Surgical bra is so tight that I'm about to lose my mind!!!!

Options
CallMeTenacious
CallMeTenacious Member Posts: 39

I'm 10 days post-surgery -- partial mastectomy (one malignant mass and one benign), sentinel node biopsy and bilateral reduction/lift.

I really feel great today except for the pain caused by the surgical bra. I think I was put in the wrong size bra and feel kind of dumb ( post-anesthesia brain) for not calling this out earlier. I just came to the realization that my discomfort is all related to the bra - not to the surgery. It's the weekend and I don't have any expectation that the PS will respond to my portal message. My first follow-up appointment is next Friday - in a normal world it would have occurred at one week.

I was put in a Marena Recovery bra size 3840. According to the Marena size chart this is for underbreast measurement up to 36 inches. My underbreast measurement has been 37 inches for the past several years. I woke up post-surgery with the bra set on the loosest hooks. I have no idea how they forced me into it!

The band is too tight. The elastic is constantly rolling up putting pressure on the incisions and I have major pain across my back. I have years of experience in wearing bras and this is clear evidence that the band it too tight -- even with the intention of compression. Am I right???

I do have a new Soma sports bra that I can have my husband hook me into for some relief (hooks in back). I hate to break the rules and don't want to compromise the recovery on my "new" breasts. On the other hand, I'm really going out of my mind.

Not expecting medical advice - just personal experiences, suggestions or even a joke.

Thanks!

Comments

  • Ingerp
    Ingerp Member Posts: 2,624
    edited April 2020

    I was never given a bra from the hospital after lumpectomies (I've had three). Just used a soft cotton overhead bra. I was told to wear it 24 hours a day for a week but usually got annoyed after 4-5 days so quit then. It's important to be comfortable.

    Hold on—I just realized you had some re-construction which I did not. Still—if it were me I’d shift to something I already own and keep as still as you can.

  • raymondaz
    raymondaz Member Posts: 5
    edited April 2020

    I had lumpectomy plus Ocosplasty small reduction lift March 9 32dd post surgery 32c/d

    Marena style 3032 made my eyes tear up plus a massive bruise on side yes Yes it needs to be tight try Amoena Ester great support true to size plus two rows of hooks on front


  • CallMeTenacious
    CallMeTenacious Member Posts: 39
    edited April 2020

    Here's what happened:

    Shortly after I posted this message, I had my husband hook me into the Soma sports bra and positioned myself on my bed in a comfortable seated nest and dozed through an hour of TV. When I got up, a miracle had occurred. My back spasms vanished and the intense pressure & discomfort at the base of the bra was merely mildly annoying! So what did I do? I experienced a full-blown anxiety attack - the worst that I've ever had. It wasn't pretty. It also made sense - I had put so much energy into staying in the surgical bra regardless of the discomfort that once I the stress was removed, the underlying anxiety broke through.

    I calmed down and put a call in to the plastic surgeon. I was on hold for almost 20 minutes before a human picked up (major university hospital in the midst of a pandemic). She was amazingly calming and paged the on-call plastic surgeon. When he called me back, he was immediately reassuring that I was not endangering my outcome by abandoning the surgical bra at 10 days post-surgery and that the most important thing for recovery at this point was that I should be comfortable. He concurred that I my surgical bra was likely too small. His take was that if I'm not experiencing major swelling at this point then the extra compression of any surgical bra was not necessary.

    I feel much better today. I got up and walked about a mile at my normal pace and then walked another mile with my husband at his slower pace. I'm going to try to do an online order for some front closure sports bras.

    Some takeaways for anyone reading this thread:

    Having surgery during a pandemic is going to present unique challenges - scheduled on less than 24 hours notice, no opportunity to review recovery instructions, surgeon never came to recovery to check on me, pushed to get dressed and leave recovery as soon as possible etc, no followup call from surgeon staff to see how I was doing (same hospital would call after routine colonoscopy in normal times). Most importantly, the normal followup appointment is scheduled for 1 week post-surgery and mine will be 2 !/2 weeks if they don't decide to cancel it. A lot of uncertainty.

    I let myself be bullied. The importance of wearing the surgical bra was the only thing that the plastic surgeon stressed in his brief pre-surgical conversation as I stood with my torso exposed as he drew the lines to mark for the intended surgery. The plastic surgeon as also made it clear to and to my husband in a brief post-surgery phone call that portal messages (email) were the preferred form of contact and that anything urgent was a 911 call. Did not feel any love and support. I recall hearing his words to the effect that this was a routine procedure and I was going to do well. If it's so routine, why would I even have to consider the possibility that they would put me in a too small bra??? If you're reading this, don't let yourself be bullied!

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2020

    raymondaz, welcome to Breastcancer.org and thank you for sharing your story and recommendations! Please know that we are here for you if you need any assistance navigating the boards or the main site.

    CallMeTenacious, sorry for all you've been through! Just letting you know that we're thinking of you too, and sending you gentle hugs.

    The Mods

  • Bootscootin
    Bootscootin Member Posts: 70
    edited April 2020

    I also had a bilateral reduction and lift with my lumpectomy. I’m glad you have figured out a way to be more comfortable. I’m surprised your surgeon was not concerned that too much compression would impede blood flow to the breasts. It is a fine line, in my lay opinion between having enough compression to help prevent swelling and not having too much. Too little blood flow can result in tissue death. I went home from the hospital with a wide ace bandage that I could take off after 24 hours

  • Bootscootin
    Bootscootin Member Posts: 70
    edited April 2020

    One more comment about the too small bra. It is possible that the bra fit when it was first put on you and that after some swelling took place, it was too small. I don’t know if you had drains or not. I did not and had a lot of swelling in the first few days. I had purchased some front close bras from Walmart (Hanes, about $7 each and available online too) and have continued to wear them since. I did get some up to two sizes larger than normal that I wore during and shortly after radiation when I wanted something that was really loose. I continue to wear those front close bras to this day (4.5 years after radiation) and use a “chip bag” on the cancer side as I have mild breastlymphodema on that side.

Categories