Anyone else has mets in lung, several bones & liver?

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Proverbs312b
Proverbs312b Member Posts: 22
edited May 2020 in Stage IV/Metastatic Breast Cancer ONLY

hello ladies,

In November 2019 I found out my BC (3 years since last treatment) had spread to my lungs, sternum, spine, ribs, hips, several other bones and liver.

I've had faslodex & ibrance as 1st line of treatment (Dec - mar) & there was progression in the liver so now I'm taking 2500 mg of xeloda 2wks on 1 wk off.

I am just curious if there is anyone else on here that has it as widely spread as I do and for how long?

Thanks in advance,

Jessica

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  • Laurie09
    Laurie09 Member Posts: 313
    edited March 2020

    Hi Jessica,

    There are likely many women on this forum with extensive disease to multiple areas.

    I too have bone, liver and lung mets - 6 years with bone, 2-3 years with liver and 1 year so far with lung.

    The "how long" can vary a lot and depends on how your cancer is responding to treatment, how symptomatic you are, etc. It sounds like you probably still have many treatment options available!

    My lung mets are what are causing me the biggest trouble right now. Prior to the past few months, my cancer would respond for a year or so to whatever treatment I was on, then slowly progress. It's now behaving more aggressively.

    Good luck to you!

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  • Proverbs312b
    Proverbs312b Member Posts: 22
    edited April 2020

    Hi Laurie,

    Thanks for replying and for sharing! I'm sorry that your journey has progressed more rapidly as of late. I'm sorry your lungs are causing a problem now.....are you experiencing and breathing issues? So my lungs are not as bad as my liver is.

    My MO says there are a few treatment options available.....I'm now on 2nd line: the 1st cycle/round of xeloda.

    I look forward to connecting and encouraging with other women with Mets :)

    Jessica

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  • Selkie36
    Selkie36 Member Posts: 31
    edited May 2020

    I have mets to liver (new), lungs (few years?), bone (sternum), lymph, and brain (few months, is shrinking). Almost everything is stable or shrinking slightly. My biggest challenge these days is leg weakness due to steroids. I've been on Gemzar, but I have a sneaking suspicion he may change that today, and I'm nervous...

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