Feeling sad
I had a total double mastectomy on April 9th, 2020. I am home & resting well. My husband is taking care of my every need, including letting me cry. Today I woke up feeling really sad. I am sure this is normal and will get easier each passing day. My support from all my family and friends are wonderful. When they ask how I am doing "I say I am great" when inside I am crying. I have always been the strong one in my circle of friends & family. Does anyone else feel like me? I would love any words of advise. Thank you all for listening to me & I wish only the very best for everyone to have happiness.
Comments
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Earth, you are experiencing a tremendous loss and your sadness is the necessary expression of grief. Mastectomy is traumatic physically and emotionally. The physical trauma heals much faster than the emotional and it is good you are allowing yourself to feel it and so good your husband is supportive. I personally found it helpful to share how I was feeling with those who l trusted would just listen supportively but did not share w people who would, in all good intention, give me platitudes or tell me to focus on what I should be grateful for. Don't be surprised if you begin to feel some other emotions (like anger) that not everyone can handle. Right now people may be tempted to say something like, “well, at least you don't have covid 19." That is likely to enrage you b/c, while you are probably glad you don't have the virus, this kind of statement can feel discounting of how you do feel. Keep feeling what you're feeling without censoring yourself and talk w those that are supportive....including everyone here. We've been there, so we get it. If you don’t get it out now, it will go inside and marinate, only to come out when you least expect it. Sending virtual hugs.
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Earth , for every tear we shed, we are that much more closer to being healed. Tears are healing us both mentally and physically. Your body will tell you when it's time to stop,,we just need to listen to ourselves and no one else.
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Thank you so very much. I am going to start sharing with my most trusted family & friends my feelings. I agree I can't keep it bottled up. I am so grateful for this message board. It allows me to see I am not alone & it is helping me a great deal for the short time I been on it. Thank you all for the support we give to each other. ((Hugs)).
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Gamb, That is absolutely beautiful. The tears will heal me for sure. Thank you. ((Hugs)).
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Earth, I just want to reiterate the advice you’ve gotten already & share my own similar experience. I didn’t want my mastectomy to effect any one else’s life- I told everyone ‘I’m great. I’m sooo.... lucky’. I totally diminished what I was going through. Big mistake. After my exchange surgery, I had a total breakdown. Anxiety attacks that were debilitating. I’m getting better now - talking to my family & friends and being honest with myself about my feelings of loss & fear. You can’t bottle it up and just hope it goes away. Good for you, for reaching out & figuring it out early. Big hug
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Prepmom, Thank you for the advise. You sound like me. I always used to say there is enough sadness in the world why give more to someone. But as I am learning it is important to get it out. I will cry when I need to and laugh the next moment. I so wish you all the very best on your recovery as well. We can do this. ((hugs))
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Earth_Sky, Thank you for having the courage, wisdom and insight to post about your feelings. I send you giant virtual hugs. I too am the "strong one" in my world.
I would like to share what the nurse navigator from my breast imaging center told me shortly after my diagnosis that really helped. We were discussing that I was feeling completely overwhelmed, depressed, anxious and overall miserable with the prospect of surgery. I was berating myself that I was being a big baby over it and struggling to be grateful that I had a small, slow-growing cancer and only needed lumpectomy and was going to get a "bonus" reduction & lift. I had a total hysterectomy last fall and never had a huge emotional crisis about it. She told me that I should totally embrace the "suckiness" of breast cancer for the simple reason that as women, we see our breasts daily, dress them daily and they really are part of how we present ourselves to to world. Changing them or losing them is a big deal. When you have breast cancer, you do have to accept change and loss as part of the cure. I've found that giving myself permission to embrace the "suckiness" -- tears, rage and a therapist - has helped.
I'm not finding that my friends and family are being particularly sincere when they ask how I am feeling post-surgery (mine was 4/1). I'm trying to ignore it because the Covid-19 pandemic has totally destroyed everyone's sense of normal. I had an anxiety attack on Saturday (see my post about the tight surgical bra) and my husband's reaction was to tell me about his digestive problems --UGH!!! He hasn't even noticed that I'm barely speaking to him. He's got a history of being slightly clueless but usually figures out pretty quickly that he's screwed up.
Also, you are likely feeling extra emotional from the effects of your anesthesia and pain meds. The medical professionals rarely tell you much about it but it's real! This was my third surgery in 6 months and I've had this emotional roller coaster each time.
Embrace your feelings, eat well, rest, move around as you are able, get outside if possible, watch a funny movie, and MOST IMPORTANTLY - do not watch the news all day.
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EarthSky, it's completely okay to say to ANYONE how you feel. Obviously, some people will take it better than others! But maybe most important is to accept it yourself. YOU can agree with you, yes, this is scary and I'm tired and weak and scared, and even kind of mad -- or however you feel. Then say to yourself, and THAT'S OKAY. It's okay to feel that way. It's okay to not feel like the strong one now. This is a crap thing to happen! It's okay to feel not great, and it's even okay to admit it to others.
Everyone but my husband thinks I did just great last year through my diagnosis and treatment. Really, I did do "great," but great includes a lot of pretty rough times. But the bad part about that is even my adult children don't have much sense of how it was. My son is ... not sure ... resentful or angry or feels shut out or something, because he feels like I didn't share enough of it with him.
So my only advice is back to paragraph 1. You're doing great! But that comes with a lot of not-great, and it's okay to admit it to yourself and to other people.
Hugs and good wishes.
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hugs. You are beautiful strong...and allowed to be sad. Try to enjoy some spring flowers...especially up here in Ohio its truly amazing how new and old things can look and feel good after miserable ugly depressing winter when we're not sure what or when things survived the winter.
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CallMeTenacious I love the term "Suckiness" That is what it is. I am so sorry your husband prefers to talk of his issues. I am so grateful for my husband tends to my every need. If he sees trying to make him coffee he runs up & says no you rest. It is sweet how he cradles me. & I love him all the more. I wish you & so many others had that.
I learned that people are who they are. When I told a few extra friends of what was coming for me the responds was very telling that they are not who I want to be around. I understand everyone is stressed with the virus but still. One female friend said "Oh a mastectomy is like getting your tonsils taking out, you just get over it very fast. another female said well you should have eaten better. I said you do know I am vegetarian & workout daily & eat no process foods or fried foods. she then said well you should eat more bad food to prevent this in the future. I shook my head. That is just a few of the stupid responds.
My Aunt is going thru a health scare & she calls me at times to say do you need anything and it is okay to fear. She always says have a stiff upper lip, keep calm & carry on ... But only when you need to. If I am sad it is okay to cry for it is part of the healing. She lives so far away but when she talks to me it is as if she is sitting right next to me. We all need that person who just listens.
I so wish you all the very best in your recovery. & hope you don't need anymore surgeries for a long time. it is one ugly roller coaster that none of us wants to ride. The one thing that helped me in before & after surgery was my lavender essential oils.
I send you lots of virtual hugs and thank you for the advice.
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MountainMia Thank you so much for your words of wisdom. You said something so telling to me. "But maybe most important is to accept it yourself". I actually was thinking as I was in my chair "Is this just a bad dream". It is not a dream it is real & I feel like more and more and I will accept it. I am healing I can feel it as the chest muscles are rebuilding.
I will keep telling myself I am doing great and will accept the not so great moments. it is all part of the healing.
I hope things get better with you and your son heals as well. It is a very hard path for us to walk as well as our loved ones.
Thank you so much for the advise. I appreciate it so much. Many hugs to you. ((Hugs)),
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7of9 Ohio is gorgeous in the spring. Here in Idaho we keep hanging onto winter. I long for the warm summer. I had my hubby water my Zinnia seeds yesterday. Come on flowers earth_sky needs you to start blooming. Do enjoy your garden. Thank you for everything. I send you lots of ((Hugs)).
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You can have a room full of people that this is a lonely journey. I would feel so sad and I could not believe how lonely I would feel in the pain and sadness. They ask “How are you doing?” GREAT! Was also my answer and in reality I was devastated!
All this is normal and as the days went by it will pass. It’s so hard to believe that. But the sadness goes away and one day when you don’t even realize your back at being you.
Here are some video I made during my journey hope they help https://m.youtube.com/channel/UChJA2AxDL3pCr5aE-S63jMg
via -
oh my goodness I just read that one of your friends said "Oh a mastectomy is like getting your tonsils taking out“ is she insane!!!!! Get that friend OUT!!! When you get cancer God leta you see the people that are in your life and I saw way to many in mine that had to leave my life! Even some family members were so disconnected with me. Broke my heart! But I knew then who they were!!
my husband was amazing with me like yours is! Cancer show me I married a wonderful man!
via -
Hello Via, Thank you so much for the video. I am so sorry you had to go through this and to have a damaged done with reconstruction surgery. What a nightmare for you. I had a bad experience many years ago with a doctor who was doing a biopsy on me. Walked in the room & screamed this is horrible and not good at all. Nurse ran up and said you have the wrong patient chart. I was so traumatized after that. It took years before I went back to a doctor. Thankfully I explained what happen to my current doctors and she along with all the nurses are so very kind and gentle. I can trust doctors once again.
What a journey you been on. I love how you video tape it. When you spoke of the pain I so could relate. I only take Tylenol for my pain. And I too keep a journal of what meds I take as well as my drains are logged. Organization is a must for in this battle.
As for my friends who don't understand what a mastectomy is I pretty much don't talk to them at the moment and may never again. We learn who are family & friends are. And I thank God for guiding me as to who I can trust.
I am so happy you too have amazing husband to walk this path with. Our husbands are a true gift.
I wish you all the very best on your journey and together we will keep reminding ladies the importance of early detection.
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Reach for happiness and You face challenges, knowing You
have friends here that will always be with You. Be grateful for
the love and I can see you do cause You share it well. Look
for the good in all You are seeing, knowing there's a rainbow
coming after each storm. God be with You and He will carry
you through. And each day will show You happiness as You
win the battle too.
I have been through 4 cancer and know with Your caring heart
you can do anything.
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Thank you so much footprinsangel, I am feeling better and better with each passing day. Yesterday morning I was a little down, but a friend called & lifted my spirit. Today I feel really good. Plan to be in my garden and work with my flowers and for sure talk with God. I am so grateful for my healing & will continue on that path.
I wish you all the very best for all that you have gone through. Your so right with a caring heart we can do anything. ((Hugs))
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Earth, it is completely normal to have days where you feel down. It's ok to feel sad about it, it doesn't make you any less strong. You are still the strong one, but you are also human!
This is not small. This is BIG. There are a lot of feelings attached to this. It will change and ebb and flow. The healing process felt so long and so isolating, even when people were around. But you will get there. Also, you just had major surgery, you get to feel however you want!
I will pray for you for peace. Lean on those safe people in real life, or here, who will listen without judging you by how they think you should feel at a time like this. You be you. Many well wishes.
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Thank you so much emmaj99. I really needed your message. I find myself in my sewing you wanting to be alone at times. It is a place I can reflect and do a lot of writing. Some days I am bouncing with joy & others I feel a bit down just wanting to be alone. I am truly blessed with recovering well each day and received word from the Cancer Doctor I will not need radiation. That is a relief there for sure. I just will keep doing my post exercises and will get stronger over time. Till then I will keep writing and hoping I can inspire others.
I am so grateful for this board for I see I am not alone on this journey and it is a safe place to turn too. Especially when you discover who you thought were friends only to discover they really have no clue as to what Breast Cancer really is.
Many hugs to you and to so many others here.
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I’m feeling sad because no one in my family had breast cancer I’m the first. My family is very supportive but Im still sad and feel very alone because this is something inside my body that I have to get removed otherwise I won’t be here much longer. Just the word cancer scares the crap out of me. I’ve lost my parents, aunties and uncles with this dreaded disease called cancer. I’ve been told by friends and family if you were going to get cancer this is the best one to get it still sucks! No one wants it at all but yet I have it and it’s killing me on the inside to just know I have cancer I’m scared out of my mind because I’m going to have surgery next week to hopefully remove this tumor out of me. I know the medical diagnosis has gotten better over the years so my chances of survival are fantastic. I’m just glad to have this format to just say what I really feel. Thanks for let me use this as a sounding board have a blessed day.
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Oh Harri5541 I am so sorry you are having to go through this journey. My heart aches for you for I and so many here have felt what you are going through. We are all here for each other.
Cancer is very scary no matter what kind we get. But, just remember to take a deep breath and say "I can do this". when I got the phone call I put my head on my desk & cried, for I was terrified. I then sat up and said "I can do this".
You have a wonderful family who will be with you throughout this journey as well as this board.
It is okay to be sad and I was told to cry when I need to for it is part of the healing. In fact my doctor and nurse cried with me the day of my surgery. They were so supportive from the moment I first met them. They showed me compassion and that they really understood what I was about to face.
Remember you are not alone for you can reach out to me or anyone here.
You can do this. Just take a deep breath and and say "I can do this".
I send you a huge (((Hug))) and all the very best. I am here for you if you need anything.
This makes us view life completely different.
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Dear Harri5541,
Welcome to the BCO community. We are so glad that you decided to reach out and join our members during this very difficult time. We know that you will receive a good deal of support and helpful information here so you will not feel so alone with all of this. Keep us posted on your surgery and your experiences to come. We are here for you. Let us know if you need any help navigating your way around. We are sending your warm and healing thoughts.
The Mods
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Earth Sky you are not alone. I remember those days, it's especially hard in the beginning and right after surgery. You are tired, in pain, still in shock and trying to process everything. You will have your days when you are down and where you need to cry, allow yourself to do so. Just know that things will get better as time goes on! We're here for you
Harri - so sorry that you've had to join us. I wish you the best with your surgery next week.
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Harri5541 I just wanted to let you know I am thinking of you this week and hope all is going well for you.
Best wishes and many hugs.
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