was going on at the time, but we've spoken about it afterwards and it became clear that I needed to be filled much slower. He did indicate that the migration is caused by tight skin.

    The good news is that the pain really went away after a while. I had TE's for 6 months and they really didn't bother me after the filling stopped. I was able to ignore them most of the time, but if I stopped to think about it, they always felt like someone squeezing them very hard. Now I'm 4 months after my exchange and they still feel like they are being gripped if I concentrate on them, but not nearly as much. I have a feeling that the discomfort will keep getting better over time.

  • scoop
    scoop Member Posts: 34
    edited March 2020

    Did anyone ever get a weird squishy sensation sometimes with the TEs? Certain movements or positions I get this strange feeling. Sort of liquidy, sort of not?



  • HikingLady
    HikingLady Member Posts: 650
    edited March 2020

    scoop YES! I remember living with WEIRD and NOT THAT COMFORTABLE until final implants. My permanent implants feel better, still not like the original breasts, but better than TE's.

  • poisedandpink
    poisedandpink Member Posts: 66
    edited March 2020

    Hi All,

    I was curious if anyone has had their tissue expanders in for over a year? If so, what was reconstruction like afterward?

    I had my tissue expanders placed in April 4, 2019. I started radiation in June, followed by six months of Xeloda. I was scheduled to have my exchange surgery the first week of March right when the Covid virus spread started in NYC. Due to this, my exchange surgery was rescheduled and cancelled twice. It has now been indefinitely postponed. I was told it could be late Summer or even Fall before I have my surgery.

    I completely understand why. The health and safety of myself and other hospital workers are at risk, but I'm also a little bummed. I had built up this reconstruction surgery as the last phase of my cancer journey before I could start to move on. At the same time, grateful for the place I am in now.

    I'm interested to hear of what the scar tissue was like and if it made the surgery more challenging to keep expanders in this long?

  • TrmTab
    TrmTab Member Posts: 832
    edited March 2020

    HI PandP

    I had MX in June and then EX Sept of the following year...I was supposed to have the EX in Dec, 3 months after last fill, but then my mother had a stroke 3 weeks before my surgery and was released to home recovery (at my home) the day of my surgery. I couldn't take her in and myself be on the disabled list of recovery, so had to postpone. My EX was great when it happened. If you are otherwise healthy and stay active/fit in these crazy times I am sure you will be fine. TT

  • poisedandpink
    poisedandpink Member Posts: 66
    edited March 2020

    Hi TrmTab,

    I'm sorry to hear about your mom. I hope she is doing well now. Thank you for sharing about your surgery! That was helpful to read

    I'm trying to stay as active as I can but I think it causing issues. I'm currently experiencing a random burning pain under my tissue expander (they are over the muscle) on my side that was radiated. I do not think it's anything serious as it's only started now that I'm consistently working out more being that I'm working from home right now. So I'm hoping it's just my right radiated muscle rubbing against the tissue expander.

    But I suppose that's another question, did anyone with over the muscle tissue expanders experience any sharp pain or burning randomly on their radiated side, especially with increased activity?

  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited March 2020

    I did not have radiation but I had pre pec expanders and now implants and I get random sharp/weird pains especially after doing too much.

  • MCBaker
    MCBaker Member Posts: 1,555
    edited March 2020

    No radiation here, but I get pain right around my port scar. Onco and I decided it was the weight of implant pulling on scar tissue, which should decrease with time.

  • Ilovethemoon
    Ilovethemoon Member Posts: 7
    edited April 2020

    Hello!

    I had bilateral mastectomy 3/20/20 (R/cancer, L/prophylatic). I started immediate-delayed reconstruction with tissue expanders. I was going to do delayed reconstruction because I didn't like the wait/time frame for having to wait to start immediate reconstruction, but literally, at the very last minute before going into to the OR, I consented to an immediate reconstruction since the PS schedule had opened up due to the COVID-19 cancellation of his non-essential procedures. So I did not have the pre-op appointment that I would have had if I had known I was going to do it all at once--maybe things would have been discussed more then/I would have given options, I don't know. Anyway, at my initial consultation with the PS, he said he wasn't going to talk cup size yet, we would just have to see what my skin would allow--he said likely it was going to end up looking like a had a lift. We only discussed saline vs silicone - he recommends silicone (no gummies since they can can move, I guess?). I'm 5'2" and 158 lbs, but I was trying to lose weight before my diagnosis and my goal weight is 125-130. I was a generally a 36B before surgery. I had my first in-office fill on 4/7 and my second fill today 4/14. I am going to have 8 rounds/5 months of chemo. Was planning to start chemo at the end of this month but now it's going to be early May (due to exchange for implants). I initially didn't think I was going to need radiation, but now that is a consideration due to my close surgical margin...my surgical margin was clear, but only by 0.5 mm at the superior margin and so now I may need radiation after chemo after all. (that's another thread's question).

    So, originally I thought I was going to have the TEs in place for months with fills over that time period. I've read about people waiting for the exchange of TEs for implants for several months after the "final" fill. Well, last week (ie., 1st in office fill), the PS talked about doing my exchange before I start chemo. I thought, well what was the point of doing immediate reconstruction if the TEs are in place for only a few weeks? Anyway, I saw him again today. I questioned about the short time frame. He assured me it would be okay. He said I could leave the TEs in until after chemo but I would have to wait a month after chemo ended, so I would be looking at having the TEs for 6 more months. He discussed how the TEs are more uncomfortable than the implants and a lot of women feel better going ahead and having the implants in place before chemo. So now I will see him again next week for maybe another partial fill/final fill which should be full (I found out today they are 500 cc expanders). And surgery for exchange is now scheduled for 4/29.

    So, all that info to get to my question - has anyone else had their process occur that fast? It just is a lot faster than I expected and from what I have read about other people's experiences online. I don't have any reason to not trust him. And will 550 cc give me a nice size? ( It would be great to be a little larger than pre-op but definitely not smaller ). Everything seems to be going okay so far. When I asked around before surgery, generally everyone loves him, one person said you just have to make sure to be your own advocate without elaborating. So I guess I'm just wondering if I need to be advocating something for myself here...Thanks in advance for taking the time to read my long story and for any comments!

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