bloated feeling on Herceptin?

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Brooklyn1234
Brooklyn1234 Member Posts: 97

I'm halfway through my year of Herceptin and have noticed my whole body feels sort of jiggly and bloated. Anyone else? I have been monitoring my arm for symptoms of lymphedema and it's definitely jiggly but so are my legs and belly, so it's hard to tell.


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  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2020

    Brooklyn - I had a lot of water retention so tried to watch my salt intake, and move more. I did gain weight during chemo, but it definitely was not from eating too much, it was excess fluid. I had a lot of GI distress when on chemo and Herceptin together, but when I moved to Herceptin alone one of my onc nurses suggested using a probiotic - this definitely helped, and also helped with the bloated feeling. It may be worth a conversation with your MO if your rings/shoes are tight, mine put me on a potassium sparing diuretic (triamterene) that didn't aggravate my kidneys. I took it the whole time I was on Herceptin, then gradually came off.

  • Brooklyn1234
    Brooklyn1234 Member Posts: 97
    edited April 2020

    Thanks very much for sharing this, SpecialK! I'm taking a probiotic but will definitely consider a diuretic.

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