Faslodex Girls Thread 2014

Hi Grace,

I agree with Shetland. You should be fine. Warm the injections (I usually stick them under my arms or between my thighs for a couple minutes) and make sure they inject slowly. As Shetland suggested, you probably want to walk around for 5-10 minutes after and, given that it is such a long drive, I would stop every now and then go get up off you butt. Oh, and make sure they use bandaids given the long period sitting. My injections often seep a bit.

Worst case you will be a bit sore but really, driving or being a passenger is much the same. I’ve never had any issues like nausea or dizziness. Just varying degrees of tenderness and the stinky pee which I’m sure is from the castor oil suspension

Sadiesservant … so glad someone else has mentioned "stinky pee". I have been getting Faslodex shots for many months now, but just noticed the odor after the last couple shots that lasts a few days. Thought there was something wrong. Thanks for the info Other than that, no SEs or pain after the shots.

kathy

Hello, Fanny Pack. I'm back! (See "Well, damn" thread for details.)

Tina

And along with that chemical smell, a feeling like a urinary tract infection coming on, but it is just irritation. I have now finished the three loading doses and am glad the shots will be a month apart now.

SUMMIT Trial: Neratinib, Herceptin, Faslodex

Hi Grannax.

I was on Faslodex alone for almost two years only recently adding verzenio. Did not have hair thinning but have noticed a bit since I added Verzenio. Weight gain? Most definitely. Thankfully mot too much at this point as I had lost quite a bit after my original diagnosis due to the effusion and then pneumonia. Back to where I started but the weight all seems to have come back around my middle! Grrr!

Thanks girls. Mine is around the middle too. Grrr

My faslodex injection for friday has been cancelled cause of the coronavirus. I'm pretty stable and there is nothing I can do about it anyway. I think things will be worse in another month and will be a greater need to cancel then. Who am I to say?

Anybody else?

I'm about an hour between several known cases. Not too worried since I'm taking only faslodex and xgeva and 63. But playing it safe. Not expecting cabin fever either. Its spring and I get outside alot.

Wow, gailmary, I don’t like to hear of a stage iv patient not getting treatment. But maybe since you are stable they judge it more risky for you to come in.

Lulubee, I hope your treatment is not failing! Do keep distance.

I plan on leaving any crowded waiting areas and telling the staff to call my cell phone when they are ready for me. Hopefully they have already devised a way to keep distance in waiting areas. At my cancer center the waiting area for VAD is always crowded. I am going to call a couple days before and ask if they have arranged things better. I think they should draw my blood in the private infusion room rather than send me to VAD first. The private room is because research subjects are treated in a special facility. I wonder if being on a trial will make me less likely to have things cancelled.

SUMMIT trial: Neratinib, Faslodex, Herceptin

You’re hilarious, Sadiesservant.

Y'all...I think my onc gave me the last faslodex and maybe the one prior that have resulted in excruciating pain. I got a bone scan because I was sure the cancer was back but it was clear. I think he hit a nerve. Have any of you ever dealt with anything like this? Thanks in advance for anything you can tell me. I'm taking 20 mg vicodin, muscle relaxer and I got a steroid shot with a pain reliever yesterday....the pain was much better for a few hours but it's come back. I was walking a minimum of 5 miles a day but I've been completely shut down for a few weeks now.

I had to stop physical therapy because of the pain. If I can't get this resolved then I will stop the Faslodex. I'm going to ask my nurse to give me both injections on my next treatment day. He can't come near my butt!

I have excellent news to report. I finally had my PET, after six months of being on Faslodex only, and it's working! My lung and chest mets responded better than any other TX I've been on. YAY. It's been my easiest TX so I am thrilled and a little shocked. The uptake was much less in all the tumors.

The y90s worked so well the report says " liver mets have "resolved". Can you believe it? This was my second set of y90s, the first was in 2017. I got 18 months from that one.

So, with the combination of Faslodex and y90s I hope to get at least that much or more.💞

You go, Grannax! Happy for you.

Tina

GrannaX, I am thrilled to hear your news! Best news all day. Maybe week.

Where do you get your shots? stomach or butt? I've had shots for 5 months, always both @same time in butt. (Wonderful idea, they inject at same time. push together slowly, then remove together. Takes away anticipation.) Not terrible, but how is it in stomach?